The work of the Comprehensive Care System for Children with ASD in the Regions of the Volga Federal District

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Abstract

An ordered work to develop a system of continuous comprehensive support for people with autism spectrum disorders (ASD) is being carried out in the Russian Federation. Since 2019 the Mental Health public project aimed at the development of the social and rehabilitation support to families raising children with mental disabilities has been implemented in the Volga Federal District (VFD). The Nizhny Novgorod Region is the first area which started to implement the project, which involves 5 regions of the Volga Federal District. Objectives of the project include various processes:early detection of ASD, training of professionals in various fields of interaction with people with ASD, raising awareness of effective care practices, including those for adults with ASD, organizing the work of resource centers; provision of medical services to people with ASD and their families. Some aspects of activities of the system of comprehensive care for children with ASD in the regions of the Volga Federal District are presented. Various fac- tors of comprehensive support to families raising children with ASD are considered on the basis of statistical data. From 2018 to June 2021 the prevalence of ASD in the Volga Federal District increased by 38.8%, and the provision of assistance to children with ASD and their families increased by 8.8%. The received data make it possible to assess the effectiveness and relevance of measures to identify and accompany children and their families as well as to plan further activities to organize comprehensive care for people with ASD reasonably.

General Information

Keywords: autism; autism spectrum disorders; mental disability; Mental Health project; comprehensive care; Volga Federal District

Journal rubric: Expert opinion

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2022200101

Received: 17.02.2022

Accepted:

For citation: Balandina O., Gvozd U.Y. The work of the Comprehensive Care System for Children with ASD in the Regions of the Volga Federal District. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2022. Vol. 20, no. 1, pp. 5–11. DOI: 10.17759/autdd.2022200101. (In Russ., аbstr. in Engl.)

