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Clinical Psychology and Special Education

Publisher: Moscow State University of Psychology and Education

ISSN (online): 2304-0394

DOI: https://doi.org/10.17759/cpse

License: CC BY-NC 4.0

Started in 2012

Published quarterly

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The Dynamics of the Quality of Life of Mothers Bringing up Children with Cerebral Palsy 125

Pevneva A.
PhD in Psychology, Professor of the Department of Social and Pedagogical Psychology, Francisk Skorina Gomel State University, Gomel, Belarus
e-mail: pevneva.angela@rambler.ru

Abstract
In studies of psychological problems of mothers bringing up children with cerebral palsy, the least explored is the problem of the quality of life. The knowledge of the structural and dynamic characteristics of the quality of life may give an answer to a number of methodological and theoretical issues on the change in the quality of life over time, its structural hierarchy and organization, structure sustainability/unsustainability and core elements. The aim of present study was to identify the dynamics of the quality of life of the mother of a child with cerebral palsy. 66 mothers raising a child with cerebral palsy have been surveyed; 48 respondents participated in a repeated measurement. The outcome of the study is the proof that the quality of life is not stable, it depends on the situation and is reproduced in the context of the situation. The dynamics of the quality of life of the mother of a child with cerebral palsy is characterized by difference in indicators of all structural components with the tendency to change positively, constancy of dominant position of physical functioning, structural transformation of the organization, its flexibility, as well as change of the structural core element.

Keywords: dynamics, structure, quality of life, cerebral palsy

Column: Empirical research

DOI: https://doi.org/10.17759/cpse.2019080404

For Reference

References
  1. Avdeeva N.N. Vzaimodejstvie materi i rebenka rannego vozrasta s zaderzhkoj rechevogo razvitiya [The interaction of a mother and a young child with delayed speech development]. Psihologicheskaya nauka i obrazovanie [Psychological Science and Education], 2019, no. 2, pp. 19–28. (In Russ.; abstr. in Engl.)
  2. Anan'ev B.G. Izbrannye trudy po psihologii: V 2 t. T. 1. [Selected works on Psychology], Saint-Petersburg: Publ. of SPU, 2007. 409 p.
  3. Vinnikova, Е.A. Principy i tekhnologii vzaimodejstviya s sem'ej rebenka s osobennostyami psihofizicheskogo razvitiya [Principles and methods of interaction with the family of a child with psychological and physical development peculiarities]. Specyyal'naya adukacyya [Specialized Education], 2010, no. 6, pp. 24–29. (In Russ.; abstr. in Engl.)
  4. Volovikova M.I., Dzhidar'yan I.A. Itogi issledovanij psihologicheskogo zdorov'ya v laboratorii psihologii lichnosti [The results of the research of psychological health in the laboratory of personality psychology] Psihologicheskij zhurnal [Psychological Journal], 2017, no. 2, pp. 19–31. (In Russ.; abstr. in Engl.)
  5. Guslova M.N., Sture T.K. Psihologicheskoe izuchenie materej, vospityvayushchih detej-invalidov [Psychological study of mothers raising children with disabilities]. Defektologiya [Defectology], 2003, no. 6, pp. 28–32. (In Russ.; abstr. in Engl.)
  6. Isaev D.N. Umstvennaya otstalost' detej i podrostkov [Mental retardation of children and adolescents]. Saint-Petersburg: Rech., 2002. 389 p. (In Russ.).
  7. Karpov A.V., Karpov A.V., Markova E.V. Psihologiya prinyatiya resheniya v upravlencheskoj deyatel'nosti [Decision psychology in management].  Мoscow: Izd. Dom RАО, 2016. 644 р. (In Russ.).
  8. Levchik T.P. Osobennosti roditel'skogo otnosheniya v sem'yah, vospityvayushchih detej s normal'nym i narushennym razvitiem [Features of parental relations in families raising children with normal and impaired development]. Psihologicheskij zhurnal [Psychological Journal], 2011, no. 3/4. pp. 29-33. (In Russ.; abstr. in Engl.).
  9. Majramyan R.F. Sem'ya i umstvenno otstalyj rebenok: psihopatologicheskie i psihologicheskie aspekty problem. Avtoref. diss. kand. med. Nauk [Family and a mentally retarded child: mental and psychological aspects of the problem. PhD. (Medicine) Thesis]. Moscow, 1976. 24 p. (In Russ.).
  10. Nikitina T.P., Moiseenko E.I., Zaeva G.E., et al. Izuchenie kachestva zhizni roditelej detej, bol'nyh onkologicheskimi zabolevaniyami [Study of the quality of life of parents of children suffering from cancer]. Vestnik mezhnacional'nogo centra issledovaniya kachestva zhizni [Bulletin of the International Research Center of the Quality of Life], 2005, no. 5/6,
    pp. 88–96. (In Russ.; abstr. in Engl.)
  11. Novik A.A., Ionova T.I., Gandek B., et al. Pokazateli kachestva zhizni naseleniya Sankt-Peterburga [Quality of life indicators for St. Petersburg citizens или Citizens of
    St. Petersburg]. Problemy standartizacii v zdravoohranenii [Health care standardization problems], 2001, no. 4, pp. 22–31. (In Russ.).
  12. Pevneva A.N. Kachestvo zhizni, psihicheskoe sostoyanie i smyslozhiznennye orientacii materej, deti kotoryh stradayut cerebral'nym paralichom [Quality of life, mental state and life values of the mothers whose children suffer cerebral palsy]. Psihiatriya, psihoterapiya i klinicheskaya psihologiya [Psychiatry, Psychotherapy and Clinical Psychology], 2011, no. 3, pp. 66–74. (In Russ.; abstr. in Engl.)
  13. Surmach M.Yu. Kachestvo zhizni podrostkov Respubliki Belarus': svyaz' so zdorov'em [The quality of life of adolescents in the Republic of Belarus: health connections], Grodno: State Medical University, 2013. 228 p. (In Russ.).
  14. Tkacheva V.V. Psihologicheskie osobennosti roditelej, imeyushchih detej s detskim cerebral'nym paralichom [Psychological characteristics of parents having children with cerebral palsy]. Special'naya psihologiya [Special Psychology], 2009, no. 1, pp. 53–62. (In Russ.; abstr. in Engl.).
  15. Charova O.B., Savina E.A. Osobennosti materinskogo otnosheniya k rebenku s intellektual'nym nedorazvitiem [Features of maternal attitude to children with intellectual underdevelopment]. Defektologiya [Defectology], 1999, no. 5, pp. 34–39. (In Russ.).
  16. Barog Z.S., Younesi S.J., Sedaghati A.H., et al. Efficacy of Mindfulness-Based Cognitive Therapy on Quality of Life of Mothers of Children with Cerebral Palsy. Iran Journal of Psychiatry, 2015, vol. 10, no. 2, pp. 86–92.
  17. Marrón E., Redolar-Ripoll D., Boixadós M., et al. Burden on caregivers of children with cerebral palsy: predictors and related factors. Universitas Psychologica, 2013, vol. 12, no. 3, pp. 767–777.
  18. Okurowska-Zawada В., Kułak W., Wojtkowski J., et al. Quality of life of parents of children with cerebral palsy. Progress in Health Sciences, 2011, vol. 1, no. 1, pp. 116–123.
  19. Ones K., Yilmaz E., Cetinkaya, B., et al. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). Neurorehabil Neural Repair, 2005,
    vol. 19, no. 3, pp. 232–237.
  20. Ware J.E.,   Kosinski M., Gandek B. SF-36 health survey: manual and interpretation guide. Boston: Health Inst., 1993. Vol. 316 р.
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