Skip to Main Content

Autism and Developmental Disorders
2022. Vol. 20, no. 3, 15–25
doi:10.17759/autdd.2022200302
ISSN: 1994-1617 / 2413-4317 (online)

Problems and Perspectives in the Evidence-Based Approach Implementation in the ASD Support Regional Resource Centers

100

U.A. Mamokhina, D.S. Pereverzeva, S.A. Tyushkevich, A.V. Khaustov, E.Y. Davydova

PDF (RUS)
Online translation in english
GS
Information
in Google Scholar

Abstract

The article presents the analysis of support services provided in RRCs (Regional Resource Centers for Supporting Individuals with Autism Spectrum Disorders). The authors provide 4 main principles of supporting services organization for individuals for autism spectrum disorders (ASD): integrative and multi-disciplinary approach, the use of the evidence- based practices, early start of interventions, continuity of assistance throughout life. Based on the monitoring results, the problem of the availability of standardized diagnostic methods, designed both to identify ASD and to provide the develop- mental assessment, was revealed. The use of the evidence-based interventions was reported in the majority of RRCs (75%), but their diversity is limited (in most cases, applied behavioral analysis interventions, sensory integration and alternative communication are used). In addition, well-established interventions are often used, however, they do not have sufficient scientific data to evaluate their efficiency. Individuals of different age groups have unequal access to interventions provided by RRCs: most RRCs work with children of preschool and primary school age. According to our results, psychological and educational professionals are most frequently represented in the RRCs. Medical specialists collaborate with less than a half of the RRCs, which may hinder interdisciplinary interaction in the support services for individuals with ASD.

General Information

Keywords: autism spectrum disorders (ASD), regional resource center (RRCs), support system, monitoring, evi- dence-based practice

Journal rubric: Expert opinion

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2022200302

Funding. The research was carried out within the state assignment of the Ministry of Education of the Russian Federation (theme No. 073-00110-22-02, 08.04.2022) «Comprehensive support for children with ASD based on evidence-based approach»

Received: 07.09.2022

Accepted:

For citation: Mamokhina U.A., Pereverzeva D.S., Tyushkevich S.A., Khaustov A.V., Davydova E.Y. Problems and Perspectives in the Evidence-Based Approach Implementation in the ASD Support Regional Resource Centers. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2022. Vol. 20, no. 3, pp. 15–25. DOI: 10.17759/autdd.2022200302. (In Russ., аbstr. in Engl.)

