Factors of Negative Experiences in Children with Respiratory Tuberculosis Who Are on Inpatient Treatment

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Abstract

The aim of the work is to study the differences in the severity of negative experiences associated with certain aspects of the internal picture of the disease in children undergoing inpatient treatment for respiratory tuberculosis (RT) and children with leukemia, as well as in different age groups of children with RT. Sampling and methods. The study data are presented on a sample of patients aged 5 to 13 years (N= 42, 9 boys, 33 girls), divided into subgroups of 5—7 years, 8—11 years and 12—13 years. The technique of “Unfinished Sentences” by V.E. Kagan and I.K. Shatts was used. At the first stage, the level of negative experiences was compared between groups of children with RT, with leukemia and healthy children (using data from the I.K. Schatz study), at the second stage — in different age groups of children with RT. Conclusions. The results showed a higher level of negative experiences in the group of children with RT due to the absence of severe symptoms and, as a result, difficulties in understanding the need to stay in the hospital. The factors of negative experience in children of different age groups were revealed. Conclusions are formulated about the need to take into account age-related features and the specifics of the disease when developing psychological support programs.

General Information

Keywords: the internal picture of the disease, the social situation of development, age characteristics, psychological support, psychological assistance to children, children, respiratory tuberculosis

Journal rubric: Empirical Researches

Article type: scientific article

DOI: https://doi.org/10.17759/cpp.2022300206

Funding. The work was carried out with the financial support of the Ministry of Science and Higher Education of the Russian Federation within the framework of the fundamental theme “Personalized approaches to the treatment of tuberculosis of the respiratory organs in children and adolescents” (project No. RK AAAAA-A16-116111150009-0).

Received: 13.12.2021

Accepted:

For citation: Sheloumova O.S., Zolotova N.V. Factors of Negative Experiences in Children with Respiratory Tuberculosis Who Are on Inpatient Treatment. Konsul'tativnaya psikhologiya i psikhoterapiya = Counseling Psychology and Psychotherapy, 2022. Vol. 30, no. 2, pp. 92–108. DOI: 10.17759/cpp.2022300206. (In Russ., аbstr. in Engl.)

