The Study of Parent Attitude to the Developmental Features of Children with Autism

345

Abstract

According to the survey of 629 families of children with autism spectrum disorders (ASD), it was revealed that the estimation of the significance of symptoms occurring in ASD by parents does not partially coincide with those adopted in modern official classifiers (ICD-11; DSM-V). Parents attach more importance than professionals to speech disorders (especially the difficulties of expressive speech) and significantly underestimate the problems associated with intelligence). The role of comorbid disorders also underestimates the role of intellectual impairment, depressive and epileptiform symptomatology and mistakenly gives a significant place to mental development delays. It is shown that the coordination of the system of inter-relations of parents and professionals can reached by the similarity in assessments of the child status. The results will be used in determining the directions, methods and forms of working with families of children with ASD.

General Information

Keywords: autism spectrum disorders (ASD), parents of children with autism, attitude towards your children with autism, symptoms of ASD, comorbid disturbances in ASD

Journal rubric: Research & Diagnosis of ASD

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2021190404

Received: 15.11.2021

Accepted:

For citation: Morozov S.A., Morozova S.S., Morozova T.I. The Study of Parent Attitude to the Developmental Features of Children with Autism. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2021. Vol. 19, no. 4, pp. 32–39. DOI: 10.17759/autdd.2021190404. (In Russ., аbstr. in Engl.)

