Writing and Adapting Medicine-Related Texts for People with Autism Using “Social Stories” аnd “Easy Language” Methods

Currently, much attention is being paid to creating an accessible environment for various groups of people such as people with disabilities, the elderly, children and people for whom Russian is not native language. One of the most im- portant areas is adaptation of information materials on various topics. Providing accessible information about medical services can make medical visits much easier for a wide range of people, including those with autism spectrum dis- orders (ASD), who have difficulty understanding textual information due to mental, sensory, and other disabilities. Due to the fact that people with ASD do not always understand verbal information (both spoken and written), text materials for them need to be adapted. One of the methods to make text easier to understand is “Easy Language”. This method includes rules for creating and adapting textual and graphic information, making them accessible to a wide range of readers who have difficulties in understanding information. Another method developed to improve social skills and understanding of social situations in people with autism is “Social Stories”. This method combines techniques of visual support of textual materials. Social stories are short stories on a particular topic (most often accompanied by illustrations). Their main goal is to inform readers about characteristics of a specific phenomenon or situation, as well as about the ways of behavior in this situation. The article presents the experience of combining “Social Stories” and “Easy Language” methods as part of work to adapt informational medical texts for people with autism spectrum disorders. The work was carried out by specialists of the Moscow Center for Psychology and Educa- tion. Individual excerpts of social stories are used as an example to illustrate some rules of “Easy language” method.

1. Gray C. Sotsial’nye istorii: Innovatsionnaya metodika dlya razvitiya sotsial’noi kompetentnosti u detei s autizmom [The New Social Story Book]. Ekaterinburg: Publ. Rama Pablishing, 2018. 432 p. ISBN 978-5-91743-080-5.
2. Grigorenko E.L. Rasstroistva autisticheskogo spektra: vvodnyi kurs: Uchebnoe posobie dlya studentov [Autism spectrum disorders: Introductory course: Manual for higher education]. Moscow: Publ. Praktika, 2018. 280 p. ISBN 978-5-89816- 163-7.
3. DeWeerdt S. Issledovanie: Obostrennye chuvstva: narusheniya obrabotki sensornoi informatsii u detei [Talking sense: What sensory processing disorder says about autism] // “Way Out” Foundation. 07.08.16. URL: https://outfund.ru/ obostrennye-chuvstva-narusheniya-obrabotki-sensornoj-informacii-u-detej/ (Accessed: 19.02.2023).
4. Druzhelyubnaya meditsina dlya patsientov s rasstroistvami autisticheskogo spektra (RAS): Kratkie algoritmy dlya meditsinskikh spetsialistov i materialy dlya roditelei [Amiable medicine for patients with autism spectrum disorders: Short algorithms for medical specialists and materials for parents] / Assotsiatsiya psikhiatrov i psikhologov za nauchno obosnovannuyu praktiku [Association of psychiatrists and psychologists for science-based practice]. 2020. URL: https:// doctor.autism.help/ (Accessed: 19.02.2023).
5. Zeliadt N. Pochemu autizm svyazan s sensornymi peregruzkami [Sensory overload in autism may stem from hypervigilant brain] // “Way Out” Foundation. 06.09.19. URL: https://outfund.ru/autizm-svyazan-s-sensornymi-peregruzkami (Accessed: 19.02.2023).
6. Nason B. Core Challenges in Autism. Autizm i narusheniya razvitiya = Autism and Developmental Disorders (Russia), 2016, vol. 14, no. 1, pp. 57—64. DOI:10.17759/autdd.2016140107
7. Nason B. Core Challenges of Autism: Sensory aspects of autism. Autizm i narusheniya razvitiya = Autism and Developmental Disorders (Russia), 2015, vol. 13, no. 4, pp. 33—38. DOI:10.17759/autdd.2016140304
8. Rogacheva T.V., Mikhailova E.I. Spetsifika samovospriyatiya det’mi s rasstroistvom autisticheskogo spektra [Specifics of self-perception in children with autism spectrum disorders]. Meditsinskaya psikhologiya v Rossii: elektronnyi nauchnyi zhurnal = Medical psychology in Russia: scientific e-journal, 2017, vol. 9, no. 4. URL: http://mprj.ru/archiv_ global/2017_4_45/nomer03.php (Accessed: 19.02.2023).
9. Khaustov A.V., Manelis N.G. (eds.) Sensornye osobennosti detei s rasstroistvami autisticheskogo spektra: Strategii pomoshchi: Metodicheskoe posobie [Sensory specifics of children with autism spectrum disorders: Teaching guidelines]. Moscow: Publ. Federal Resource Center of the Moscow State University of Psychology and Education, 2018. 70 p. ISBN 978-5-94051-181-6.
10. Fedorova E. Pogovorim prostymi slovami: chto takoe yasnyi yazyk [Let’s talk in simple words: what is Clear Language] // Agentstvo sotsial’noi informatsii [Social Information Agency]. URL: https://www.asi.org.ru/news/2021/03/21/ko-vsemirnomu-dnyu-lyudej-s-sindromom-dauna-nachalsya-proekt-v-kotorom-teksty-perevodyatsya-na-yasnyj-yazyk/ (Accessed: 19.02.2023).
11. Yasnyi i prostoi yazyki v Rossii: Proekt Assotsiatsii prepodavatelei perevoda [Easy and Plain Language in Russia: Project of the Association of Translation Teachers]. URL: https://easyandplain.ru/ (Accessed: 19.02.2023).
12. Titova E.G. (ed.) “Yasnyi yazyk”: kak sdelat’ informatsiyu dostupnoi dlya chteniya i ponimaniya: Metod. rekomendatsii [“Easy Language”: how to make information accessible for reading and comprehension: Teaching guidelines]. Minsk, 2018. 42 p. (Proekt “Dostup k informatsii dlya lyudei s invalidnost’yu, ili Yasnyi yazyk” [“Access to information for persons with disabilities, or Easy Language” project]).
13. Heller S. Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World. New York: Publ. Quill: Publ. Harper Perennial, 2003. 400 p. ISBN 0-06-093292-9.
14. Kanner L. Autistic disturbances of affective contact. Nervous Child, 1943, no. 2, pp. 217—250.
15. McPartland J.C., Klin A., Volkmar F.R. Asperger Syndrome: Assessing and Treating High-Functioning Autism Spectrum Disorders. New York: Publ. Guilford, 2014. 482 p. ISBN 978-1-4625-1414-4.