Problems of identification of sensory impairments and deafblindness in the nowadays children with congenital disabilities

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Abstract

This review provides an overview of the challenges of identifying dual sensory impairment in children with congenital disabilities. The concept of deafblindness and the special needs of the group with hearing and visual impairments are reviewed. The difficulties of defining this condition due to the heterogeneity of this group are emphasized. The evolution of the etiology of sensory impairment, typical for recent decades, is described, due to the progress of medical science, which makes it possible to keep alive children with severe genetic pathologies and those born considerably prematurely. The characteristics of cerebral hearing and visual impairments, still insufficiently studied but coming to the forefront in terms of prevalence among children in developed countries, as well as the features of their identification are presented. The difficulties in the organization of psychological and pedagogical assessments of children with congenital dual sensory impairment and the interpretation of their results are considered. The conclusion about the importance of the functional approach in the assessment of sensory functions in children with congenital complex disabilities is formulated.

General Information

Keywords: deafblindness, severe multiple disabilities, cerebral visual impairment, central acoustic processing disorder, functional assessment of hearing and vision

Journal rubric: Psychology of Special and Inclusive Education

Article type: review article

DOI: https://doi.org/10.17759/jmfp.2023120402

Funding. The reported study is funded by International Foundation of Applied Disability Research (FIRAH).

Acknowledgements. The authors are grateful to the National Resource Center for Rare Disabilities (CRESAM, France), the Resource Center for Support of Persons with Deafblindness and their Families “Yaseneva Polyana” (Russia), the Interregional Public Charitable Organization “Community of DeafblindFamilies” and its Executive Director Kremneva Y.V. for their help in collecting the material.

Received: 19.09.2023

Accepted:

For citation: Khokhlova A.Y., Moreau C. Problems of identification of sensory impairments and deafblindness in the nowadays children with congenital disabilities [Elektronnyi resurs]. Sovremennaia zarubezhnaia psikhologiia = Journal of Modern Foreign Psychology, 2023. Vol. 12, no. 4, pp. 22–32. DOI: 10.17759/jmfp.2023120402. (In Russ., аbstr. in Engl.)

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Information About the Authors

Alina Y. Khokhlova, PhD in Psychology, Associate Professor, Moscow State University of Psychology and Education, Psychologist, the Resource Center Supporting Deafblind and their Family Members “Yaseneva Polyana”, Moscow, Russia, ORCID: https://orcid.org/0000-0001-8495-2823, e-mail: ehalina2@yahoo.com

Cédric Moreau, PhD in Education, Associate Professor, National superior institute of training and research for inclusive education, France, ORCID: https://orcid.org/0000-0003-2744-6849, e-mail: cedric.moreau@inshea.fr

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