Russian Psychological Issues PsyJournals.ru
OPEN ACCESS JOURNALS
JournalsTopicsAuthorsEditor's Choice About PsyJournals.ruContact Us

  Previous issue (2019. Vol. 27, no. 2)

Included in Web of Science СС (ESCI)

Counseling Psychology and Psychotherapy

Publisher: Moscow State University of Psychology and Education

ISSN (printed version): 2075-3470

ISSN (online): 2311-9446

DOI: http://dx.doi.org/10.17759/cpp

License: CC BY-NC 4.0

Started in 1992

Published quarterly

Free of fees
Open Access Journal

 

Doctor-family-patient communication in pediatric oncology/hematology: diagnosis and treatment disclosure

Klipinina N.V., Moscow, Russia, nklip@mail.ru
Khain A.E., Head of Clinical Psychology Department, Dmitry Rogachev National Research Center of Pediatric Hematology, Oncology and Immunology, Moscow, Russia, khain.alina@gmail.com
Kudryavitskiy A.R., Moscow, Russia, a_kudriavitsky@mail.ru
Abstract
The significance and importance of parental and patients informing problems, their influence on the quality of children’s treatment and life and on the condition of other treatment participants (medical stuff, children’s families) at pediatric oncology/hematology couldn’t be overestimated. Numerous researches show that psychological problems of treated children and their families (such as anxiety, dissatisfaction, distress connected with the disease and provided medicinal manipulations, non-compliance, proneness to conflict, sever emotional reactions to the medical interventions and decisions, resistance to the treatment, refusal and so on) are caused by deficit children’s and parental knowledge and beliefs about disease, poor information about treatment possibilities and limitations, recovery chances and outcomes. Nevertheless, current statement of the problem of informing process, traditions of informing process in Russia in oncology\hematology are still extremely under investigated. By analyzing the literature dedicated to this problem and summarizing own experience of psychological work with children, families and medical stuff at pediatric oncology\hematology, authors of this article share their own reflections about organization and improvement of the quality of the communication and the informing of families and children\adolescents by medical stuff during the treatment. The main complications and ways of optimization of the informing at the different stages of treatment process with allowances made for social and cultural, individual and age specific aspects are discussed.

Keywords: pediatric oncology/hematology, communication skills, informing process, informed consent.

