Potentials & Conditions of Remote Counselling of the Families of Children with Autism Spectrum Disorders

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Abstract

Remote psychological counseling with the use of telehealth technologies may be considered as one of the types of psychological and educational work with children. Due to the limitations of receiving full-time psychological and educational services, remote counseling may be the only available alternative support form for families of children with autism. This review of the Russian and international literature aims to reveal the general advantages and limitations of remote psycho-educational work and to identify existing protocols for conducting counseling. The data on studies in the field of online work with autistic children are presented. Concluded, that for successful online counseling of families of autistic children, four key conditions are necessary: professional qualities of a consultation provider, taking into account the family environment of the child, the presence of measurable characteristics of the intervention and the possibility of face-to-face interaction with the child.

General Information

Keywords: remote counseling, autism spectrum disorders, online counseling, telehealth, COVID-19

Journal rubric: Remote support of individuals woth autism

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2020180203

For citation: Pantsyr S.N., Shvedovskiy E.F. Potentials & Conditions of Remote Counselling of the Families of Children with Autism Spectrum Disorders. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2020. Vol. 18, no. 2, pp. 14–20. DOI: 10.17759/autdd.2020180203. (In Russ., аbstr. in Engl.)

References

  1. Gil'yano A.S., Baranova E.M. Eticheskie printsipy v internet-konsul'tirovanii: postanovka problemy [Ethical principles in online counseling: stating the problem] [Web resource] // Vestnik prakticheskoi psikhologii obrazovaniya [Bulletin of Psychological Practice in Education], 2017, vol. 14, no. 2, pp. 69–73. URL: https://psyjournals.ru/vestnik_psyobr/2017/n2/Guiliano_Baranova.shtml (Accessed 01.06.2020).
  2. Dontsov A.I., Dontsov D.A, Dontsova M.V. Tendentsii razvitiya psikhologicheskogo konsul'tirovaniya v informatsionnoi seti Internet [Tendencies of the development of psychological counseling on the Internet]. In Psikhologicheskaya pomoshch' sotsial'no nezashchishchennym litsam s ispol'zovaniem distantsionnykh tekhnologii (Internet-konsul'tirovanie i distantsionnoe obuchenie): Materialy mezhvedomstvennoi nauchno-prakticheskoi konferentsii: Moskva, 24–25 fevralya 2011 g. / MGPPU [Psychological support for socially unprotected persons using remote technologies (online counseling and distance learning): Proceedings of the interdepartmental scientific and practical conference: Moscow, February 24–25 2011 / Moscow State University of Psychology and Education]. Moscow, 2011. Pp. 30–34.
  3. Dontsov D.A. Sotsial'naya psikhologiya internet-kommunikatsii na primere gruppovogo psikhologicheskogo konsul'tirovaniya v Internet [Social psychology of communicating on the Internet]. Aktual'nye problemy gumanitarnykh i estestvennykh nauk [Relevant problems of humanitarian and natural sciences], 2016, no. 3-6, pp. 55–56.
  4. Kaz'min A.M., Slovokhotova O.V. Distantsionnoe konsul'tirovanie roditelei v rannei pomoshchi: kompetentnostnyi podkhod [Distance Counseling for Parents in Early Intervention: A Competence-Based Approach] [Web resource]. Klinicheskaya i spetsial'naya psikhologiya [Clinical Psychology and Special Education], 2019, vol. 8, no. 2, pp. 159–184. DOI:10.17759/cpse.2019080209 (Accessed 01.06.2020).
  5. Kodzhaspirov A.Yu. Profilaktika podrostkovoi agressii sredstvami distantsionnogo konsul'tirovaniya [Prevention of adolescent aggression by means of remote consultation]. Chelovecheskii capital [Human capital], 2014, no. 1, pp. 82–85.
  6. Menovshchikov V.Yu. Eticheskie voprosy konsul'tirovaniya on-lain [Ethical issues of on-line psychological counseling]. Kul'turno-istoricheskaya psikhologiya [Cultural-Historical Psychology], 2010, vol. 6, no. 1, pp. 89–95. URL: https://psyjournals.ru/kip/2010/n1/29278.shtml (Accessed 01.06.2020).
