Adolescent Resilience Profiles (on the Example of Adolescents with Congenital, Acquired Disabilities and Healthy Peers)

The problem of the research is important in the context of psychological assistance and interaction with adolescents with disabilities. The study aimed to carry out a comparative analysis of the resilience profiles of adolescents with congenital (cerebral palsy), acquired disabilities (oncology, rheumatic diseases) and healthy peers. The study involved 51 adolescents with cerebral palsy, 61 with oncological diseases, 51 with rheumatic diseases and 86 conditionally healthy adolescents aged 13 to 18 years old. In total it embraced 249 teenagers (mean age 14.94+1.48), of which 128 were male and 121 were female. There were used the following methods: the “Victimity” questionnaire (M.A. Odintsova, N.P. Radchikova), “Resilience Test” (E.N. Osin, E.I. Rasskazova) and “COPE” questionnaire (E.I. Rasskazova, T.O. Gordeeva, E.N. Osin). The study revealed significant differences in the resilience profiles of adolescents from different groups: healthy teenagers are mainly characterized by unstable and resilient profiles; adolescents with oncology and rheumatic diseases — by all three profiles; adolescents with cerebral palsy — by victim and unstable ones. The female part of the sample, unlike the male part, are characterized by unstable and victim profiles. The most significant differences in groups with different resilience profiles were found in coping strategies related to the dysfunctional coping style. The use of coping strategies: behavioral disengagement, mental disengagement, concentration on emotions and humor leads to a decrease in resilience in the boys of the entire sample. Concentration on emotions, behavioral disengagement, mental disengagement, and infrequent use of active coping are predictors of reduced resilience in girls.

1. Bakaeva I.A. Novokhat'ko E.N. Shevyreva E.G. Zashchitnye mekhanizmy i kopingstrategii u detei s detskim tserebral'nym paralichom i ikh roditelei [Defense activities and coping strategies at children with cerebral palsy and their parents]. Sibirskii psikhologicheskii zhurnal=Siberian Journal of Psychology, 2019, no. 71, pp. 180–196. DOI: 10.17223/17267080/71/10 (In Russ., abstr. in Engl.).
2. Buslaeva A.S. Osobennosti razvitiya lichnosti detei i podrostkov s revmaticheskimi zabolevaniyami [Special features of personality development of children and adolescents wish rheumatic diseases]. Voprosy sovremennoj pediatrii=Current Pediatrics, 2012, vol. 11, no. 6, pp. 92–96. (In Russ., abstr. in Engl.).
3. Gor'kovaya I.A., Miklyaeva A.V. Zhiznestoikost' i koping-strategii podrostkov s narusheniyami oporno-dvigatel'nogo apparata [Hardiness and coping-strategies of adolescents with motor impairments]. Klinicheskaya i spetsial'naya psikhologiya=Clinical Psychology and Special Education, 2019, vol. 8, no. 1, pp. 90–102. DOI: 10.17759/psyclin.2019080106 (In Russ., abstr. in Engl.).
4. Dmitrieva E.N., Levitskaya T.E. Osobennosti vospriyatiya sobstvennogo vozrasta detei i podrostkov, stradayuschih DTSP [Peculiarities of perception of own age in children and adolescents with cerebral palsy]. Sibirskii Psikhologicheskii Zhurnal=Siberian Journal of Psychology, 2005, no. 22, pp. 66–70. (In Russ., abstr. in Engl.).
5. Odintsova M.A., Radchikova N.P. Ehtapy razrabotki oprosnika «Tip rolevoi viktimnostI» [Stages of “The Type of Role Victimization” Questionnaire Development]. Yaroslavskii pedagogicheskii vestnik=Yaroslavl Pedagogical Bulletin, 2012, vol. 2, no. 1, pp. 309–314. (In Russ., abstr. in Engl.).