Column: Clinical psychotherapy

For Reference

References
  1. Grinberg L., Sor D., Tabak de B'janchedi Je. Vvedenie v raboty Biona / Moscow: Kogito-Centr, 2007.  Pp. 118–121.
  2. Klipinina N.V.  Nekotorye osobennosti vosprijatija i perezhivanija boli det'mi: vzgljad psihologa. Russkij medicinskij zhurnal. Specvypusk «Mat' i ditja. Pediatrija».  2007.  T.15.  № 1.  Pp. 3–7.
  3. Kudrjavickij A.R., Hain A.E., Klipinina N.V. Obosnovanie kompleksnogo podhoda v rabote psihologicheskoj sluzhby, soprovozhdajushhej lechebnyj process, v detskoj onkologii/gematologii. Voprosy gematologii/onkologii i immunopatologii v pediatrii. 2006. № 5 (3). Pp. 41–48.
  4. Maschan M.A., Klipinina N.V., Kudrjavickij A.R., Hain A.E. Chto vazhno znat' o lejkozah i ih lechenii detjam i ih roditeljam / Metodicheskoe posobie dlja roditelej i detej, stradajushhih lejkozom. Moscow, 2011.
  5. Semenova N.D. Balintovskie gruppy dlja vrachej, rabotajushhih s umirajushhimi pacientami. Umiranie i smert': filosofija, psihologija, hospis / Sbornik materialov konferencii "Hospis" kak mezhdisciplinarnoe mediko-social'noe uchrezhdenie: problemy i puti razvitija, 1994. Pp. 1–2. Available at: http://www.doktor.ru/onkos/together/conf2_25.htm
  6. Forman E., et al  Telling the Truth in the Face of Medical Uncertainty and Disagreement // Journal of Pediatric Hematology/Oncology. 1989. № 11(4). Рp. 463–466.
  7. Hovén E, et al.  The Influence of Pediatric Cancer Diagnosis and Illness Complication Factor on Parental Distress // Journal of  Pediatric Hematology/Oncology. 2008. № 30(11). Рp. 807–814.
  8. Kadan-Lottick N.S., et al.  Childhood Cancer Survivors’ Knowledge About Their Past Diagnoses and Treatment // Journal of American Medical Association. 2002. Vol. 287.  № 14. Рp. 1832–1839.
  9. Kazak A.E. Evidence-Based Interventions for Survivors of Childhood Cancer and Their Families // Journal of  Pediatric Psychology. 2005. № 30 (1). Рp. 29–39.
  10.  Kurst M. J., et al.  Clinical Trials in Pediatric Cancer: Parental Perspectives on Informed Concern  // Journal of Pediatric Hematology/Oncology. 2003.  № 25 (10).  Рp. 787–790.
  11.  L.von Esse, Enskar K., Skolin I. Important aspects of care and assistance for parents of children, 0-18 years of age, on or treatment for cancer. Parent and nurse perceptions’ // European Journal of Oncology Nursing. № 5 (4). Pp. 254–264.
  12.  Lahteenmaki P., et al.  Opinions on Childhood Cancer Care and Degree of Agreement Between Patient/Mother and Mother/Father Pairs // Journal of Pediatric Hematology/Oncology. 2008. № 30 (1).  Pp. 39–45.
  13.  Landier W., Bhatia S.  Cancer Survivorship: A Pediatric Perspective // The Oncologist. 2008. № 13. Pp. 1181–1192.
  14.  Lansky Sh. B., et al.  Psychological correlates of compliance // Journal of Pediatric Hematology/Oncology. 1983.  № 5 (1). Pp. 87–92.
  15.  Leslie S. K., Shemesh E. Pediatric palliative caredepression and anxiety in children at the end of life // Pediatric clinics of North America. 2007. Vol. 54. Issue 5. Pp. 691–708.
  16.  Mack J.W., et al. Understanding of Prognosis Among Parents of Children With Cancer: Parental Optimism and Parent-Physician Interaction // Journal of Clinical Oncology. 2007. № 25. Pp. 1357–1362.
  17.  Masera G., et al. Audio taping Communication of the Diagnosis of Childhood Leukemia: Parents’ Evaluation  // Journal of Pediatric Hematology/Oncology. 2003. № 25 (5). Pp. 368–371.
  18.  Parsons S.K., et al.  Telling children and adolescents about their cancer diagnosis: Cross-cultural comparison between pediatric oncologist in the US and Japan // Psycho-Oncology. 2007. № 16. Pp. 60–68.
  19.  Petenaude A.F., Kupst M.J.  Psychosocial Functioning in Pediatric Cancer // Journal of Pediatric Psychology. 2005.  № 30 (1). Pp. 9–27.
  20.  Roth M., et al. Pediatric Oncologists’ Views Toward the Use of Complementary and Alternative Medicine in Children With Cancer // Journal of  Pediatric Hematology/Oncology. 2009. № 31(3). Pp. 177–182.
  21.  Rowland J.H. Foreword: Looking Beyond Cure: Pediatric Cancer as a Model // Journal of Pediatric Psychology. 2005. № 30 (1). Pp. 1–3.
  22.  Runeson I., Martenson E., Enskar K. Children’s knowledge and degree of participation in dicision making when undergoing a clinical diagnostic procedure // Pediatric Nursing. 2007. № 33 (6). Pp. 505–511.
  23.  Simpson M., Buckman R., et al  Doctor-patient communication: the Toronto consensus statement // BMJ. 1991. Vol. 303, № 30. Pp. 1385–1387.

 

comments powered by Disqus
 
About PsyJournals.ruLaureate of the XIV National psychological contest «Golden Psyche» at the results of 2012

© 1997–2019 Portal of Russian Psychological Publications. All rights reserved

PsyJournals.ru in Russian

Publisher: Moscow State University of Psychology and Education

Catalogue of academic journals in psychology & education MSUPE

RSS Psyjournals at facebook Psyjournals at Twitter Psyjournals at Youtube Яндекс.Метрика