References

  1. Lord C., Rutter M., DiLavore P.C. et al. ADOS-2: Plan diagnosticheskogo obsledovaniya pri autizme, 2-ya versiya: Rukovodstvo [Autism Diagnostic Observation Schedule, 2nd version: Guide]. [Moscow]: Publ. Western Psychological Services: Giunti Psychometrics, 2016. 446 p.
  2. Mayes S.D. CASD: Oprosnik rasstroistv autisticheskogo spectra [Checklist for Autism Spectrum Disorder] / Transl. by E. Litvinenko. [Moscow]: Publ. Western Psychological Services: Giunti Psychometrics, 2015. 47 p.
  3. Organizatsiya deyatel’nosti regional’nogo resursnogo tsentra po organizatsii kompleksnogo soprovozhdeniya detei s rasstroistvami autisticheskogo spektra: Metodicheskie rekomendatsii [Organization of a regional resource center’s activity in providing comprehensive support for autistic children: Guidelines] / Federal resource center of the Moscow State University of Psychology and Education. Moscow, 2017. 11 p.
  4. Rasstroistva autisticheskogo spektra: Klinicheskie rekomendatsii [Autism spectrum disorders: Clinical recommendations] / Assotsiatsiya psikhiatrov i psikhologov za nauchno obosnovannuyu praktiku [Association of psychiatrists and psychologists for science-based practice]. Moscow, 2020. 80 p.
  5. Rutter M., Bailey E., Lord C. SCQ: Sotsial’no-kommunikativnyi oprosnik: rukovodstvo [Social Communication Questionnaire: Guide]. [Moscow]: Publ. Western Psychological Services: Giunti Psychometrics, 2014. 40 p.
  6. Rutter M., Le Couteur A., Lord C. ADI-R: Interv’yu dlya diagnostiki autizma: rukovodstvo [Autism Diagnostic Interview- Revised: Guide] / Transl. under the ed. of. A. Sorokin. [Moscow]: Publ. Western Psychological Services: Giunti Psychometrics, 2014. 122 p. ISBN 978-5-89357-325-1.
  7. Roid G.H., Miller L.J., Pomplun M. et al. Leiter-3: Mezhdunarodnye shkaly produktivnosti: Rukovodstvo [Leiter International Performance Scale: Guide]. [Moscow]: Publ. Western Psychological Services: Giunti Psychometrics, 2019. 509 p.
  8. Roid G.H., Sampers J. Shkaly razvitiya Merrill-Palmer-Revised: Rukovodstvo [Merrill-Palmer-Revised Scales of Development: Guide]. Moscow: Publ. Giunti Psychometrics, 2022. 268 p.
  9. Sundberg M. Rukovodstvo: Programma otsenki navykov rechi i sotsial’nogo vzaimodeistviya dlya detei s autizmom i drugimi narusheniyami razvitiya [Guide: Program for evaluating speech and social interaction of children with autism and other developmental disorders] / transl. by S. Dolenko. Rishon leZion: Publ. MEDIAL, 2008. 275 p.
  10. Semenovich M.L., Manelis N.G., Khaustov A.V. et al. Opisanie metodiki otsenki bazovykh rechevykh i uchebnykh navykov (ABLLS-R) [Assessment of Basic Skills of Children of a Preschool Age with Autism Spectrum Disorder Using the VB- MAPP]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2015, vol. 13, no. 3, pp. 3—10. DOI:10.17759/autdd.2015130301
  11. Sorokin A.B., Zotova M.A., Korovina N.Yu. Skriningovye metody dlya vyyavleniya tselevoi gruppy “spektr autizma” pedagogami i psikhologami [Screening Methods for Identification of the Target Group “Autism Spectrum” For Special Education Teachers and Psychologists]. Psikhologicheskaya nauka i obrazovanie [Psychological Science and Education], 2016, vol. 21, no. 3, pp. 7—15. DOI:10.17759/pse.2016210302
  12. Sorokin A.B., Davydova E.Yu., Samarina L.V. et al. Standartizirovannye metody diagnostiki autizma: opyt ispol’zovaniya ADOS-2 i ADI-R [Standardized Diagnostic Instruments for Autism Spectrum Disorders: the Use of ADOS-2 and ADI-R]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2021, vol. 19, no. 1, pp. 12—24. DOI:10.17759/autdd.2021190102
  13. Filimonenko Yu.I., Timofeev V.I. Test Vekslera: Diagnostika struktury intellekta (detskii variant): Metodicheskoe rukovodstvo [Wechsler Intelligence Scale for Children: Guidelines]. Saint Petersburg: Publ. Imaton, 2016. 106 p. ISBN 978-5-7822-0065-7.
  14. Khaustov A.V., Shumskikh M.A. Dinamika v razvitii sistemy obrazovaniya detei s rasstroistvami autisticheskogo spektra v Rossii: rezul’taty Vserossiiskogo monitoringa 2020 goda [Dynamic Changes in the Development of the Educational System of Children with Autism Spectrum Disorders in Russia: Results of the 2020 All-Russian Monitoring]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2021, vol. 19, no. 1, pp. 4—11. DOI:10.17759/ autdd.2021190101
  15. Schopler E., Lansing M.D., Reichler R.J. et al. Psikhologo-pedagogicheskii profil’ [PEP-3]: Individual’noe psikhologo- pedagogicheskoe obsledovanie dlya detei s rasstroistvami autisticheskogo spektra [Psychoeducational Profile: Individual psychoeducational assessment for autistic children] / Morozov S.A. (ed.). Perm’: Publ. Society for helping autistic children “Dobro”, 2008. 115 p.
  16. Bowman K.S., Suarez V.D., Weiss M.J. Standards for Interprofessional Collaboration in the Treatment of Individuals With Autism. Behavior Analysis in Practice, 2021, vol. 14, no. 4, pp. 1191—1208. DOI:10.1007/s40617-021-00560-0
  17. Grzadzinski R., Amso D., Landa R. et al. Pre-symptomatic intervention for autism spectrum disorder (ASD): defining a research agenda. Journal of Neurodevelopmental Disorders, 2021, vol. 13, no. 1, article no. 49. 23 p. DOI:10.1186/s11689- 021-09393-y
  18. Hume K., Steinbrenner J.R., Odom S.L. et al. Evidence-Based Practices for Children, Youth, and Young Adults with Autism: Third Generation Review. Journal of Autism and Developmental Disorders, 2021, vol. 51, no. 11, pp. 4013—4032. DOI:10.1007/s10803-020-04844-2
  19. Mercer J. Holding therapy: a harmful mental health intervention. Focus on Alternative and Complementary Therapies, 2013, vol. 18, no. 2, pp. 70—76. DOI:10.1111/fct.12024
  20. Micai M., Ciaramella A., Salvitti T. et al. Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences. Journal of Autism and Developmental Disorders, 2022, vol. 52, no. 4, pp. 1623— 1639. DOI:10.1007/s10803-021-05038-0
  21. Robins D.L., Fein D., Barton M.L. et al. The Modified Checklist for Autism in Toddlers: an initial study investigating the early detection of autism and pervasive developmental disorders. Journal of Autism and Developmental Disorders, 2001, vol. 31, no. 2, pp. 131—144. DOI:10.1023/a:1010738829569
  22. Strunk J., Leisen M., Schubert C. Using a multidisciplinary approach with children diagnosed with autism spectrum disorder. Journal of Interprofessional Education & Practice, 2017, vol. 8, pp. 60—68. DOI:10.1016/j.xjep.2017.03.009
  23. Towle P.O., Patrick P.A., Ridgard T. et al. Is Earlier Better? The Relationship between Age When Starting Early Intervention and Outcomes for Children with Autism Spectrum Disorder: A Selective Review. Autism Research and Treatment, 2020, vol. 2020, artlcle no. 7605876. 17 p. DOI:10.1155/2020/7605876
  24. Whitehouse A.J.O., Varcin K.J., Pillar S. et al. Effect of Preemptive Intervention on Developmental Outcomes Among Infants Showing Early Signs of Autism. JAMA Pediatrics, 2021, vol. 175, no. 11, article no. e213298. 11 p. DOI:10.1001/ jamapediatrics.2021.3298

