The influence of political, cultural and religious aspects on the perception of autism in children by parents from Southeast Asian countries

109

Abstract

The article includes a literature review of scientific papers devoted to the study of political, cultural and religious aspects that influence the psychological state of parents raising children diagnosed with Autistic Spectrum Disorder, and published in Southeast Asian countries (India, Indonesia, China, Malaysia, Taiwan, South Korea). The author provides statistical data on the spread of ASD among the child population of these countries; highlights the stages of adoption of a “special” child by parents; presents the features of their emotional and personal sphere; examples of compensatory resources used by parents and existing programs for providing them with psychological assistance are given.

General Information

Keywords: autism, family, parents, stages of acceptance, cultural and religious aspects, compensatory resources, Southeast Asia

Journal rubric: Medical Psychology

Article type: review article

DOI: https://doi.org/10.17759/jmfp.2022110111

For citation: Kukanov A.A. The influence of political, cultural and religious aspects on the perception of autism in children by parents from Southeast Asian countries [Elektronnyi resurs]. Sovremennaia zarubezhnaia psikhologiia = Journal of Modern Foreign Psychology, 2022. Vol. 11, no. 1, pp. 116–123. DOI: 10.17759/jmfp.2022110111. (In Russ., аbstr. in Engl.)

References

  1. Kukanov A.A. Vliyanie kul'turnykh i religioznykh aspektov na vospriyatie autizma u detei roditelyami v stranakh Afriki i Blizhnego Vostoka [Influence of cultural and religious aspects on the perception of autism in children by parents in Africa and the Middle East]. Sovremennaia zarubezhnaia psikhologiia = Journal of Modern Foreign Psychology, 2021. Vol. 10, no. 2, pp. 20—26. DOI:10.17759/jmfp.2021100202 (In Russ.)
  2. Kukanov A.A. Osobennosti tsennostno-motivatsionnoi sfery roditelei detei s razlichnymi otkloneniyami v razvitii: dis. ... kand. psikhol. Nauk [Features of the value-motivational sphere of parents of children with various developmental disabilities: dis. ... candidate of Psychological sciences] [Elektronnyi resurs]. Sankt-Peterburg, 2019. 392 p. URL: https://disser.spbu.ru/files/2019/disser_kukanov.pdf. (дата обращения: 02.03.2022). (In Russ.).
  3. Kukanov A.A., Fantalova E.B. Motivatsionno-lichnostnaya sfera materei, imeyushchikh detei s autizmom: Severnaya Amerika i Zapadnaya Evropa [Motivational and personal sphere of mothers with children with autism: North America and Western Europe]. Psikhologicheskaya nauka i obrazovanie = Psychological science and education, 2016. Vol. 8, no. 1, pp. 128—136. DOI:10.17759/psyedu.2016080112 (In Russ.).
  4. Chen L.S., Li C., Wang C.H., Amuta A., Li M., Huang T.Y., Dhar S.U., Talwar D., Jung E. Autism spectrum disorders: Perceptions of genetic etiology and recurrence risk among Taiwanese parents of affected children. Clinical Genetics, 2015. Vol. 88, no. 2, pp. 129—134. DOI:10.1111/cge.12514
  5. Desaj M.U., Divan G., Wertz F.J., Patel V. The discovery of autism: Indian parents' experiences of caring for their child with an autism spectrum disorder // Transcultural Psychiatry, 2012. Vol. 49, № 3—4, pp. 613—637. DOI:10.1177/1363461512447139
  6. Eow S.Y., Gan W.Y., Lim P.Y., Awang H., Shariff Z.M. Factors associated with autism severity among Malaysian children with Autism Spectrum Disorder. Research in Developmental Disabilities, 2020. Vol. 100, article ID 103632. 11 p. DOI:10.1016/j.ridd.2020.103632
  7. Foo M., Eng Hui Yap P.M., Sung M. The experience of Singaporean caregivers with a child diagnosed with autism spectrum disorder and challenging behaviours. Qualitative Social Work, 2015. Vol. 14, no. 5, pp. 634—650. DOI:10.1177/1473325014558662
  8. Hobart H.M. Autism and family in the people's Republic of China: learning from parents' perspectives. Research and Practice for Persons with Severe Disabilities, 2008. Vol. 33, pp. 37—47. DOI:10.2511/rpsd.33.1-2.37
  9. Lee J.K., Chiang H. Parenting stress in South Korean mothers of adolescent children with autism spectrum disorder. International Journal of Developmental Disabilities, 2018. Vol. 64, no. 2; pp. 120—127. DOI:10.1080/20473869.2017.127 9843
  10. Lin L. Coping strategies, caregiving burden, and depressive symptoms of Taiwanese mothers of adolescents with autism spectrum disorder. Research in Autism Spectrum Disorders, 2015. Vol. 15—16, pp. 1—9. DOI:10.1016/j.rasd.2015.04.002
