Study on Family Cohesion and Adaptability of Caregivers of Children with ASD and Its Influencing Factors
Objectives. The current study aimed to examine family cohesion and adaptability in Chinese caregivers of children with Autism Spectrum Disorder (ASD). The authors used the concept of Circumplex Model as a theoretical background for this study. Background. With the number of children being diagnosed with ASD having increased in recent years, more and more caregivers of children with ASD may experience long-term challenges and stress related to the scope of the care and the psychological burden. In general, family cohesion and adaptability are important sources of support for families. Therefore, it’s imperative to examine family cohesion and adaptability and the influencing factors in caregivers of children with ASD. Study design. The study examined the level of family cohesion and adaptability by calculating the scores of the scales and comparing them with the national norm. The study explored the influencing factors by using difference tests and multiple linear regression analysis. Participants. 168 caregivers of children with ASD from Sichuan province in China. Measurements. A brief demographic questionnaire and Chinese version of Family Adaptability and Cohesion Evaluation Scales (FACES II-CV). Results. Caregivers of children with ASD scored significantly higher on family cohesion than that of the norm, while significantly lower on adaptability. Variables including child’s functional level, caregiver’s marital status, employment status, and place of residence all had significant predictive power on both family cohesion and adaptability, while monthly income also had significant predictive power on family cohesion. Conclusions. Family cohesion perceived by Chinese caregivers of children with ASD was at a higher level, while their adaptability was at a lower level. Both family cohesion and adaptability were influenced by children’s functional level, caregivers’ marital status, employment status, place of residence, while cohesion was also influenced by family income. These factors may be used as predictors of family cohesion and adaptability in the counselling practice and help to develop services supporting the development of more balanced family types.
Keywords: children with ASD, caregivers, family cohesion, family adaptability
Journal rubric: Empirical Research
Article type: scientific article
Funding. This research was funded by a grant from Leshan Normal University (S16001), the Research Center of Applied Psychology in Sichuan at Chengdu of China (CSXL-172014), and the University of Palacký, Faculty of Education (VaV_PdF_2020_004).
Acknowledgements. We are grateful acknowledge the families of children with ASD who participated in this study and kindly donated their time to share some aspects of their family life.
For citation: Lei X., Kantor J. Study on Family Cohesion and Adaptability of Caregivers of Children with ASD and Its Influencing Factors. Sotsial'naya psikhologiya i obshchestvo = Social Psychology and Society, 2020. Vol. 11, no. 3, pp. 70–85. DOI: 10.17759/sps.2020110305.
1. Altiere M.J., Von Kluge S. Family functioning and coping behaviors in parents of children with
autism[J]. Journal of child and Family Studies, 2009. Vol. 18 (1), pp. 83. DOI:10.1007/s10826-008-9209-y
2. Blacher J., McIntyre L.L. Syndrome specificity and behavioural disorders in young adults with
intellectual disability: Cultural differences in family impact[J]. Journal of Intellectual Disability
Research, 2006. Vol. 50 (3), pp. 184—198. DOI:10.1111/j.1365-2788.2005.00768.x
3. Centers for Disease Control and Prevention. About 1 in 54 children has been identified with
autism spectrum disorder (ASD) according to estimates from CDC’s Autism and Developmental
Disabilities Monitoring (ADDM) Network [Electronic resource]. URL: https://www.cdc.gov/
ncbddd/autism/data.html (Accessed 13.09.2020).
4. Chen J. A study of family function and quality of life of acute leukemia children’s parents in
Hunan province[D].Central South University, 2010, pp. 29—30. (In Chinese).
5. Chi L.P., Xin Z.Q. The research of the family functioning and its related factors[J]. Exploration
of Psychology, 2001. Vol. (03), pp. 55—60. (In Chinese). DOI:10.3969/j.issn.1003-5184.2001.03.012
6. Dong Y.H. Status of family functioning and its influencing factors among Chinese adolescents:
a cross-sectional study in Hefei[D]. Anhui Medical University, 2012, pp. 15—36. (In Chinese).