6. Odintsova M.A., Radchikova N.P., Sarkisyan A.O. i dr. Dispozitsionnye stili v avtorskikh skazkakh podrostkov s onkologicheskimi i revmaticheskimi zabolevaniyami [Dispositional styles in original tales of adolescents with cancer and rheumatic diseases]. Klinicheskaya i spetsial'naya psikhologiya=Clinical Psychology and Special Education, 2019, vol. 8, no. 2, pp. 80–104. DOI: 10.17759/cpse.2019080205 (In Russ., abstr. in Engl.).
7. Osin E.N., Rasskazova E.I. Kratkaya versiya testa zhiznestoykosti: psikhometricheskie kharakteristiki i primenenie v organizatsionnom kontekste [A short version of the Hardiness Test: Psychometric properties and organizational application]. Vestnik Moskovskogo universiteta=Moscow University Psychology Bulletin. Series 14. Psychology, 2013, no. 2, pp. 147–165. (In Russ., abstr. in Engl.)
8. Rasskazova E.I., Gordeeva Т.О., Osin Е.N. Koping strategii v structure deyatel’nosti I samoregulyatsii: psikhometricheskie kharakteristiki i vozmozhnosti primeneniy metodiki COPE [Coping strategies in the structure of activity and self-regulation: psychometric characteristics and possibilities of using the COPE measure]. Psikhologiya. Zhurnal Vysshey Shkoly Ekonomiki=Psychology. Journal of the Higher School of Economics, 2013, vol. 10, no. 1, pp. 82–118. (In Russ., abstr. in Engl.)
9. Shapoval I.A. Sotsial’naya inklyuziya lits s ogranichennymi vozmozhnostyami zdorov’ya de-yure i defakto: «vklyuchaemye», «vklyuchayushchiesya», «nevklyu-chayushchiesya» [Social inclusion of people with disabilities de jure and de facto: the included, the self-inclusive and the non-self-inclusive]. Vestnik Baltiyskogo federal’nogo universiteta im. I.Kanta. Seriya: Filologiya, pedagogika, psihologiya=Vestnik IKBFU. Philology, Pedagogy, and Psychology, 2019, no. 1, pp. 84–99. (In Russ., abstr. in Engl.)
10. Yatsenko Т.Е. Vzaimosvyaz' viktimnoi deformatsii lichnosti i sklonnosti k viktimnomu povedeniyu v podrostkovom i yunosheskom vozrastakh [The relationship of personality victim deformation and penchant for victim behavior in adolescence]. Vestnik Shadrinskogo gosudaarstvennogo pedagogicheskogo universiteta=Journal of Shadrinsk State Pedagogical University, 2019, no. 3 (43), pp. 233–241. (In Russ., abstr. in Engl.)
11. Amai K., Hojo D. Early adolescent psychological adaptation differences by stress-coping profiles: A latent transition analysis. Anxiety, Stress and Coping, 2021, vol. 35, no. 7, pp. 1–18. DOI: 10.1080/10615806.2021.1980782
12. Anthony S. J., Robertson T., Selkirk E. et al. The social impact of early psychological maturity in adolescents with cancer. Psycho‐Oncology, 2019, vol. 28, no. 3, pp. 586–592. DOI: 10.1002/pon.4982
13. Asano D., Takeda M., Nobusako S. et al. Self-rated depressive symptoms in children and youth with and without cerebral palsy: A pilot study. Behavioral Sciences (Basel, Switzerland), 2020, vol. 10, no. 11, article 167. DOI: 10.3390/bs10110167
14. Bagge-Petersen C.M., Skovdal M., Langstrup H. The socio-material self-care practices of children living with hemophilia or juvenile idiopathic arthritis in Denmark. Social Science and Medicine, 2020, vol. 255, article 113022. DOI: 10.1016/j.socscimed.2020.113022
15. Bahrami M., Mohamadirizi S. Hardiness and optimism in women with breast cancer. Iranian Journal of Nursing and Midwifery Research, 2018, vol. 23, no. 2, pp. 105–110. DOI: 10.4103/ijnmr.IJNMR_200_16
16. Boldyreva U., Streiner D.L., Rosenbaum P.L. et al. Quality of life in adolescents with epilepsy, cerebral palsy, and population norms. Developmental Medicine and Child Neurology, 2020, vol. 62, no. 5, pp. 609–614. DOI: 10.1111/dmcn.14450
