Motivational and Personality Sphere in Mothers of Autist Children: North America and Western Europe

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Abstract

Over the past decade the number of children under the age of three years, who were diagnosed with autism or autistic spectrum disorder is rapidly increasing in the countries of North America and Western Europe. Researchers noted a sharp deterioration in the psychological and physical health of mothers of autistic children, resulting in the high levels of stress, depression and anxiety disorders, emotional burnout. Therefore, authors of this article give a review of scientific theses and papers published over the past 15 years devoted to the study of specific features of the mental state in mothers of children with a diagnosis of Autistic Spectrum Disorder (autism), published in North America (US and Canada) and Western Europe (United Kingdom, Netherlands, Sweden, etc.) We also highlighted a number of factors contributing to the negative emotional state of mothers and compensatory resources to help them to coping with the situation.

General Information

Keywords: autism, family, mothers of autist children, stress factors, compensatory resources

Journal rubric: Clinical and Special Psychology

Article type: scientific article

DOI: https://doi.org/10.17759/psyedu.2016080112

For citation: Kukanov A.A., Fantalova E. Motivational and Personality Sphere in Mothers of Autist Children: North America and Western Europe [Elektronnyi resurs]. Psikhologicheskaya nauka i obrazovanie psyedu.ru [Psychological Science and Education psyedu.ru], 2016. Vol. 8, no. 1, pp. 128–136. DOI: 10.17759/psyedu.2016080112. (In Russ., аbstr. in Engl.)

