The problem of social adaptation of the family of a child with severe psychophysical disorder

The article is devoted to the identification and overcoming of the psychological problems of the family of a child with severe psychophysical disorder. According to our hypothesis, psychological difficulties prevent parents from taking advantage of opportunities, provided by Russian laws. The target group included 39 children with cerebral palsy in combination with severe mental retardation, and 46 adult family members (33 women, 7 men). The control group included 37 healthy children and 37 adult family members (30 mothers, 7 fathers). The methods of psychological and pedagogical examination of children, standard and original questionnaires for parents were applied. It is shown that the passivity of parents in the search for social support is caused by the uncertainty of their ideas about the future, a decrease in the level of meaningfulness of life, depressive states. Psychological assistance provided to parents during the study led to an increase in social adaptation of families. It was concluded that the support system for families with children suffering from severe psychophysical disorders should be complemented by social patronage and psychological monitoring.

1. Dem'yanov Yu.G. Chelovek s otkloneniyami v psikhicheskoi deyatel'nosti i ego mikrosotsial'nyi mir [A person with deviations in mental activity and his micro social world]. Mnukhinskie chteniya: Materialy konferentsii [Mnukhinsky readings: Conference proceedings]. St. Petersburg: Publ. Sintez-Poligraf, 2004, pp. 36-40.
2. Beck, et al. Kognitivnaya terapiya depressii [Cognitive therapy of depression]. St. Petersburg: Publ. Piter, 2003. 304 p.
3. Levchenko I.Yu., Tkacheva V.V. Psikhologicheskaya pomoshch' sem'e, vospityvayushchei rebenka s otkloneniyami v razvitii [Psychological assistance to a family raising a child with developmental disabilities]. Moscow: Publ. Prosveshchenie, 2008. 240 p.
4. Levchenko I.Yu., Prikhod'ko O.G. Tekhnologii obucheniya i vospitaniya detei s narusheniyami oporno-dvigatel'nogo apparata [Technology of training and education of children with disorders of the musculoskeletal system]. Moscow: Publ. Akademiya, 2001. 192 p.
5. Leont'ev D.A. Test smyslozhiznennykh orientatsii (SZhO) [Purpose in Life Test]. Moscow: Publ. Smysl, 2006. 22 p.
6. Maller A.R. Pedagog i sem'ya rebenka-invalida (nekotorye voprosy pedagogicheskoi etiki) [Teacher and family of a disabled child (some questions of pedagogical ethics)]. Defektologiya [Defectology]. 1996. No 5, pp. 15-19.
7. Seligman M., Darling R.B. Obychnye sem'i, osobye deti [Ordinary families, special children]. Moscow: Publ. Terevinf, 2016. 368 p.
8. Strebeleva E.A., Mishina G.A. Psikhologo-pedagogicheskaya diagnostika narushenii razvitiya detei rannego i doshkol'nogo vozrasta [Psychological and pedagogical diagnosis of developmental disorders of children of early and preschool age]. Moscow: Publ. Mozaika-Sintez, 2016. 200 p.
9. Tkacheva V.V. Tekhnologii psikhologicheskoi pomoshchi sem'yam detei s otkloneniyami v razvitii [Technologies of psychological assistance to families of children with developmental disabilities]. Moscow: Publ. AST; Publ. Astrel', 2007. 320 p.
10. Tsinchenko G. M. Gosudarstvennaya politika po podderzhke semei s det'mi-invalidami [State policy on supporting families with disabled children]. Voprosy upravleniya [Issues of Management]. 2018. No 1 (50), pp. 43-51.
11. Shipitsyna L.M. «Neobuchaemyi» rebenok v sem'e i obshchestve. Sotsializatsiya detei s narusheniem intellekta ["Uneducated" child in the family and society. Socialization of children with intellectual disabilities]. St. Petersburg: Publ. Rech', 2005. 477 p.