Experience of Stages of Cochlear Implantation by Mothers of Deaf Children

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Abstract

We present the results of qualitative research on mothers’ experiences of stages of cochlear implantation. The research covers all stages from suspicion on a hearing disorder to sustainable results of rehabilitation. On each stage, we have highlighted key features of the experience and factors hampering or facilitating the process. Factors hampering the process include improper diagnosis presentation, fears of the child’s health deteriorating as a result of surgery, lack of qualified rehabilitation supervision, and unrealistic expectations during the rehabilitation. Factors facilitating the process include proper diagnosis presentation, emotional support within the family, adequate rehabilitation, success during lengthy rehabilitation, etc. The results show that living through all the stages of cochlear implantation is a critical life situation that requires mothers to change their values and interpretations. We revealed that parents whose children go through cochlear implantation are highly traumatized, the trauma is especially related to the stages of diagnosis establishment and rehabilitation, the latter of which is linked with expectations of positive results of this gradual process.

General Information

Keywords: cochlear implantation, critical situation, experience, stages of cochlear implantation

Journal rubric: Workshop and Methods

Article type: scientific article

DOI: https://doi.org/10.17759/cpp.2019270407

For citation: Budantsov A.V., Molostova A.N. Experience of Stages of Cochlear Implantation by Mothers of Deaf Children. Konsul'tativnaya psikhologiya i psikhoterapiya = Counseling Psychology and Psychotherapy, 2019. Vol. 27, no. 4, pp. 98–116. DOI: 10.17759/cpp.2019270407. (In Russ., аbstr. in Engl.)

References

1.                   Аl’tman Y.А., Тavartkiladze G.А. Rukovodstvo po audiologii [Handbook of audiology]. Moscow: DMK Press, 2003. 360 p.

2.                   Busygina N.P. Кachestvennye i kolichestvennye metody issledovanii v psikhologii [Qualitative and quantitative research methods in psychology]. Moscow: Yurait, 2018. 423 p.

3.                   Vasilyuk F.E. Psikhologiya perezhivaniya. Analiz preodoleniya kriticheskikh situatsii [Psychology of Experience. Analysis of coping with critical situations]. Moscow: Publ. MGU, 1984. 200 p.

4.                   Kukushkina О.I., Goncharova Е.L. (eds.). Deti s kokhlearnymi implantami [Children with cochlear implants]. Моscow: Natsional’noe obrazovanie, 2017. 208 p.

5.                   Koroleva I.V. Kokhlearnaya implantatsiya glukhikh detey i vzroslykh [Cochlear implantation of deaf children and adults]. Saint Petersburg: KARO, 2008. 752 p.

6.                   Тavartkiladze G.А., Shmatko N.D. Diagnostika I korrectsia narushennoy slukhovoi funktsii u detei pervogo goda zhizni [Diagnosis and correction of hearing impairments for children of the first year of life]. Moscow: Poligraf-servis, 2005. 98 p.

7.                   Ulanovskii A.M. Phenomenologicheskaya psikhologiya. Kachestvennye issledovanija i rabota s perezhivaniem [Phenomenological psychology. Qualitative research and work with experience]. Moscow: Smysl, 2016. 255 p.

8.                   Shipitzsina L.M. Rebenok s narushennym slukhom v sem’e i obshestve [Child with hearing loss in family and society]. Saint Petersburg: Rech’, 2009. 203 p.

9.                   Anagnostou F., Crocker S. A preliminary study looking at parental emotions following cochlear implantation. Cochlear Implants International, 2017. Vol. 8 (2), pp. 68—86. doi:10.1179/cim.2007.8.2.68

10.                Bosteels S., Van Hove G., Vandenbroeck M. The rollercoaster of experiences: Becoming the parent of a deaf child. Disability & Society, 2012. Vol. 27 (7), pp. 983— 996. doi:10.1080/09687599.2012.705059

11.                Christiansen J.B., Leigh I.W. Cochlear Implants in Children: Ethics and Choices. Washington: Gallaudet University Press, 2002. 360 p.