References

  1. Balandina O.V., Gvozd' U.Yu., Karyakin N.N. Analiz sistemy kompleksnoi pomoshchi detyam s rasstroistvami autisticheskogo spektra v Privolzhskom federal'nom okruge po sostoyaniyu na 1 yanvarya 2019 goda [Analysis Of The Comprehensiive Care System For Children Whis Autism Spectrum Disorders In The Volga Federal District As Of January 1, 2019]. In Deti. Obshchestvo. Budushchee: sbornik nauchnykh statei po materialam III Kongressa «Psikhicheskoe zdorov'e cheloveka XXI veka» [Children. Society. Future: Proceedings of the 3rd “Mental health of the 21st century human” congress]: Vol. 1. Moscow: Publ. KnoRus, 2020. Pp. 203–206. ISBN 978-5-406-02938-1. DOI:10.37752/9785406029381-64
  2. Bozhkova E.D., Balandina O.V., Konovalov A.A. Rasstroistva autisticheskogo spektra: sovremennoe sostoyanie problemy (obzor) [Autism Spectrum Disorders: State-of-the-Art (Review)]. Sovremennye tekhnologii v meditsine [Modern Technologies in Medicine], 2020, vol. 12, no. 2, pp. 111–120. DOI:10.17691/stm2020.12.2.14
  3. Klinicheskie rekomendatsii: Rasstroistva autisticheskogo spektra [Clinical recommendations: Autism spectrum disorders] / Ministry of health of the Russian Federation [Web resource]. 2020. URL: https://cr.minzdrav.gov.ru/schema/594_1 (Accessed 21.02.2022).
  4. Kompleksnaya mediko-sotsial'naya i psikhologo-pedagogicheskaya pomoshch' detyam s rasstroistvami autisticheskogo spektra: Informatsionno-metodicheskii sbornik [Comprehensive medical, social, psychological and educational support for children with ASD: Informational and methodical compilation]. Moscow, 2016. 165 p. ISBN 978-5-94223-948-0.
  5. Metodicheskie rekomendatsii po organizatsii deyatel'nosti regional'nogo resursnogo tsentra po organizatsii kompleksnogo soprovozhdeniya detei s rasstroistvami autisticheskogo spektra [Guidance on organizing a regional resource center’s activity in providing comprehensive support to children with ASD]. In Pis'mo Ministerstva obrazovaniya i nauki RF ot 4 iyulya 2017 g. № 07-3464 «O napravlenii informatsii» [Letter of the Ministry of education of Russia from July 7, 2017 “On directing information”] [Web resource]. 11 p. URL: https://autism-frc.ru/work/support-regions/355 (Accessed 21.02.2022).
  6. Obshchestvennyi proekt «Mental'noe zdorov'e» [Community-directed project “Mental health”] // Ofitsial'nyi sait polnomochnogo predstavitelya Prezidenta Rossiiskoi Federatsii v Privolzhskom federal'nom okruge [Official site of the Plenipotentiary representative of the President of Russia in the Volga Federal District] [Web resource]. 9 s. URL: http://pfo.gov.ru/projects/metal/ (Accessed 21.02.2022).
  7. Prikaz Minzdrava Rossii ot 10 avgusta 2017 g. № 514н «O Poryadke provedeniya profilakticheskikh meditsinskikh osmotrov nesovershennoletnikh» [Order of the Ministry of health of Russia no. 514н “On conducting preventive medical examinations of minors”] [Web resource]. URL: http://base.garant.ru/71748018/ (Accessed 21.02.2022).
  8. Rasporyazhenie Kabineta Ministrov Chuvashskoi Respubliki «Ob utverzhdenii Kontseptsii kompleksnogo soprovozhdeniya lyudei s rasstroistvami autisticheskogo spektra i drugimi mental'nymi narusheniyami v Chuvashskoi Respublike na 2020–2022 gody i plana meropriyatii po ee realizatsii» № 652-р ot 23 iyulya 2020 goda [Order of the Cabinet of ministers of Chuvash Republic “On the approval of the Guidelines of comprehensive support for people with ASD and other mental disorders in Chuvash Republic for 2020–2022, and the plan for its realization”] [Web resource]. URL: https://cap.ru/doc/laws/2020/07/24/disposal-652-r (Accessed 21.02.2022).
  9. Rasporyazhenie Pravitel'stva Nizhegorodskoi oblasti ot 11 sentyabrya 2019 g. № 928-р «Ob utverzhdenii Kontseptsii kompleksnogo soprovozhdeniya lyudei s rasstroistvami autisticheskogo spektra v Nizhegorodskoi oblasti» [Order of the Government of Nizhny Novgorod Oblast from September 11, 2019 no. 928-р “On estabilishing the Guidelines for comprehensive support for people with ASD in Nizhny Novgorod Oblast”] [Web resource]. URL: https://base.garant.ru/72723344/ (Accessed 21.02.2022).
  10. Rasporyazhenie Pravitel'stva Nizhegorodskoi oblasti ot 25 oktyabrya 2019 g. № 1117-р «Ob utverzhdenii Plana meropriyatii po realizatsii Kontseptsii kompleksnogo soprovozhdeniya lyudei s rasstroistvami autisticheskogo spektra v Nizhegorodskoi oblasti na 2020–2022 gody» [Order of the Government of Nizhny Novgorod Oblast from October 25, 2019 no. 1117-р “On establishing the Plan of realizing the Guidelines for comprehensive support for people with ASD in Nizhny Novgorod Oblast for 2020–2022”] [Web resource]. URL: https://base.garant.ru/73010290/ (Accessed 21.02.2022).
  11. Rasporyazhenie Pravitel'stva RF ot 18.12.2021 № 3711-р «Ob utverzhdenii Kontseptsii razvitiya v RF sistemy kompleksnoi reabilitatsii i abilitatsii invalidov, v tom chisle detei-invalidov, na period do 2025 goda» [Order of the Government of Russia from 18.12.2021 no. 3711-р “On approving the Guidelines of developing a system of comprehensive rehabilitation and habilitation for disabled people, including children, in Russia for the period until 2025”] [Web resource]. URL: https://www.zakonrf.info/rasporiazhenie-pravitelstvo-rf-3711-r-18122021 (Accessed 21.02.2022).
  12. Simashkova N.V., Makushkin E.V. Rasstroistva autisticheskogo spektra: diagnostika, lechenie, nablyudenie: Klinicheskie rekomendatsii (protokol lecheniya) [Autism spectrum disorders: diagnosing, treatment, observation: Clinical recommendations (treatment protocol)] [Web resource]. Kazan, 2015. 50 p. URL: http://autism.dety38.ru/protokol-lecheniya/ (Accessed 21.02.2022).
  13. Federal'nyi zakon «Ob osnovakh sotsial'nogo obsluzhivaniya grazhdan v Rossiiskoi Federatsii» ot 28.12.2013 № 442-ФЗ [Federal law “On basics of social services for the citizens of Russian Federation” from 28.12.2013 no. 442-ФЗ] [Web resource]. URL: http://www.consultant.ru/document/cons_doc_LAW_156558/ (Accessed 21.02.2022).
  14. Baxter A.J., Brugha T.S., Erskine H.E. et al. The epidemiology and global burden of autism spectrum disorders. Psychological medicine, 2015, vol. 45, no. 3, pp. 601–613. DOI:10.1017/S003329171400172X
  15. Autism spectrum disorders & other developmental disorders: From raising awareness to building capacity: Meeting Report (16–18 September 2013). Geneva: Publ. World Health Organization, 2013. P. 50. ISBN 978-92-4-150661-8.
  16. Robins D.L., Fein D., Barton M.L. et al. The Modified Checklist for Autism In Toddlers: An initial study investigating the early detection of autism and pervasive developmental disorders. Journal of autism and developmental disorders, 2001, vol. 31, no. 2, pp. 131–144. DOI:10.1023/a:1010738829569

Information About the Authors

Oxana Balandina, The Head of Mental Health Center, Federal State Budgetary Educational Institution of Higher Education «Privolzhsky Research Medical University» of the Ministry of Health of the Russian Federation, Nizhniy Novgorod, Russia, ORCID: https://orcid.org/0000-0002-3486-1162, e-mail: neurorazvitie@yandex.ru

Uliana Y. Gvozd, Lecturer, Department of Social Medicine and Health Organization, Federal State Budgetary Educational Institution of Higher Education «Privolzhsky Research Medical University» of the Ministry of Health of the Russian Federation, Nizhniy Novgorod, Russia, ORCID: https://orcid.org/0000-0002-3937-7847, e-mail: ulgvozd@yandex.ru

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