Parental Attitude to Upbringing the Child with Chronic Somatic Disease (Based on Juvenile Rheumatoid Arthritis)

 
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Abstract

The article describes a study of upbringing attitudes of 30 mothers of children and adolescents aged 7–16 years old suffering from severe chronic disease – juvenile rheumatoid arthritis. Modified method of A.A. Shvedovskaya "Parent's essay" in the form of unfinished sentences was used. Content-analysis identified three variants of the upbringing attitudes of mothers. The most supportive, person-focused attitude manifested in 13.3% of mothers. Training-focused attitude was revealed in 33.3% of mothers; it leads to the neglect of physical and psychological difficulties of the child caused by the disease. Treatment-focused attitude, which leads to an underestimation of the psychological needs of the child and his or her mental development objectives, was observed in 50% of mothers. Results of the "Parent's essays" were compared with the data of interaction observation of mothers with children during their stay in hospital. As a result of observation, in one mother "distant" attitude was detected. The article discusses the impact of suboptimal parental attitudes on the psychological state and personality development of a chronically ill child. The obtained data allow to determine the direction of the consultative psychological care to facilitate the harmonization of parental upbringing attitudes.

General Information

Keywords: parents of chronically ill children, juvenile rheumatoid arthritis, upbringing attitudes, person-focused attitude, attitude toward training, attitude toward treatment, "distant" attitude

Journal rubric: Empirical Research

OpenAlex citations: 1

OpenAlex topics: Adolescent and Pediatric Healthcare, Childhood Cancer Survivors' Quality of Life

Information about the work in OpenAlex

Number of citations: 1

Topics

Adolescent and Pediatric Healthcare

This cluster of papers focuses on supporting the transition of adolescents with chronic conditions from pediatric to adult health care, addressing challenges, readiness assessment, self-management, and the experiences of young adults with special health care needs. It also explores the perspectives of patients, parents, and healthcare providers, as well as the impact of transitional care programs on diabetes control and hospital admission rates.

Number of works: 44393  |  Total number of citations: 321019

Topic detailsв OpenAlex

Childhood Cancer Survivors' Quality of Life

This cluster of papers focuses on pediatric cancer, survivorship, and the assessment of health-related quality of life in children and adolescents. It includes research on the Pediatric Quality of Life Inventory, the Childhood Cancer Survivor Study, pediatric palliative care, psychosocial outcomes, and long-term effects on survivors. The papers also cover topics such as parent-proxy reports, posttraumatic stress symptoms, and neurocognitive outcomes in pediatric cancer patients.

Number of works: 82769  |  Total number of citations: 952240

Topic detailsв OpenAlex

Work details in OpenAlex

Article type: research article

DOI: https://doi.org/10.17759/cpse.2016050405

Published

For citation: Buslaeva, A.S. (2016). Parental Attitude to Upbringing the Child with Chronic Somatic Disease (Based on Juvenile Rheumatoid Arthritis). Clinical Psychology and Special Education, 5(4), 61–75. (In Russ.). https://doi.org/10.17759/cpse.2016050405

© Buslaeva A.S., 2016

License: CC BY-NC 4.0

References

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Information About the Authors

Anna S. Buslaeva, Researcher, Scientific Center of Children Health, Russian Ministry of Health, Moscow, Russian Federation, e-mail: perepisska@yandex.ru

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