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Clinical Psychology and Special Education
2019. Vol. 8, no. 4, 58–73
doi:10.17759/cpse.2019080404
ISSN: 2304-0394 (online)

The Dynamics of the Quality of Life of Mothers Bringing up Children with Cerebral Palsy

 
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Abstract

In studies of psychological problems of mothers bringing up children with cerebral palsy, the least explored is the problem of the quality of life. The knowledge of the structural and dynamic characteristics of the quality of life may give an answer to a number of methodological and theoretical issues on the change in the quality of life over time, its structural hierarchy and organization, structure sustainability/unsustainability and core elements. The aim of present study was to identify the dynamics of the quality of life of the mother of a child with cerebral palsy. 66 mothers raising a child with cerebral palsy have been surveyed; 48 respondents participated in a repeated measurement. The outcome of the study is the proof that the quality of life is not stable, it depends on the situation and is reproduced in the context of the situation. The dynamics of the quality of life of the mother of a child with cerebral palsy is characterized by difference in indicators of all structural components with the tendency to change positively, constancy of dominant position of physical functioning, structural transformation of the organization, its flexibility, as well as change of the structural core element.

General Information

Keywords: dynamics, structure, quality of life, cerebral palsy

Journal rubric: Empirical Research

OpenAlex citations: 2

OpenAlex trends: Family and Disability Support Research, Infant Development and Preterm Care, Cerebral Palsy and Movement Disorders

Information about the work in OpenAlex

Number of citations: 2

Topics

Family and Disability Support Research

This cluster of papers explores the impact of parenting stress on caregivers and families of children with developmental disabilities, particularly focusing on autism spectrum disorder. It delves into the challenges faced by parents, the well-being of caregivers, family quality of life, coping strategies, and support services available to address these stressors.

Number of works: 121070  |  Total number of citations: 1018944

Topic detailsв OpenAlex

Infant Development and Preterm Care

This cluster of papers focuses on the mortality, neurodevelopmental outcomes, and long-term sequelae of preterm birth, with an emphasis on interventions such as family-centered care and kangaroo mother care in neonatal intensive care units. It also explores the cognitive and behavioral outcomes, as well as the challenges associated with developmental surveillance and executive functioning in individuals born preterm.

Number of works: 75037  |  Total number of citations: 858484

Topic detailsв OpenAlex

Cerebral Palsy and Movement Disorders

This cluster of papers focuses on the classification, epidemiology, interventions, and outcomes related to cerebral palsy. It covers topics such as the International Classification of Functioning, Disability and Health (ICF) model, gross motor function, disability assessment, participation, rehabilitation, strength training, and neurological impairment.

Number of works: 80683  |  Total number of citations: 985861

Topic detailsв OpenAlex

Work details in OpenAlex

Article type: scientific article

DOI: https://doi.org/10.17759/cpse.2019080404

Published

For citation: Pevneva, A.N. (2019). The Dynamics of the Quality of Life of Mothers Bringing up Children with Cerebral Palsy. Clinical Psychology and Special Education, 8(4), 58–73. (In Russ.). https://doi.org/10.17759/cpse.2019080404

© Pevneva A.N., 2019

License: CC BY-NC 4.0

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Information About the Authors

Angela N. Pevneva, Candidate of Science (Psychology), Yanka Kupala State University of Grodno, Grodno, Belarus, ORCID: https://orcid.org/0000-0001-6304-0649, e-mail: pevneva.angela@rambler.ru

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