12.                Ebrahimi H., Mohammadi E., Pirzadeh A., et al. Living with Worry: The Experience of Mothers with Deaf Child. International Journal of Pediatrics, 2017. Vol. 5 (6), pp. 5183—5193. doi:10.22038/ijp.2017.22743.1914

13.                Feher-Prout T. Stress and Coping in Families with Deaf Children. Journal of Deaf Studies and Deaf Education, 1996. Vol. 1 (3), pp. 155—166. doi:10.1093/ oxfordjournals.deafed.a014291

14.                Foroughan M., Movallali G., Salimi M., et al. The effectiveness of a group counseling program on the mental health of parents of hearing impaired children. Audiology, 2007. Vol. 15 (2), pp. 53—60.

15.                Giorgi A., Giorgi B. The Descriptive phenomenological psychological method. In Camic P.A., Rhodes J.E., Yardly L. (eds.). Qualitative Research in Psychology: Explanding Perspectives in Methodology and Design. Washington: American Psychological Association, 2003, pp. 243—273.

16.                Ingber S., Al-Yagon M., Dromi E. Mothers’ Involvement in Early Intervention for Children with Hearing Loss: The Role of Maternal Characteristics and Context- Based Perception. Journal of Early Intervention, 2010. Vol. 32 (5), pp. 351—369. doi:10.1177/1053815110387066

17.                Jamieson J.R., Zaidman-Zait A., Poon B. Family Support Needs as Perceived by Parents of Preadolescents and Adolescents who are Deaf or Hard of Hearing. Deafness & Education International, 2011. Vol. 13 (3), pp. 110—130. doi:10.1179/1557069X11Y.0000000005

18.                Kurtzer-White E., Luterman D. Families and children with hearing loss: Grief and coping. Mental Retardation and Developmental Disabilities Research Reviews, 2003. Vol. 9 (4), pp. 232—235. doi:10.1002/mrdd.10085

19.                Leach D.P. A phenomenological study of the experiences of parents of a child or children diagnosed with deafness. Doctoral Dissertation (Doctor of Philosophy in Counselor Education). Columbia, University of South Carolina, 2015. 152 p.

20.                Meadow-Orlans K.P. Stress, Support, and Deafness: Perceptions of Infants’ Mothers and Fathers. Journal of Early Intervention, 1994. Vol. 18 (1), pp. 91—102. doi:10.1177/105381519401800108

21.                Pipp-Siegel S., Sedey A.L., Yoshinaga-Itano C. Predictors of parental stress in mothers of young children with hearing loss. Journal of Deaf Studies and Deaf Education, 2002. Vol. 7 (1), pp. 1—17. doi:10.1093/deafed/7.1.1

22.                Quittner A.L., Steck J.T., Pouiller R.L. Cochlear implants in children: A study of parental stress and adjustment. American Journal of Otology, 1991. Vol. 12, pp. 95— 104.

23.                Zaidman-Zait A. Parenting a Child with a Cochlear Implant: Incident Study. The Journal of Deaf Studies and Deaf Education, 2007. Vol. 12 (2), pp. 221—241. doi:10.1093/deafed/enl032

Information About the Authors

Aleksei V. Budantsov, MA in Psychology, Leading Specialist, Regional Public Non-Profit Organization “Center for Curative Pedagogics”, Moscow, Russia, e-mail: hesperion@mail.ru

Anna N. Molostova, PhD in Psychology, Assistant Professor, Assistant Professor, Chair of Individual and Group Psychotherapy, Counseling and Clinical Psychology Department, Moscow State University of Psychology & Education, Member of the Eastern European Association for Existential Therapy, Group Psychotherapist, Moscow, Russia, ORCID: https://orcid.org/0000-0003-1138-943X, e-mail: Molostova.psychotherapy@yandex.ru

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