7. Ekas N.V., Ghilain C., Pruitt M., et al. The role of family cohesion in the psychological adjustment
of non-Hispanic White and Hispanic mothers of children with autism spectrum disorder[J]. Research
in Autism Spectrum Disorders, 2016. Vol. (21), pp. 10—24. DOI:10.1016/j.rasd.2015.09.002
8. Gao S. A study on family functioning and its relation to adaptive behaviors of children with
moderate intellectual disability[D]. East China Normal University, 2011. 23 p. (In Chinese).
9. Gau S.S.F., Chou M.C., Chiang H.L. et al. Parental adjustment, marital relationship, and family
function in families of children with autism[J]. Research in Autism Spectrum Disorders, 2012.
Vol. 6 (1), pp. 263—270. DOI:10.1016/j.rasd.2011.05.007
10. Hendricks D.R., Wehman P. Transition from school to adulthood for youth with autism
spectrum disorders: Review and recommendations[J]. Focus on Autism and Other Developmental
Disabilities, 2009. Vol. 24 (2), pp. 77—88. DOI:10.1177/1088357608329827
11. Higgins D.J., Bailey S.R., Pearce J.C. Factors associated with functioning style and coping
strategies of families with a child with an autism spectrum disorder[J]. Autism, 2005. Vol. 9 (2),
pp. 125—137. DOI:10.1177/1362361305051403
of Special Needs[J]. Chinese Journal of Special Education, 2006. Vol. (04), pp. 3—9. DOI:10.3969/j.
issn.1007-3728.2006.04.001. (In Chinese).
13. Iacolino C., Pellerone M., Pace U. et al. Family functioning and disability: a study on Italian parents
of disabled children[J]. Eur Proc Soc Behav Sci, 2016. Vol. (8), pp. 39—52. DOI:10.15405/epsbs.2016.05.5
14. Johnson N., Frenn M., Feetham S. et al. Autism spectrum disorder: Parenting stress, family
functioning and health-related quality of life[J]. Families, Systems, & Health, 2011. Vol. 29 (3),
pp. 232. DOI:10.1037/a0025341
15. Lei X.M. Some thoughts on family support for autistic individuals[J]. Journal of Leshan Normal
University, 2017. Vol. 32 (10), pp. 133—140. DOI:10.16069/j.cnki.51-1610/g4.2017.10.021. (In
16. Lei X.M., Liu Y.H. The characteristics of employment and caring services for adults with
autism spectrum disorders in America and their implications[J]. Disability Research, 2016. Vol. (2),
pp. 30—34. (In Chinese).
17. Li X.F. Study on the relation of social support, psychological stress, and life satisfaction for the
main caregivers of autistic children[D]. Southwest University, 2016. 14 p. (In Chinese).
18. Lin L.Y., Orsmond G.I., Coster W.J. et al. Families of adolescents and adults with autism
spectrum disorders in Taiwan: The role of social support and coping in family adaptation and
maternal well-being[J]. Research in Autism Spectrum Disorders, 2011. Vol. 5 (1), pp. 144—156.
19. Luo L. The study of the life quality of families with autistic children in Chengdu[D]. Sichuan
Normal University, 2014. 32 p. (In Chinese).
20. McLoyd V.C. The impact of economic hardship on Black families and children: Psychological
distress, parenting, and socioemotional development[J]. Child development, 1990. Vol. 61 (2),
pp. 311—346. DOI:10.2307/1131096
21. Möller-Leimkühler A.M., Wiesheu A. Caregiver burden in chronic mental illness: the role
of patient and caregiver characteristics[J]. Eur Arch Psychiatry Clin Neurosci, 2012. Vol. 262 (2),
22. Ni C.D., Su M. “Ideal model” and construction of autism family supporting web: empirical
analysis of Shenzhen 120 autism families [J]. Social work, 2012. Vol. (09), pp. 44—48. DOI:10.3969/j.
issn.1672-4828.2012.09.011. (In Chinese).
23. Olson D. FACES IV and the Circumplex model: Validation study[J]. Journal of Marital and
Family Therapy, 2011. Vol. 37 (1), pp. 64—80. DOI:10.1111/j.1752-0606.2009.00175.x
24. Olson D.H., Sprenkle D.H., Russell C.S. Circumplex model of marital and family systems:
I. Cohesion and adaptability dimensions, family types, and clinical applications[J]. Family Process,
1979. Vol. 18 (1), pp. 3—28. DOI:10.1111/j.1545-5300.1979.00003.x
25. Phillips M.R., West C.L., Shen Q. et al. Comparison of schizophrenic patients’ families and
normal families in China, using Chinese versions of FACES-II and the family environment scales[J].
