Sociocultural Integration of Adults with Autism in the “12MM!” Project.

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Abstract

The problem of socialization of people with autism spectrum disorders (ASD) is paid more and more attention. The suggested “12MM!” project resolves a lot of issues with social integration and cultural development of young people and adults with ASD. The aim of “12MM!” project is organizing group visits to museums and other cultural institutions (theaters, exhibitions, excursions etc.) by adults with ASD and participation in inclusive environment implementation in cultural institutions. Its key feature is participation of adults with ASD in events for organizing an accessible environment in cultural institutions. With participation of autistic experts of the project sensory audit of 12 museum was conducted and more than 30 lectures, seminars and other events for museum staff was organized. They also took participation in the development of guidelines. Such approach is innovative and agrees with the social model of disability and “nothing about us with us” principle. The results of almost three years of the project work are reflected in the project participants’ query. It showed that they are interested by events themselves and by the possibility of communication with other people including ones with ASD. They are also attracted by friendly guides and accessibility of excursions language. Majority of participants estimated inclusivity of museums environments as acceptable. Among possible means of improving accessibility participants pointed at training of guides and other museum staff, making navigational histories (detailed description of routes to museums) and sensory safety maps.

General Information

Keywords: autism, autism spectrum disorders (ASD), adults with ASD, museums, sociocultural inclusion, integration, Asperger’s syndrome

Journal rubric: Sociocultural Integration & Sports

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2022200205

Received: 28.01.2022

Accepted:

For citation: Steinberg A.S., Voskov A.L., Klevtsova E.M. Sociocultural Integration of Adults with Autism in the “12MM!” Project.. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2022. Vol. 20, no. 2, pp. 36–42. DOI: 10.17759/autdd.2022200205. (In Russ., аbstr. in Engl.)

