Implementation of Support Programs for Parents of Preschool Children with ASD

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Abstract

Growing number of children diagnosed with Autism Spectrum Disorder (ASD) is rising the demand for programs to help their families. The problems and difficulties faced by parents raising children with ASD are discussed. Modern research and systematic reviews of the needs of their families raising preschoolers with autism spectrum disorders (ASD) are presented, as well as the opportunities offered by participation in the support and education programs. The examples of parent education and parent-mediated programs are listed. The results of research on parent’s stress associated with the care, upbringing and education of a child with ASD are presented. Three programs which meet international standards and have evidence of effectiveness and implemented in the Nizhny Novgorod region to support parents of preschool children with ASD are described: “CST — Caregiver Skills Training”, “EarlyBird”, JASPER. The need of selecting the programs according to the actual needs of the family and the child is concluded.

General Information

Keywords: autism spectrum disorder; ASD; Family support programs; stress in the family; “CST — Caregiver skills training”;”EarlyBird”; JASPER

Journal rubric: Education & Intervention Methods

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2022200105

Acknowledgements. The authors of the article are grateful for their Russian and international colleagues, our cooperation made it possible to use effective support programs for parents of children with autism — the Naked Hearts and Way Our Foundations, the National Autism Society (NAS) and personally Joe Stevens, the staff of the JASPER program (UGLA, University of California) and personally Connie Kazari and Jonathan Pangabian, as well as the developers of CST Program — experts from WHO and Autism Speaks.

Received: 26.10.2021

Accepted:

For citation: Bobrova A.V., Dovbnya S.V., Morozova T.Y., Sotova E.N. Implementation of Support Programs for Parents of Preschool Children with ASD. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2022. Vol. 20, no. 1, pp. 37–46. DOI: 10.17759/autdd.2022200105. (In Russ., аbstr. in Engl.)

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Information About the Authors

Anna V. Bobrova, special teacher, Family support сenter "Naked hearts", program manager, CST Master trainer, EarlyBird trainer, Nizhniy Novgorod, Russia, ORCID: https://orcid.org/0000-0002-2311-8285, e-mail: bobrovaanna@yandex.ru

Svyatoslav V. Dovbnya, MSWSS, expert, Naked Heart Foundation, EarlyBird trainer for trainers, Moscow, Russia, ORCID: https://orcid.org/0000-0002-6008-8054, e-mail: s_dovbnya@mail.ru

Tatiana Y. Morozova, expert, Naked Hearts Foundation, EarlyBird trainer for trainers, Moscow, Russia, ORCID: https://orcid.org/0000-0003-3880-5640, e-mail: taniusham@mail.ru

Ekaterina N. Sotova, educational psychologist, Family Support Center “Naked Heart”, Moscow, Russia, ORCID: https://orcid.org/0000-0001-8367-9984, e-mail: sotova.ekaterina2014@yandex.ru

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