Family process, 1998. Vol. 37 (1), pp. 95—106. DOI:10.1111/j.1545-5300.1998.00095.x
26. Rao P.A., Beidel D.C. The impact of children with high-functioning autism on parental stress,
sibling adjustment, and family functioning[J]. Behavior modification, 2009. Vol. 33 (4), pp. 437—
27. Rodrigue J.R., Morgan S.B., Geffken G. Families of autistic children: Psychological functioning
of mothers[J]. Journal of Clinical Child Psychology, 1990. Vol. 19 (4), pp. 371—379. DOI:10.1207/
28. Sabogal F., Marín G., Otero-Sabogal R. et al. Hispanic familism and acculturation: What
changes and what doesn’t?[J]. Hispanic Journal of Behavioral Sciences, 1987. Vol. 9 (4), pp. 397—
29. Shi M.W. Traditional Confucian coping and its current significance[D]. Nankai University,
2013. 2 p. (In Chinese).
30. Sikora D., Moran E., Orlich F. et al. The relationship between family functioning and behavior
problems in children with autism spectrum disorders[J]. Research in Autism Spectrum Disorders,
2013. Vol. 7 (2), pp. 307—315. DOI:10.1016/j.rasd.2012.09.006
31. Sun X., Allison C., Wei L. et al. Autism prevalence in China is comparable to Western
prevalence[J]. Molecular autism, 2019. Vol. 10 (7), pp. 1—19. DOI:10.1186/s13229-018-0246-0
32. Vasilopoulou E., Nisbet J. The quality of life of parents of children with autism spectrum
disorder: A systematic review[J]. Research in Autism Spectrum Disorders, 2016. Vol. (23), pp. 36—49.
33. Xiong X.R., Sun Y.M. Study on social support and the influencing factors of families with
autism spectrum disorder children[J]. Maternal and Child Health Care of China, 2014. Vol. 29 (31),
pp. 5077—5081. DOI:10.7620/zgfybj.j.issn.1001-4411.2014.31.21. (In Chinese).
34. Xue J., Ooh J., Magiati I. Family functioning in Asian families raising children with autism
spectrum disorders: the role of capabilities and positive meanings[J]. Journal of Intellectual Disability
Research, 2014. Vol. 58 (5), pp. 406—420. DOI:10.1111/jir.12034
35. Yang Y., Wang M. Employment and Financial Burdens of Families with Preschool-aged
Children with Autism[J]. Chinese Journal of Clinical Psychology, 2014. Vol. 22 (02), pp. 295—297.
DOI:10.16128/j.cnki.1005-3611.2014.02.007. (In Chinese).
36. Zhang W.L., Zhang Y.A., Zhang L. Social support, depression level, family intimacy and adaptability
of parents of nephritic syndrome children[J]. Chinese Journal of Woman and Child Health Research, 2017.
Vol. 28 (10), pp. 1174—1176. DOI:10.3969/j.issn.1673-5293.2017.10.004. (In Chinese).
37. Zhou C.F., Wu H.S., Zhu D.N. et al. Study on the correlation between family intimacy and adaptability
of children with cerebral palsy and social support[J]. Maternal and Child Health Care of China, 2015.
Vol. 30 (14), pp. 2184—2187. DOI:10.7620/zgfybj.j.issn.1001-4411.2015.14.18. (In Chinese).
38. Zhou J. A study on autism spectrum disorder children’s family function and its influencing
factors[D]. Liaoning Normal University, 2017, pp. 14—35. (In Chinese).
39. Zhou Y.T., Yin H.Y., Wang M.J. et al. Correlation between family function and parenting selfefficacy
in caregivers of children with autism spectrum disorder[J].Chinese Journal of Rehabilitation
Theory and Practice, 2017. Vol. 23 (04), pp. 465—469. DOI:10.3969/j.issn.1006-9771.2017.04.022.
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