  11. Luong J., Yoder M.K., Canham D. Southeast Asian parents raising a child with autism: a qualitative investigation of coping styles. The Journal of School Nursing, 2009. Vol. 25, no. 3, pp. 222—229. DOI:10.1177/1059840509334365
  12. Moh T. A., Magiati I. Factors associated with parental stress and satisfaction during the process of diagnosis of children with Autism Spectrum Disorders. Research in Autism Spectrum Disorders, 2012. Vol. 6, no. 1, pp. 293—303. DOI:10.1016/j. rasd.2011.05.011
  13. Brezis R.S., Weisner T.S., Daley T.C., Singhal N., Barua M., Chollera S.P. Parenting a child with Autism in India: narratives before and after a parent—child intervention program [Elektronnyi resurs]. Culture, Medicine, and Psychiatry, 2015. Vol. 39, pp. 277 —298. URL: https://link.springer.com/article/10.1007/s11013-015-9434-y (Accessed 02.03.2022).
  14. Hou Y.M., Stewart L., Iao S.L., Wu C.C. Parenting stress and depressive symptoms in Taiwanese mothers of young children with autism spectrum disorder: Association with children's behavioral problems. Journal of Applied Research in Intellectual Disabilities, 2018. Vol. 31, no. 4, pp. 1113—1121. DOI:10.1111/jar.12471
  15. Patra S., Patro B.K. Affiliate stigma among parents of children with autism in eastern India. Asian Journal of Psychiatry, 2019. Vol. 44, pp. 45—47. DOI:10.1016/j.ajp.2019.07.018
  16. Zhang W., Yan T.T., Barriball K.L., While A.E., Liu X.H. Post-traumatic growth in mothers of children with autism: A phenomenological study. Autism, 2015. Vol. 19, no. 1, pp. 29—73. DOI:10.1177/1362361313509732
  17. Hoang V.M., Le T.V., Chu T.T.Q., Le B.N., Duong M.D., Thanh N.M., Pham V.T., Minas H., Bui T.T.H. Prevalence of autism spectrum disorders and their relation to selected socio-demographic factors among children aged 18—30 months in northern Vietnam, 2017. International journal of mental health systems, 2019. Vol. 13, no. 29, pp. 1—9. DOI:10.1186/ s13033-019-0285-8
  18. Riany Y.E., Cuskelly M., Meredith P. Cultural beliefs about autism in Indonesia. International Journal of Disability, Development and Education, 2016. Vol. 63, no. 6, pp. 623—640. DOI:10.1080/1034912X.2016.1142069
  19. Ilias K., Cornish K., Park M.S.A., Toran H., Jennifer K. Risk and resilience among mothers and fathers of primary school age children with ASD in Malaysia: a qualitative constructive grounded theory approach. Frontiers in Psychology, 2019. Article ID. 2275. 20 p. DOI:10.3389/fpsyg.2018.02275
  20. Sato N., Araki A., Ito R., Ishigaki K. Exploring the beliefs of Japanese mothers caring for a child with disabilities. Journal of family nursing, 2015. Vol. 21, no. 2, pp. 232—260. DOI:10.1177/1074840715586551
  21. Lu M., Yang G., Skora E., Wang G., Cai Y., Sun Q., Li W. Self-esteem, social support, and life satisfaction in Chinese parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 2015. Vol. 17, pp. 70—77. DOI:10.1016/j.rasd.2015.05.003
  22. Shing C.K. K., Bun Lam C. Self-stigma among parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 2018. Vol. 48, pp. 44—52. DOI:10.1016/j.rasd.2018.01.001
  23. Shu B. Quality of life of family caregivers of children with autism. The mother's perspective. Autism, 2009. Vol. 13, no. 1, pp. 81—91. DOI:10.1177/1362361307098517
  24. Ilias K., Liaw J.H.J., Cornish K., Park M.S.A., Golden K.J. Wellbeing of mothers of children with “A-U-T-I-S-M” in Malaysia: an interpretative phenomenological analysis study. Journal of Intellectual & Developmental Disability, 2017. Vol. 42, pp. 74—89. DOI:10.3109/13668250.2016.1196657
  25. Sitimin S.A., Fikry A., Ismail Z., Hussein N. Work-family Conflict among Working Parents of Children with Autism in Malaysia. Procedia Computer Science, 2017. Vol. 105, pp. 345—352. DOI:10.1016/j.procs.2017.01.232
  26. Xiaoli L., Xianyang L., Yamin L. Stigma among parents of children with autism: A literature review. Asian journal of psychiatry, 2019. Vol. 45, pp. 88—94. DOI:10.1016/j.ajp.2019.09.007

Information About the Authors

Andrey A. Kukanov, PhD in Psychology, Medical psychologist, Scientific-practical Children's and Adolescents Mental Health Center n.a. G. Sukhareva, Moscow Department of Health Care, Moscow, Russia, ORCID: https://orcid.org/0000-0001-7507-7545, e-mail: andrej.kukanov@mail.ru

Metrics

Views

Total: 572
Previous month: 28
Current month: 8

Downloads

Total: 109
Previous month: 1
Current month: 2