Guidelines for Psychological Assistance to Chronically Ill Children and Their Parents

2911

Abstract

This study explored psychological features in 33 children aged 8—17 years suffering from rheumatic disorder and in their mothers. 11 children were in the emergency department, 22 in the department of rheumatology. The following methods were used: observation, conversation, the Draw-a-Person and Three Wishes tests, the Dembo-Rubinstein self-esteem scales, and the Parent’s Essay technique. According to the level of their mental activity the children were divided into 4 groups: ‘inactive’, ‘passive’, ‘relatively active’ and ‘active’. Working with the ‘inactive’ children was impossible; the main task was to help their mothers cope with emotional distress. The ‘passive’ children received emotional support and were taught how to understand and express their needs; their parents were taught how to communicate with the child in various ways. Working with the ‘relatively active’ children and their parents had the aim of reestablish- ing productive interactions between them. Working with the ‘active’ children consisted of supporting their self-esteem, self-respect and interests; their parents were taught to better understand age-specific and indi- vidual psychological features of the child and to take into account limitations caused by the illness.

General Information

Keywords: interpersonal situation of development, parent-child relationships, seriously ill child, child at hospital, parental attitudes, psychological assistance

Journal rubric: Empirical Research

Article type: scientific article

DOI: https://doi.org/10.17759/chp.2016120106

For citation: Buslaeva A.S., Venger A.L., Lazurenko S.B. Guidelines for Psychological Assistance to Chronically Ill Children and Their Parents. Kul'turno-istoricheskaya psikhologiya = Cultural-Historical Psychology, 2016. Vol. 12, no. 1, pp. 56–65. DOI: 10.17759/chp.2016120106. (In Russ., аbstr. in Engl.)

References

  1. Venger A.L. Psikhologicheskie risunochnye testy [Psy- chological Drawing Tests]. Moscow: Vlados-Press, 2010. 159 p.
  2. Venger A.L., Morozova E.I. Klinicheskaya psikhologi- ya razvitiya: sostoyanie i perspektivy [Clinical developmen- tal psychology: its status and prospects]. Voprosy psikhologii [Questions of Psychology], 2007, no. 5, pp. 3—12.
  3. Vygotskii L.S. Voprosy detskoi (vozrastnoi) psikholo- gii [Issues of child (age) psychology]. In Vygotskii L.S. Sobra- nie sochinenii: V 6 t. T. 4 [Collected Works: in 6 vol. Vol. 4]. Mos- cow: Pedagogika, 1984, pp. 243—385.
  4. Kireeva I.P. Psikhosotsial’nye aspekty detskoi onkologii [Psychosocial aspects of pediatric oncology]. Materialy Vseros- siiskoi konferentsii s mezhdunarodnym uchastiem “Sotsial’nye i psikhologicheskie problemy detskoi onkologii” (Moskva, 4—6 iyu- nya 1997 g.) [Proceedings of the conference with international participation “Social and Psychological Problems of Child Oncol- ogy”]. Moscow: GlaxoWelcome, 1997, pp. 94—97.
  5. Kiseleva M.G. Esli rebenok boleet. Psikhologicheskaya pomoshch’ tyazhelobol’nym detyam i ikh sem’yam [If a Child is Ill. Psychological Help for Seriously Ill Children and Their Families]. Moscow: Genezis, 2016. 176 p.
  6. Klipinina N.V., Khain A.E., Kudryavitskiy A.R. Prob- lema informirovaniya o zabolevanii i lechenii patsientov i ikh roditelei/semei v detskoi onkologii/gematologii [Doctor-fam- ily-patient communication in pediatric oncology/hematology: diagnosis and treatment disclosure]. Konsul’tativnaiya psik- hologiya i psikhoterapiya [Counseling Psychology and Psycho- therapy], 2014. no. 1, pp. 127—155.
  7. Nikolaeva V.V. Vliyanie khronicheskoi bolezni na psikhiku [Impact of Chronic Disease on the Psyche]. Moscow: Publ. MGU, 1987. 168 p.
  8. Pakhomova M.A. Psikhologicheskoe sostoyanie roditelei detei, nakhodyashchikhsya v otdelenii reanimatsii [The psycho- logical state of the parents of children in the intensive care unit].
  9. Vestnik Sankt-Peterburgskogo universiteta. Seriya 12: Psikhologiya. Sotsiologiya. Pedagogika. [News of Saint Petersburg University. Se- ries 12: Psychology. Sociology. Pedagogy]. 2010, vol. 1, pp. 169—175.
  10. Prikhozhan A.M., Tolstykh N.N. Psikhologiya sirotstva [Psychology of Orphans]. Saint Petersburg: Piter, 2007. 416 p.
  11. Fedunina N.Yu. Opyt sozdaniya podderzhivayushchei sredy v detskoi bol’nitse (na materiale otdeleniya onkologii) [The experience of creating a supportive environment in chil- dren’s hospital (on the material of the Department of Oncol- ogy)]. In Filippova E.V. (ed.). Detskaya i Podrostkovaya Psik- hoterapiya [Child and Adolescent Psychotherapy]. Moscow: Yurait, 2016, pp. 403—417.
  12. Shats I.K. Psikhologicheskoe soprovozhdenie tyazhelobol’nogo rebenka [Psychological Support for Serious- ly ill Children]. Saint Petersburg: Rech’, 2010. 192 p.
  13. Shvedovskaya A.A. Spetsifika pozitsii roditelei pri razlichnykh tipakh vzaimodeistviya s det’mi doshkol’nogo i mladshego shkol’nogo vozrasta [The specifics of the position of the parents with different types of interaction with children of preschool and primary school age]. Psikhologicheskaya nauka i obrazovanie [Psychological Science and Education]. 2006, no. 1, pp. 69–84.
  14. Yanko E.V., Potanina M.S. O psikhologicheskom aspe- kte mediko-sotsial’noi raboty v detskom onkologicheskom ot- delenii [On the psychological aspect of medical and social work in the children’s oncology department]. In Sotsial’naya rabota v Sibiri [Social Work in Siberia]. Kemerovo: Kuzbassvuzizdat, 2004, pp. 133–136.

Information About the Authors

Anna S. Buslaeva, Researcher, Scientific Center of Children Health, Russian Ministry of Health, Moscow, Russia, e-mail: perepisska@yandex.ru

Aleksandr L. Venger, Doctor of Psychology, professor, Department of Psychology, “Dubna” International University for Nature, Society and Man, Dubna State University, Associate Professor of the Russian Medical Academy of Postgraduate Education, member of the editorial board of the journal “Cultural-Historical Psychology”, Moscow, Russia, e-mail: alvenger@gmail.com

Svetlana B. Lazurenko, Doctor of Education, Head of the Center for Inclusive Education Development, Russian Academy of Education, Moscow, Russia, ORCID: https://orcid.org/0000-0003-0642-8545, e-mail: preeducation@gmail.com

Metrics

Views

Total: 4181
Previous month: 28
Current month: 13

Downloads

Total: 2911
Previous month: 10
Current month: 4