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Parental Attitude to Upbringing the Child with Chronic Somatic Disease (Based on Juvenile Rheumatoid Arthritis) 1285
Buslaeva A., Researcher, Scientific Center of Children Health, Russian Ministry of Health, Moscow, Russia, email@example.com
The article describes a study of upbringing attitudes of 30 mothers of children and adolescents aged 7–16 years old suffering from severe chronic disease – juvenile rheumatoid arthritis. Modified method of A.A. Shvedovskaya "Parent's essay" in the form of unfinished sentences was used. Content-analysis identified three variants of the upbringing attitudes of mothers. The most supportive, person-focused attitude manifested in 13.3% of mothers. Training-focused attitude was revealed in 33.3% of mothers; it leads to the neglect of physical and psychological difficulties of the child caused by the disease. Treatment-focused attitude, which leads to an underestimation of the psychological needs of the child and his or her mental development objectives, was observed in 50% of mothers. Results of the "Parent's essays" were compared with the data of interaction observation of mothers with children during their stay in hospital. As a result of observation, in one mother "distant" attitude was detected. The article discusses the impact of suboptimal parental attitudes on the psychological state and personality development of a chronically ill child. The obtained data allow to determine the direction of the consultative psychological care to facilitate the harmonization of parental upbringing attitudes.
Keywords: parents of chronically ill children, juvenile rheumatoid arthritis, upbringing attitudes, person-focused attitude, attitude toward training, attitude toward treatment, "distant" attitude
Column: Empirical research