  7. Menovshchikov V.Yu. Internet-konsul'tirovanie: sovremennoe sostoyanie problemy [Online counseling: current state of the problem]. In Psikhologicheskaya pomoshch' sotsial'no nezashchishchennym litsam s ispol'zovaniem distantsionnykh tekhnologii (Internet-konsul'tirovanie i distantsionnoe obuchenie): Materialy mezhvedomstvennoi nauchno-prakticheskoi konferentsii: Moskva, 24–25 fevralya 2011 g. / MGPPU [Psychological support for socially unprotected persons using remote technologies (online counseling and distance learning): Proceedings of the interdepartmental scientific and practical conference: Moscow, February 24–25 2011 / Moscow State University of Psychology and Education]. Moscow, 2011. Pp. 25–30.
  8. Rekomendatsii dlya podrostkov, ikh roditelei i pedagogov, podgotovlennye Soyuzom okhrany psikhicheskogo zdorov'ya v svyazi s rasprostraneniem koronavirusnoi infektsii [Recommendations for adolescents, their parents and educators, prepared by the Union for mental health due to the spread of the coronavirus infection] [Web resource] / Bank dokumentov: Ministerstvo prosveshcheniya Rossiiskoi Federatsii [Document bank: Ministry of Education of the Russian Federation]. 27 March, 2020. URL: https://docs.edu.gov.ru/document/82e053bc2468d77ec62dcd82affaddc9/ (Accessed 01.06.2020).
  9. Skavinskaya E.N. Algoritmy psikhologicheskogo konsul'tirovaniya v formate telefona doveriya: uchebnoe posobie [Algorithms of psychological counseling in the form of a helpline: manual]. Tomsk: Publ. Tomsk State University, 2012. 162 p.
  10. Suslova O.I., Tezikova E.A. Vozmozhnosti psikhologicheskogo onlain konsul'tirovaniya semei, vospityvayushchikh detei s OVZ [Possibilities of online psychological counseling for families raising disabled children]. In Materialy VI vserossiiskoi nauchno-prakticheskoi konferentsii: Dyl'novskie chteniya: Obshchestvo i lichnost' v usloviyakh informatsionno-tsifrovykh trendov: 12 fevralya 2019 g. [Proceedings of the 6th Dyl’nov national scientific and practical conference: Community and personality in the conditions of current informational and digital trends]. Saratov: Publ. Saratovskii istochnik, 2019. Pp. 369–372. ISBN 978-5-91879-923-9.
  11. Eticheskii kodeks pedagoga-psikhologa Sluzhby prakticheskoi psikhologii obrazovaniya: proekt [Ethical code of the educator psychologist of the Practical education psychology service: draft] [Web resource] / Prakticheskii psikholog [Practice psychologist]. URL: http://practic.childpsy.ru/document/detail.php?ID=22885 (Accessed 01.06.2020).
  12. Alleman J.R. Online counseling: The Internet and mental health treatment. Psychotherapy: Theory, Research, Practice, Training, 2002, vol. 39, no. 2, pp. 199–209. DOI:10.1037/0033-3204.39.2.199
  13. Andersson G., Cuijpers P., Carlbring P., Riper H., Hedman E.  Guided Internet-based vs. face-to-face cognitive behavior therapy for psychiatric and somatic disorders: a systematic review and meta-analysis. World Psychiatry, 2014, vol. 13, no. 3, pp. 288–295. DOI:10.1002/wps.20151
  14. Benson S.S., Dimian  A.F., Elmquist M., Simacek J., McComas J.J., Symons F.J. Coaching parents to assess and treat self-injurious behaviour via telehealth. Journal of Intellectual Disability Research, 2018, vol. 62, no. 12, pp. 1114–1123. DOI:10.1111/jir.12456
  15. Berryhill M.B., Culmer N., Williams N., Halli-Tierney A., Betancourt A., Roberts H., King M. Videoconferencing psychotherapy and depression: a systematic review. Telemedicine and e-Health, 2019, vol. 25, no. 6, pp. 435–446. DOI:10.1089/tmj.2018.0058
  16. Courtenay K., Perera B. COVID-19 and People with Intellectual Disability: impacts of a pandemic. Irish Journal of Psychological Medicine, 2020, pp. 1–21. DOI:10.1017/ipm.2020.45
  17. Eshraghi A.A., Li C., Alessandri M., Messinger D.S., Eshraghi R.S., Mittal R., Armstrong F.D. COVID-19: overcoming the challenges faced by individuals with autism and their families. The Lancet Psychiatry, 2020, vol. 7, no. 6, pp. 481–483. DOI:10.1016/S2215-0366(20)30197-8