References

  1. Anoshin D., Portnova S., Yarzhambek D. et al. Friendly museum. Guide for museums directors on accessible environment for cultural events for children and adults with autism and mental disabilities [Druzhelubnyi muzei. Rukovodstvo dlya direktorov muzeev po sozdaniyu dostupnoi sredi v ramkakh kulturnykh sobytii dlya detei i vzroslykh s autizmom i mentalnymi rasstroisvami] “Vykhod” foundation, 2016 https://outfund.ru/wp-content/uploads/2016/10/prev_Muzei.pdf (in Russ.) (Accessed 27.01.2022).
  2. Bogorad P., Kiseleva P., Steinberg A. et al. Perechen kontrolnykh voprosov i recomendatsyi (chek-list) po obepecheniyu dostupnosti muzeya dlya posetiteley s mentalnymi osobennostyami [Control questions and recommendations checklist for providing accessibility of museum for persons with mental disabilities]. Moscow, 2020. https://clck.ru/Snh8m (Accessed 27.01.2022).
  3. Davydova E.Yu., Khilkevich E.V., Khaustov А.V. et al. Inclusive environment for working with children with ASD organization problems in different types of museums [Problemy organizatsii inkluzivnoi sredy dlya raboty s det’mi s RAS v muzeyakh razlichnogo profilya] // Counseling Psychology and Psychotherapy. 2021. Vol. 29, no. 4, pp. 95—110. 10.17759/cpp.2021290406
  4. Kalashnikova I.V., Trinadtsatko A.A. Evolution of Social Models of Disability [Evolutsya socyal’nykh modeley invalidnosti] // Vestnik TOGU. 2017. Vol. 6, no. 3, pp. 277—288 (In Russ.).
  5. Stepanov V.S. Visitors with ASD in the museum: five steps to inclusion [Posetitely s RAS v muzee: pyat’ shagov k inkluzii] // Autism and Developmental Disorders. 2017. Vol. 15, no. 4, pp. 53—56. DOI: 10.17759/autdd.2017150408
  6. Sukhareva G.E. Shizoidnye psikhopatyi v detskom vozraste [Schizoid personality disorders of childhood] // Voprosi pedologii i detskoi psikhonevrologii. 1925, Vol. 2, pp. 157—187 (in Russ.).
  7. Cherkasova N., Bogorad P., Steinberg A. et al. Recomendacii po organizacii i provedeniyu zanatyi v muzee dlya ludei s mentalnymi osobennostyami [Recommendations about organization and leading museum activities for people with mental disabilities]. ANO “Koleso Obozreniya”. Available at: https://kolesobzora.ru/guides (Accessed 27.01.2022). (In Russ.).
  8. Khilkevich E.V. Extracurricular Activities for Students with ASD and the Efficiency Assessment of the Program «Let’s go to the Museum!» [Vneurochnaya deyatelnost obuchayushiksya s RAS I otsenka effektivnosti ee realizatsii na primere programmy “Idem v muzei”] // Autism and Developmental Disorders. 2021. Vol. 19, no. 4, pp. 62—69. DOI: 10.17759/autdd.2021190407
  9. Khilkevich E., Akhmyatova Yu., Talyzina L. et al. Medodicheskoe posobie “Socialnye istorii i instrumenty vizualnoi podderzhki v muzeyakh [«Social stories and visual support instruments in museums” guide] https://clck.ru/SnhjA (Accessed 27.01.2022). (In Russ.)
  10. Barthélémy J., Bonnave P., Giroux L. et al. FRAMEwork: Guide for Welcoming Museum Visitors With Autism Spectrum Disorder. Available at: https://dma.org/framework-guide-welcoming-museum-visitors-autism-spectrum-disorder (Accessed 27.01.2022).
  11. Greenberg A., Sheri Levinsky-Raskin S. Supporting Transitions: Cultural Connections for Adults with Autism Spectrum Disorders // Journal of Museum Education. 2017. Vol. 42, no. 4, pp. 332—344, DOI: 10.1080/10598650.2017.1376268
  12. Hoskin E., Singh A., Oddy N. et al. Assessing the experience of people with autism at the Canada science and technology museum // CHI EA ’20 Extended Abstract. 2020. LBW236. P. 1—7. DOI: 10.1145/3334480.3382834
  13. Magkafa D., Newbutt N., Palmer M. Implementing Co-Design Practices for the Development of a Museum Interface for Autistic Children. In: Recent Advances in Technologies for Inclusive Well-Being. Intelligent Systems Reference Library, 2021. vol 196. Springer, Cham. DOI: 10.1007/978-3-030-59608-8_22
  14. Miller D., Rees J., Pearson A. “Masking is life”: experiences of masking in autistic and nonautistic adults // Autism in Adulthood. 2021, vol. 3, no. 4, pp. 330—338. DOI: 10.1089/aut.2020.0083
  15. Silberman S. Neurotribes. The legacy of autism and future of neurodiversity. Avery, 2016. 560 p. ISBN 978-0399185618
  16. Varner R. Museums and Visitors with Autism: An Overview of Programs. Thesis. Rochester Institute of Technology. Available at: https://scholarworks.rit.edu/theses/8848/ (Accessed 27.01.2022).
  17. Woodruff A.W. Finding Museum Visitors with Autism Spectrum Disorders: Will Art Help in the Search? // Museum & Society. 2019. Vol. 17, no. 1, pp. 83—97.

Information About the Authors

Antonina S. Steinberg, Autistic City project for Support of People with ASD, Moscow, Russia, ORCID: https://orcid.org/0000-0002-9374-6770, e-mail: support-msk@aspergers.ru

Alexey L. Voskov, PhD in Chemistry, Senior Researcher of the Department of Chemistry, Lomonosov Moscow State University, Moscow, Russia, ORCID: https://orcid.org/0000-0002-9211-5563, e-mail: alvoskov@gmail.com

Elena M. Klevtsova, PhD in Economics, Head of department “Adults”, Regional non-govermemtal organization“Contact”, Moscow, Russia, ORCID: https://orcid.org/0000-0001-6876-4531, e-mail: info@contact-autism.ru

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