References

  1. Manelis N.G., Volgina N.N., Nikitina Yu.V. et al. Organizatsiya raboty s roditelyami detei s rasstroistvami autisticheskogo spektra: Metodicheskoe posobie [Organizing support for parents of children with autism spectrum disorders: Handbook]. Moscow: Publ. Federal Resource Center of the Moscow State University of Psychology and Education, 2017. 94 p. ISBN 978-5-94051-164-9.
  2. MKB-11 (Mezhdunarodnaya klassifikatsiya boleznei 11 peresmotra) [ICD-11 (International Classification of Diseases, 11th revision)] [Web resource]. URL: https://icd11.ru/ (Accessed 04.12.2021).
  3. Morozov S.A. K voprosu o komorbidnosti pri rasstroistvakh autisticheskogo spektra [On the Issue of Comorbidity in Autism Spectrum Disorders]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2018, vol. 16, no. 2, pp. 3—8. DOI:10.17759/autdd.2018160201
  4. Morozov S.A. Kompleksnoe soprovozhdenie lits s rasstroistvami autisticheskogo spektra: uchebno-metodicheskoe posobie [Complex support for people with autism spectrum disorders: Handbook]. Moscow, 2015. 540 p. ISBN 978-5- 9907171-8-3.
  5. Morozov S.A. Sovremennye podkhody k korrektsii detskogo autizma (obzor i kommentarii) [Modern approaches to corrective therapy for autism in children (review and commentary)]. Moscow: Publ. Society for supporting autistic children “Dobro”, 2010. 102 p.
  6. Morozov S.A. Strategiya soprovozhdeniya detei s autisticheskoi simptomatikoi v strukture TMNR [Strategy for supporting children with autism symptoms in the structure of multiple severe disabilities]. In Obrazovanie obuchayushchikhsya s tyazhelymi narusheniyami razvitiya: Sbornik materialov Vserossiiskoi nauchno-prakticheskoi konferentsii s mezhdunarodnym uchastiem: 6—8 noyabrya 2018 goda [Education for students with severe disabilities: Proceedings of the national scientific and practical conference with international participation: November 6—8, 2018]. Pskov: Publ. Pskov State University, 2018. Pp. 24—27. ISBN 978-5-91116-797-4.
  7. Morozov S.A., Morozova T.I., Belyavskii B.V. K voprosu ob umstvennoi otstalosti pri rasstroistvakh autisticheskogo spektra [On the issue of intellectual disability in autism spectrum disorders]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2016, vol. 14, no. 1, pp. 9—18. DOI:10.17759/autdd.2016140102
  8. Morozov S.A., Morozova S.S. Prakticheskie aspekty etiopatogeneticheskoi klassifikatsii autisticheskikh proyavlenii [Practical aspects of the etiopathogenetic classification of autistic displays]. In Psikhologo-pedagogicheskoe soprovozhdenie obrazovatel’nogo protsessa: Problemy, perspektivy, tekhnologii: Materialy VIII nauchno-prakticheskoi konferentsii (1—2 aprelya, 2021 g.) [Psychological and pedagogic support in the education process: Problems, perspectives, technologies: Proceedings of the 8th scientific and practical conference (April 1—2, 2021)]. Oryol: Publ. Oryol State University, 2021. Pp. 201—205.
  9. Peeters T. Autizm: ot teoreticheskogo ponimaniya k pedagogicheskomu vozdeistviyu [Autism: From Theoretical Understanding to Educational Intervention]. Saint Petersburg: Publ. Wallenberg Institute for Special Education and Psychology, 1999. 192 p.
  10. Peeters T., de Klerk Kh., Morozova S.S. Sotrudnichestvo mezhdu roditelyami i spetsialistami [Collaboration between parents and specialists]. In Morozov S.A. (scientif. ed.) Organizatsiya psikhologo-pedagogicheskoi i mediko-sotsial’noi pomoshchi litsam s rasstroistvami autisticheskogo spektra: Materialy mezhdunarodnoi nauchno-prakticheskoi konferentsii (Moskva, 1—3 oktyabrya 2009 g.) [Organization of psychological, pedagogic, medical and social support for people with ASD: Proceedings of the international scientific and practical conference (Moscow, October 1—3, 2009)]. Moscow, 2009. Pp. 74—103.
  11. Simashkova N.V. (ed.) Rasstroistva autisticheskogo spektra u detei [Autism spectrum disorders in children]. Moscow: Publ. Avtorskaya akademiya, 2013. 263 p. ISBN 978-5-91902-026-4.
  12. Barcia G., Posar A., Santucci M., Parmeggiani A. Autism and Coeliac Disease (letter to editor). Journal of Autism and Developmental Disorders, 2008, vol. 38, no. 2, pp. 407—408. DOI:10.1007/s10803-007-0480-3
  13. Dawson-Squibb J.-J., de Vries P.J. Developing and Evaluation Framework for Parent Education and Training in Autism Spectrum Disorder: Results of a Multi-stakeholder Process. Journal of Autism and Developmental Disorders, 2019, vol. 49, no. 11, pp. 4468—4481. DOI:10.1007/s10803-019-04176-w
  14. Diagnostic and statistical manual of mental disorders: DSM-5. Arlington: Publ. American Psychiatric Association, 2013. 947 p. ISBN 978-0-89042-554-1.
  15. Happé F., Frith U. Annual research review: Looking back to look forward — Changes in the concept of autism and implications for future research. Journal of Child Psychology and Psychiatry, 2020, vol. 61, no. 3, pp. 218—232. DOI:10.1111/jcpp.13176
  16. Marsden R.E.F., Francis J., Garner I. Use of GFCF Diets in Children with ASD: An Investigation into Parents’ Beliefs Using the Theory of Planned Behavior. Journal of Autism and Developmental Disorders, 2019, vol. 49, no. 9, pp. 3716— 3731. DOI:10.1007/s10803-019-04035-8
  17. Mosner M.G., Kinard J.L., Shah J.S. et al. Rates of Co-occurring Psychiatric Disorders in Autism Spectrum Disorder Using the Mini International Neuropsychiatric Interview. Journal of Autism and Developmental Disorders, 2019, vol. 49, no. 9, pp. 3819—3832. DOI:10.1007/s10803-019-04090-1

Information About the Authors

Sergey A. Morozov, PhD in Biology, Leading scientific worker of the Centre for Socialization and Personalization of Children Education, Federal Institute of Education Development of Presidential Russian Academy of National Economy and Public Administration, Moscow, Russia, ORCID: https://orcid.org/0000-0002-7354-2711, e-mail: morozov-ca@mail.ru

Svetlana S. Morozova, methodologist, The Regional Community Charity Organization «Society for Autistic Children Care “Dobro”», Presidential Russian Academy of National Economy and Public Administration (RANEPA);, Presidential Russian Academy of National Economy and Public Administration (RANEPA), Moscow, Russia, ORCID: https://orcid.org/0000-0002-4483-1477, e-mail: sv-morozova@yandex.ru

Tatiana I. Morozova, Special Teacher, Regional Public Charity Organization “The Society for Autistic Children Care “Dobro”, Moscow, Russia, ORCID: https://orcid.org/0000-0002-1703-5029, e-mail: tim.sam70@yandex.ru

Metrics

Views

Total: 882
Previous month: 34
Current month: 21

Downloads

Total: 345
Previous month: 6
Current month: 7