Information About the Authors

Ulyana A. Mamokhina, Junior Researcher of the scientific laboratory of the Federal Resource Center for the Organization of Comprehensive Support to Children with ASD, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0000-0003-2738-7201, e-mail: uliana.mamokhina@gmail.com

Darya S. Pereverzeva, PhD in Psychology, Senior Researcher of the Federal Resource Center for Organization of Comprehensive Support to Children with Autism Spectrum Disorders, Moscow State University of Psychology and Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-6881-3337, e-mail: dasha.pereverzeva@gmail.com

Svetlana A. Tyushkevich, PhD in Psychology, Senior Researcher of the scientific laboratory of the Federal Resource Center for Organization of Comprehensive Support to Children with ASD, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-9029-2830, e-mail: tyushkevichsv@yandex.ru

Arthur V. Khaustov, PhD in Education, Director of the Federal Resources Center for Children with Autism Spectrum Disorders, Moscow State University of Psychology and Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-9634-9295, e-mail: arch2@mail.ru

Elizaveta Y. Davydova, PhD in Biology, Associate Professor, Leading Researcher, Federal Resource Center for Organization of Comprehensive Support to Children with Autism Spectrum Disorders, Associate Professor of the Department of Differential Psychology and Psychophysiology Faculty of “Clinical and Special Psychology”, Moscow State University of Psychology and Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-5192-5535, e-mail: el-davydova@mail.ru

Metrics

Views

Total: 538
Previous month: 25
Current month: 15

Downloads

Total: 100
Previous month: 2
Current month: 2