References

  1. Buslaeva A.S., Venger A.L., Lazurenko S.B. Zadachi psikhologicheskoi pomoshchi tyazhelo bol’nomu rebenku i ego roditelyam [Tasks of psychological assistance to a seriously ill child and his parents]. Kul’turno-istoricheskaya psikhologiya [Cultural-Historical Psychology], 2016. Vol. 12, no. 1, pp. 56—65. DOI:10.17759/chp.2016120106. (In Russ., abstr. in Engl.).
  2. Buslaeva A.S. Lichnostnye osobennosti detei i podrostkov s revmaticheskimi boleznyami: diss. …kand. psikhol. nauk. [Personal characteristics of children and adolescents with rheumatic diseases. Ph. D. (Psychology) diss.] Moscow, 2020, 194 p. (In Russ.).
  3. Vygotskii L.S. Sobranie sochinenii: v 6 t. T.4. Detskaya psikhologiya [Collected Works: in 6 vol. Vol.3. Child psychology]. Moscow: Publ. Pedagogika, 1984, 432 p. (In Russ.).
  4. Zakharova E.V. Model’ psikhosotsial’nogo soprovozhdeniya bol’nykh tuberkulezom [Model of psychosocial support of tuberculosis patients. Dr.Sci. (Psychology) diss.]. Samara, 2020, 392 p. (In Russ.).
  5. Zolotova N. V., Akhtyamova A.A. Razlichnye aspekty vnutrennei kartiny bolezni u podrostkov, bol’nykh tuberkulezom organov dykhaniya [Various aspects of the internal picture of the disease in adolescents with respiratory tuberculosis]. Vestnik Tsentral’nogo nauchno-issledovatel’skogo instituta tuberkuleza [Bulletin of the Central Research Institute of Tuberculosis], 2020, no. 2, pp. 68—73. DOI: 10.7868/S2587667820020089 (In Russ., abstr. in Engl.).
  6. Kuznecova E.A. Osobennosti kognitivnoj i jemocional’no-volevoj sfery u podrostkov s somatoformnoj vegetativnoj disfunkciej [Features of the cognitive and emotional-volitional sphere in adolescents with somatoform autonomic dysfunction. Ph. D. (Psychology) diss. diss.]. Saint Petersburg, 2017, 180 p. (In Russ.).
  7. Kurtanova Ju.E. Vnutrennjaja kartina bolezni detej i podrostkov s limfostazom [The internal picture of the disease of children and adolescents with lymphostasis] [Jelektronnyj resurs]. Psihologicheskaja nauka i obrazovanie [Psychological Science and Education] 2012. T. 4. no. 4. [Electronic resource psyedu.ru.] URL: https://psyjournals.ru/psyedu_ru/2012/n4/57082.shtml (Accessed 03.08.2021) (In Russ., abstr. in Engl.).
  8. Kurtanova Ju.E., Zinchenko M.N. Vnutrennjaja kartina bolezni detej s nefrologicheskimi zabolevanijami i hronicheskoj pochechnoj nedostatochnost’ju [The internal picture of the disease of children with nephrological diseases and chronic renal failure]. Psihologicheskaja nauka i obrazovanie [Psychological Science and Education], 2012, Vol. 17, no. 5, pp. 19—28. (In Russ., abstr. in Engl.).
  9. Rjabova T.V., Klipinina N.V., Nikol’skaja N.S., i dr. Jemocional’nyj distress i sub#ektivno znachimye trudnosti u podrostkov s onkologicheskimi i onkogematologicheskimi zabolevanijami, prohodjashhih himioterapiju, i ih materej [Emotional distress and subjectively significant difficulties in adolescents with oncological and oncohematological diseases undergoing chemotherapy and their mothers]. Konsul’tativnaja psihologija i psihoterapija [Counseling Psychology and Psychotherapy], 2021, Vol. 29, no. 1, pp. 92—111. DOI:10.17759/cpp.2021290106 (In Russ., abstr. in Engl.).
  10. Shats I.K. Bol’noi rebenok i ego sem’ya: formy i vozmozhnosti psikhologicheskoi pomoshchi: uchebnoe posobie [A sick child and his family: forms and possibilities of psychological assistance: textbook]. Saint Petersburg: Publ. SpetsLit, 2016. 303 s. (In Russ.).
  11. Shats I.K. Psikhicheskie rasstroistva u detei, stradayushchikh ostrym leikozom: avtoref. diss. ... kand. med. nauk [Mental disorders in children suffering from acute leukemia. Dr. Sci. (Medicine) Thesis]. Leningrad, 1989. 24 p. (In Russ.).
  12. Em M.A., Dani L., Dvoryanchikov N.V., i dr. Kak deti ponimayut zdorov’e i bolezn’: razmyshleniya s tochki zreniya teorii sotsial’nykh predstavlenii [How children understand health and illness: reflections from the point of view of the theory of social representations]. Kul’turno-istoricheskaya psikhologiya [Cultural-Historical Psychology], 2018, Vol. 14, no. 1, pp. 15—22. DOI:10.17759/chp.2018140102 (In Russ., abstr. in Engl.).
  13. Ben-Ari A., Aloni R., Ben-David S., et al. Parental Psychological Flexibility as a Mediating Factor of Post-Traumatic Stress Disorder in Children after Hospitalization or Surgery. Int. J. Environ Res. Public Health [Elektronnyi resurs], 2021, Vol. 18, no. 21. URL: https://pubmed.ncbi.nlm.nih.gov/34770210/ (Accessed 17.03.2022). DOI: 10.3390/ijerph182111699
  14. Lee M.Y., Mu P.F., Tsay S.F., et al. Body image of children and adolescents with cancer: a metasynthesis on qualitative research findings. Nurs. Health Sci. 2012, Vol.14, no. 3. pp. 381—90. DOI: 10.1111/j.1442-2018.2012.00695.x
  15. Lewandowska A. Influence of a Child’s Cancer on the Functioning of Their Family. Children (Basel). 2021. Vol.8, №7, p. 592. DOI: 10.3390/children8070592
  16. Lulgjuraj D., Maneval R.E. Unaccompanied Hospitalized Children: An Integrative Review. J. Pediatr. Nurs. 2021, Vol. 56, pp. 38—46. DOI: 10.1016/j.pedn.2020.10.015
  17. Meentken M. G., van der Ende J., del Canho R., et al. Psychological outcomes after pediatric hospitalization: The role of trauma type. Children’s Health Care, 2021, Vol. 50, no. 3, pp. 278—292. DOI:10.1080/02739615.2021.1890077
  18. Meyerson K.A., Hoddinott G., Garcia-Prats A.J., et al. Caregiver-child separation during tuberculosis hospitalisation: a qualitative study in South Africa. S. Afr. J. Psychol. 2021, Vol. 51, no. 3, pp. 409—421. DOI: 10.1177/0081246320962729
  19. Pao, M., & Bosk, A. Anxiety in medically ill children/adolescents. Depression and Anxiety, 2011, Vol. 28, № 1, pp. 40—49. DOI:10.1002/da.20727
  20. Schmidt L., Fröhling H. Lay concepts of health and illness from developmental perspective. Psychology and Health, 2000, Vol. 15, pp. 229—238. DOI:10.1080/08870440008400303
  21. Triantafyllou C, Matziou V. Aggravating factors and assessment tools for Posttraumatic Stress Disorder in children after hospitalization. Psychiatriki, 2019, Vol. 30, no. 3, pp. 264—270. DOI: 10.22365/jpsych.2019.303.256
  22. Wu L.M., Chin C.C., Haase J.E., et al. Coping experiences of adolescents with cancer: a qualitative study. J. Adv. Nurs. [Elektronnyi resurs], 2009, Vol. 65, no. 11. URL: https://pubmed.ncbi.nlm.nih.gov/19737322/ (Accessed 17.03.2022). DOI: 10.1111/j.1365-2648.2009.05097.x
  23. Zhang S., Ruan W., Li Y., et al. Experiences of the parents caring for their children during a tuberculosis outbreak in high school: a qualitative study. BMC Public Health. [Elektronnyi resurs], 2014, Vol. 14, URL: https://pubmed.ncbi.nlm.nih.gov/24507182/ (Accessed 17.03.2022) DOI: 10.1186/1471-2458-14-132(
  24. Zvonareva O., Witte S., Kabanets N., et al. Adolescents in a tuberculosis hospital: Qualitative study of how relationships with doctors, caregivers, and peers mediate their mental wellbeing. PLoS One. [Elektronnyi resurs], 2021, Vol. 16, URL: https://pubmed.ncbi.nlm.nih.gov/34597311/ (Accessed 17.03.2022) DOI: 10.1371/journal.pone.0257379

Information About the Authors

Oksana S. Sheloumova, Research associate of the Laboratory for the Study of Psychological Problems of Tuberculosis, Central Research Institute of Tuberculosis, Moscow, Russia, ORCID: https://orcid.org/0000-0003-2323-2253, e-mail: oksanasheloumova@yandex.ru

Natalya V. Zolotova, PhD in Psychology, Senior Researcher, Head of the Laboratory for the Study of Psychological Problems of Tuberculosis, Central Research Institute of Tuberculosis, Moscow, Russia, ORCID: https://orcid.org/0000-0003-0048-4394, e-mail: Zolotova_n@mail.ru

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