17. Frydenberg E. My journey in coping research and practice: The impetus and the relevance. Educational and Developmental Psychologist, 2020, vol. 37, no. 1, pp. 83–90. DOI: 10.1017/edp.2020.9
18. Gilmore L., Wotherspoon J. Perceptions of cerebral palsy in the Australian community. International Journal of Disability, Development and Education, 2021. DOI: 10.1080/1034912X.2021.1882664
19. Haj Hashemi F., Atashzadeh-Shoorideh F., Oujian P. et al. Relationship between perceived social support and psychological hardiness with family communication patterns and quality of life of oncology patients. Nursing Open, 2021, vol. 8, no. 4, pp. 1704–1711. DOI: 10.1002/nop2.808
20. Hanns L., Cordingley L., Galloway J. et al. Depressive symptoms, pain and disability for adolescent patients with juvenile idiopathic arthritis: Results from the Childhood Arthritis Prospective Study. Rheumatology (Oxford), vol. 57, no. 8, pp. 1381–1389. DOI: 10.1093/rheumatology/key088
21. Hoffmann R., Kaiser J., Kersting A. Psychosocial outcomes in cancer-bereaved children and adolescents: A systematic review.Psycho-Oncology, 2018, vol. 27, pp. 2327–2338. DOI: 10.1002/pon.4863
22. Iannucci J., Nierenberg B. Suicide and suicidality in children and adolescents with chronic illness: A systematic review. Aggression and Violent Behavior, 2021. DOI: 10.1016/j.avb.2021.101581
23. Jarl J., Alriksson-Schmidt A. School outcomes of adolescents with cerebral palsy in Sweden. Developmental Medicine and Child Neurology, 2021, vol. 63, no. 4, pp. 429–435. DOI: 10.1111/dmcn.14769
24. Kayama M., Johnstone C., Limaye S. Adjusting the “self” in social interaction: Disability and stigmatization in India. Children and Youth Services Review, 2019, vol. 96, pр. 463–474. DOI: 10.1016/j.childyouth.2018.11.047
25. Latham-Mintus K., Aman K.M. Childhood disadvantage, psychosocial resiliency, and later life functioning: Linking early-life circumstances to recovery from mobility limitation.Journal of Aging and Health, 2019, vol. 31, no. 3, pp. 463–483. DOI: 10.1177/0898264317733861
26. Liu Q., Mo L., Huang X. et al. Path analysis of the effects of social support, self-efficacy, and coping style on psychological stress in children with malignant tumor during treatment. Medicine (Baltimore), 2020, vol. 99, no. 43, e22888. DOI: 10.1097/MD.0000000000022888
27. Liu Q., Mo L., Huang X. et al. The effects of self-efficacy and social support on behavior problems in 8~18 years old children with malignant tumors. PLoS One, 2020, vol. 15, no. 7, e0236648. DOI: 10.1371/journal.pone.0236648
28. Maddi S. Personal Hardiness as the Basis for Resilience. In Hardiness. SpringerBriefs in Psychology, Springer, Dordrecht, 2013. Pp. 7–17. DOI: 10.1007/978-94-007-5222-1_2
29. Malecki C.K., Demaray M.K., Smith T.J. et al. Disability, poverty, and other risk factors associated with involvement in bullying behaviors. Journal of School Psychology, 2020, vol. 78, no. 9, pp. 115–132. DOI: 10.1016/j.jsp.2020.01.002
30. Malkin V., Rogaleva L., Kim A. et al. Hardiness of adolescents in various social groups. Frontiers in Psychology, 2019, vol. 10, article 2427. DOI: 10.3389/fpsyg.2019.02427
31. Nicklin E., Velikova G., Hulme C. et al. Long-term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review. Psycho-Oncology, 2019, vol. 28, no. 3, pp. 477–487. DOI: 10.1002/pon.4989