  18. Fagiolini A., Cuomo A., Frank E. COVID-19 diary from a psychiatry department in Italy. The journal of Clinical Psychiatry, 2020, vol. 81, no. 3, p. 20com13357. DOI:10.4088/JCP.20com13357
  19. Ferguson J., Craig E.A., Dounavi K. Telehealth as a model for providing behaviour analytic interventions to individuals with autism spectrum disorder: A systematic review. Journal of autism and developmental disorders, 2019, vol. 49, no. 2, pp. 582–616. DOI:10.1007/s10803-018-3724-5
  20. Griffiths M. Online therapy: A cause for concern? The Psychologist, 2001, vol. 14, no. 5, pp. 244–228.
  21. Hall C.M., Bierman K.L. Technology-assisted interventions for parents of young children: Emerging practices, current research, and future directions. Early childhood research quarterly, 2015, vol. 33, pp. 21–32. DOI:10.1016/j.ecresq.2015.05.003
  22. Karyotaki E., Elbert D.D., Donkin L., Riper H., Twisk J., Burger S., Rozental A., Lange A., Williams A.D., Zarsk A.C., Geraedts A. Do guided internet-based interventions result in clinically relevant changes for patients with depression? An individual participant data meta-analysis. Clinical psychology review, 2018, vol. 63, pp. 80–92. DOI:10.1016/j.cpr.2018.06.007
  23. Lord C., McGee J.P. Educating children with autism. Washington: National Academic Press, 2001. 323 p. ISBN 978-0-30921001-0.
  24. Mallen M.J., Vogel D.L., Rochlen A.B., Day S.X. Online counseling: Reviewing the literature from a counseling psychology framework. The Counseling Psychologist, 2005, vol. 33, no. 6, pp. 819–871. DOI:10.1177/0011000005278624
  25. McDuffie A., Machalicek W., Oakes A., Haebig E., Weismer S.E., Abbeduto L. Distance Video-Teleconferencing in Early Intervention: Pilot Study of a Naturalistic Parent-Implemented Language Intervention. Topics in Early Childhood Special Education, 2013, vol. 33, no. 3, pp. 172–185. DOI:10.1177/0271121413476348
  26. Pagliari C., Sloan D., Gregor P., Sullivan F., Detmer D., Kahan J.P., Oortwijn W., MacGillivray S. What is eHealth (4): A scoping exercise to map the field. Journal of Medical Internet Research, 2005, vol. 7, no.1, p. e9. DOI:10.2196/jmir.7.1.e9
  27. Policy Brief: The Impact of COVID-19 on children: 15 April 2020 / United Nations [Web resource]. URL: https://unsdg.un.org/resources/policy-brief-impact-covid-19-children (Accessed 01.06.2020).
  28. Slone N.C., Reese R.J., McClellan M.J. Telepsychology outcome research with children and adolescents: A review of the literature. Psychological Services, 2012, vol. 9, no. 3, pp. 272–292. DOI:10.1037/a0027607
  29. Vismara L.A, McCormick, C., Young, G.S., Nadhan A., Monlux K. Preliminary findings of a telehealth approach to parent training in autism. Journal of autism and developmental disorders, 2013, vol. 43, no. 12, pp. 2953–2969. DOI:10.1007/s10803-013-1841-8
  30. WHO Director-General's opening remarks at the media briefing on COVID-19 — 11 March 2020 / World Health Organization [Web resource]. URL: https://www.who.int/dg/speeches/detail/who-director-general-s-opening-remarks-at-the-media-briefing-on-covid-19---11-march-2020 (Accessed 01.06.2020).

Information About the Authors

Sergey N. Pantsyr, PhD in Psychology, methodologist of the Federal Resource Center for the Organization of Comprehensive Support to Children with ASD, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-2772-7627, e-mail: sergey-p84@mail.ru

Evgenii F. Shvedovskiy, methodologist of the Federal Resource Center for Organization of Comprehensive Support to Children with Autism Spectrum Disorders,researcher of the Laboratory of Comprehensive Language Research in Children with Autism & Developmental Disorders, executive secretary of the Journal "Autism & Developmental Disorders", Moscow State University of Psychology & Education, Moscow State University of Psychology & Education; junior researcher of the laboratory of clinical psychology, Mental Health Research Center; Neuropsychologist, Center of Health & Development of St.Luke; neuropsychologist, ABA-Center "My Planet", Moscow, Russia, ORCID: https://orcid.org/0000-0002-2834-7589, e-mail: shvedovskijef@mgppu.ru

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