References

  1. A randomised group comparison controlled trial of ‘preschoolers with autism’: A parent education and skills training intervention for young children with autistic disorder.Tonge B., Brereton A., Kiomall M., Mackinnon A., Rinehart N. Autism, 2014. Vol. 18, no. 2, pp. 166-177.doi: 10.1177/1362361312458186
  2. Abbott M., Bernard P., Forge J.  Communicating a diagnosis of Autism Spectrum Disorder - a qualitative study of parents’ experiences. ClinicalChildPsychologyand Psychiatry, 2012. Vol. 18, no. 3, pp. 370 – 382.doi:10.1177/1359104512455813
  3. Benderix Y., Nordstrom B., SilvbergB.Parents’ experience of having a child with autism and learning disabilities living in a group home.Autism,2007. Vol. 10, no. 6,pp. 629–641. doi: 10.1177/1362361307070902                                                   
  4. Blankenship K. Predictor variables for parental depression, stress and quality of life of parents with children on the autism spectrum. Dr. Sci. (Psychology) diss. Louisville, 2009. 131 p.
  5. Brobst J., Clopton J., Hendrick S. Parenting Children With Autism Spectrum Disorders. The Couple’s Relationship. Focus on Autism and Other Developmental Disabilities, 2009.Vol. 24, no. 1, pp. 38-49.doi: 10.1177/1088357608323699
  6. Bunner L. The process of help-seeking in parents of children with developmental disabilities: a phenomenological exploration. M. Sci. (Psychology)diss. Vermillion, 2011. 169 p.
  7. Christian J. Factors that predicts satisfaction or burnout in parents of children with moderate to severe mental retardation. Dr. Sci. (Psychology) diss. Detroit,2007. 188 p.
  8. Corcoran J., Berry A., Hill S. The lived experience of US parents of children with autism spectrum disorders: A systematic review and meta-synthesis. Journal of intellectual Disabilities, 2015, no.1, pp. 1-11. doi: 10.1177/1744629515577876
  9. Daneshyar S. A study parental optimism and coping strategies among the parents of children with an autism spectrum disorder.Dr. Sci. (Psychology) diss.  New York, 2013. 193 p.
  10. DivineyE. Well-being of mothers while rearing a child with developmental disabilities. Dr. Sci. (Psychology) diss. New York, 2001.  138 p.
  11. Formative Evaluation of an ABA Outreach Training Program for Parents of Children With Autism in Remote Areas. Heitzman-Powell L., Buzhardt J., Rusinko L., Miller T. Focus on Autism and Other Developmental Disabilities, 2014. Vol. 29, no.1, pp. 23-38.doi:10.1177/1088357613504992
  12. Freedman B. Relationship Status Among Parents of Children with Autism Spectrum Disorders: A Population-Based Study. J Autism Dev Disord, 2012, no. 42, pp. 539–548. doi: 10.1007/s10803-011-1269-y
  13. Gajeton K. Religious coping and spiritual struggles in parents of children with autism spectrum disorder.Dr. Sci. (Psychology) diss.Virginia Beach, 2015. 90 p.  
  14. Golden T. Parents in relationships with their children with autism: A qualitative study. Dr. Sci. (Psychology) diss. Salt Lake City, 2012.  193 p.
  15. Harper A., Dyches T. Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders. J Autism Dev Disord, 2013,no.43, pp. 2604–2616. doi: 10.1007/s10803-013-1812-0
  16. Hartley S., Barker E., Seltzer M. The Relative Risk and Timing of Divorce in Families of Children With an Autism Spectrum Disorder. Journal of Family Psychology, 2010. Vol. 24, no. 4, pp. 449–457.doi:10.1037/a0019847
  17. Hitaker P. Supporting families of preschool children with autism. What parents want and what helps. Autism, 2002. Vol.  6, no. 4, pp. 411–426. doi:10.1177/1362361302006004007
  18. Hoffman C., Sweeney D., Hodge D. Parenting Stress and Closeness Mothers of Typically Developing Children and Mothers of Children With Autism. Focus on Autism and Other Developmental Disabilities, 2009.  Vol. 24, no. 3, pp. 178- 187. doi: 10.1177/1088357609338715
  19. Lichter J. Mother of preschool children with developmental disabilities: their experiences, development and self-concept.Dr. Sci. (Psychology) diss. New York, 2003.  316 p.
  20. Ludlow A., Skelly C., Rohlede P. Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology,  2011. Vol.  17, no. 5, pp.  702 – 711. doi: 10.1177/1359105311422955
  21. MacClain K. The experience of parents providing care to their children with autism. M. Sci. (Psychology) diss. Anchorage, 2004.  62 p.
  22. Marciano S., Drasgow E., Carlson R. The Marital Experiences of Couples Who Include a Child With Autism. The family journal Counseling and Therapy for Couples and Families, 2015. Vol. 2, pp. 132–140. doi: 10.1177/1066480714564315
  23. Morrisson S. Parents of children with autism spectrum disorders accessed and preferred parental supports. Dr. Sci. (Psychology) diss.LasCruces, 2013. 144 p.
  24. Nebeker G. The experience of parents self-directing the care jf their children with developmental disabilities: A hermeneutic phenomenological study.Dr. Sci. (Psychology) diss.Minneapolis, 2007. 169 p.
  25. Neil T. Coping strategies and stress levels of parents of children with autism. Dr. Sci. (Psychology) diss. Las Vegas, 2001. 94 p.
  26. Parental symptoms of posttraumatic stress following a child’s diagnosis of autism spectrum disorder: A pilot study, Research in Autism Spectrum Disorders. Casey L., Zanksas S., Meindl J., Parra G.,  CogdalP., Powell K. Research in Autism Spectrum Disorders, 2012, no.6, pp. 1186–1193. doi: 10.1016/j.rasd.2012.03.008
  27. Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Estes A., Munson J., Dawson G., Koehler E., Zhao X., Abbott R. Autism, 2009. Vol. 13, no. 4, pp. 375 –387. doi: 10.1177/1362361309105658
  28. Porter J. What kinds of support do parents want for their disabled child? Psychological Science and Education, 2014, no. 1, pp. 81-89.
  29. Rao P.,Beidel D. The Impact of Children With High-Functioning Autism on Parental Stress, Sibling Adjustment, and Family Functioning. Behavior Modification, 2009. Vol. 33, no. 4, pp. 437 – 451. doi: 10.1177/0145445509336427
  30. Relationship satisfaction, parenting stress, and depression in mothers of children with autism. Weitlauf A., Vehorn A., Taylor J., Warren Z.  Autism, 2014.  Vol. 18, no. 2, pp. 194 – 198. doi: 10.1177/1362361312458039
  31. Solomon A., Chung B. Understanding Autism: How Family Therapists Can Support Parents of Children with Autism Spectrum Disorders. Family Process, 2012.  Vol. 51, no. 2, pp. 250–264. doi: 10.1111/j.1545-5300.2012.01399.x
  32. Stoner J., Stoner C. Career Disruption: The Impact of Transitioning From a Full-Time Career Professional to the Primary Caregiver of a Child With Autism Spectrum Disorder. Focus on Autism and Other Developmental Disabilities, 2014,pp. 1-11.doi: 10.1177/1088357614528798
  33. Trapesonian J. Factors promoting elevated stress in parents of children with autism. M. Sci. (Public health) diss. Fullerton, 2007. 64 p.

Information About the Authors

Andrey A. Kukanov, PhD in Psychology, Medical psychologist, Scientific-practical Children's and Adolescents Mental Health Center n.a. G. Sukhareva, Moscow Department of Health Care, Moscow, Russia, ORCID: https://orcid.org/0000-0001-7507-7545, e-mail: andrej.kukanov@mail.ru

Elena Fantalova, PhD in Psychology, lecturer, Moscow state university of psychology and education, Moscow, Russia, e-mail: elenafantal@yandex.ru

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