32. Pahl D.A., Wieder M.S., Steinberg D.M. Social isolation and connection in adolescents with cancer and survivors of childhood cancer: A systematic review. Journal of Adolescence, 2021, vol. 87, pp. 15–27. DOI: 10.1016/j.adolescence.2020.12.010
33. Pascali M., Matera E., Craig F. et al. Cognitive, emotional, and behavioral profile in children and adolescents with chronic pain associated with rheumatic diseases: A case-control study. Clinical Child Psychology and Psychiatry. 2019, vol. 24, no. 3, pp. 433–445. DOI: 10.1177/1359104518805800
34. Pinquart M. Systematic Review: Bullying involvement of children with and without chronic physical illness and/or physical/sensory disability — a meta-analytic comparison with healthy/nondisabled peers. Journal of Pediatric Psychology, 2017, vol. 42, no. 3, pp. 245–259. DOI: 10.1093/jpepsy/jsw081
35. Rožkalne Z., Mukāns M., Vētra A. Transition-age young adults with cerebral palsy: Level of participation and the influencing factors. Medicina (Kaunas), 2019, vol. 55, no. 11, article 737. DOI: 10.3390/medicina55110737
36. Salavati M., Vameghi R., Hosseini S.A. et al. Comparing levels of mastery motivation in children with cerebral palsy (CP) and typically developing children. Medical Archives, 2018, vol. 72, no. 1, pp. 41–45. DOI: 10.5455/medarh.2018.72.41-45
37. Silván-Ferrero P., Recio P., Molero F. et al. Psychological quality of life in people with physical disability: The effect of internalized stigma, collective action and resilience. International Journal Environmental Research and Public Health, 2020, vol. 17, no. 5, article 1802. DOI: 10.3390/ijerph17051802
38. Shochet I.M., Smith C.L., Furlong M.J. et al. A prospective study investigating the impact of school belonging factors on negative affect in adolescents. Journal of Clinical Child and Adolescent Psychology, 2011, vol. 40, no. 4, pp. 586–595. DOI: 10.1080/15374416. 2011.581616
39. Smits D.W., van Gorp M., van Wely L. et al. Participation in social roles of adolescents with cerebral palsy: Exploring accomplishment and satisfaction. Archives of Rehabilitation Research and Clinical Translation, 2019, vol. 1, no. 3–4, article 100021. DOI: 10.1016/j.arrct.2019.100021
40. Steinberg H. Distance and acceptance: Identity formation in young adults with chronic health conditions. Advances in Life Course Research, 2020, vol. 44, article 100325. DOI: 10.1016/j.alcr.2020.100325
41. Taylor R.M., Gibson F., Franck L.S. The experience of living with a chronic illness during adolescence: A critical review of the literature. Journal of Clinical Nursing, 2008, vol. 17, pp. 3083–3091. DOI: 10.1111/j.1365-2702.2008.02629.x
42. Tillery R., Howard Sharp K.M., Okado Y. et al. Profiles of resilience and growth in youth with cancer and healthy comparisons. Journal of Pediatric Psychology, 2016, vol. 41, no. 3, pp. 290–297. DOI: 10.1093/jpepsy/jsv091
43. Van Wely L., van Gorp M., Tan S.S. et al. Teenage predictors of participation of adults with cerebral palsy in domestic life and interpersonal relationships: A 13-year follow-up study. Research in Developmental Disabilities, 2020, vol. 96, article 103510. DOI: 10.1016/j.ridd.2019.103510
44. Whitney D.G., Peterson M.D., Warschausky S.A. Mental health disorders, participation, and bullying in children with cerebral palsy. Developmental Medicine and Child Neurology, 2019, vol. 61, no. 8, pp. 937–942. DOI: 10.1111/dmcn.14175
45. Wintels S.C., Smits D.W., van Wesel F. et al. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expectation, 2018. vol. 21, no. 6, pp. 1024–1034. DOI: 10.1111/hex.12796