Determinants of psychological well-being of people with HIV: Assessing the role of stigma and social support

14

Abstract

Context and relevance. The article presents an overview of contemporary international research on stigmatization of people with HIV infection and social support of HIV-infected people as determinants of psychological well-being of people with HIV infection. The article describes international experience in studying stigma of people with HIV, identifying three subcategories of stigma: social stigma (related to prejudice against people with HIV infection), health professionals’ stigma (prejudice and discrimination against patients diagnosed with HIV infection by health care providers) and self-stigma (negative beliefs and feelings, self-depreciation due to HIV diagnosis). Educational interventions to reduce HIV stigma are described. The role of social support in the psychological well-being of people with HIV is explored. Research on the psychological well-being of people living with HIV is presented. The concept of long-term success, developed by international researchers to improve long-term well-being among people living with HIV, is described. Objective. To analyze the understanding of the role of stigmatization and social support in the psychological well-being of HIV-infected people by modern foreign researchers. Conclusions. Stigmatization of HIV-infected people negatively affects their psychological well-being, while social support reduces the level of stigmatization in HIV-infected patients and increases their psychological well-being. Further studies of the determinants of psychological well-being of HIV-infected people in Russian-speaking samples are promising for further research. The data presented in this article can be used in planning research aimed at studying stigma, social support and psychological well-being among people with HIV.

 

General Information

Keywords: stigmatization, psychological well-being, social support, HIV infection

Journal rubric: Medical Psychology

Article type: review article

DOI: https://doi.org/10.17759/jmfp.2025140215

Funding. The publication was prepared within the framework of the Academic Fund Program at HSE University (grant № 25-00-033 «Development of psychosomatic research in Russia»).

Acknowledgements. The author thanks her scientific supervisor A. A. Zolotareva for valuable comments.

Received 26.09.2024

Accepted

Published

For citation: Koreneva, E.V. (2025). Determinants of psychological well-being of people with HIV: Assessing the role of stigma and social support. Journal of Modern Foreign Psychology, 14(2), 153–160. (In Russ.). https://doi.org/10.17759/jmfp.2025140215

© Koreneva E.V., 2025

License: CC BY-NC 4.0

References

  1. Любаева, Е.В., Ениколопов, С.Н. (2011). Роль индивидуальных психологических характеристик пациентов в формировании приверженности терапии туберкулеза и ВИЧ. Консультативная психология и психотерапия, 19(2), 111—127. URL: https://psyjournals.ru/journals/cpp/archive/2011_n2/47092 (дата обращения: 16.06.2025).
    Lubaeva, E.V., Enikolopov, S.N. (2011). The role of individual psychological characteristics of patients in developing of adherence to tuberculosis and HIV therapy. Counseling Psychology and Psychotherapy, 19(2), 111—127. (In Russ.). URL: https://psyjournals.ru/journals/cpp/archive/2011_n2/47092 (viewed: 16.06.2025).
  2. Adekoya, P., Lannap, F.D., Ajonye, F.A., Amadiegwu, S., Okereke, I., Elochukwu, C., Aruku, C.A., Oluwaseyi, A., Kumolu, G., Ejeh, M., Olutola, A. O., Magaji, D. (2024). Experiences of stigmatization and discrimination in accessing health care services among people living with HIV (PLHIV) in Akwa Ibom State, Nigeria. HIV/AIDS-Research and Palliative Care, 16, 45—58. https://doi.org/10.2147/HIV.S447551
  3. Arias-Colmenero, T., Pérez-Morente, M.Á., Ramos-Morcillo, A.J., Capilla-Díaz, C., Ruzafa-Martínez, M., Hueso-Montoro, C. (2020). Experiences and attitudes of people with HIV/AIDS: A systematic review of qualitative studies. International Journal of Environmental Research and Public Health, 17(2), Article 639. https://doi.org/10.3390/ijerph17020639
  4. Bennett, B.L., Puhl, R.M. (2023). Diabetes stigma and weight stigma among physicians treating type 2 diabetes: Overlapping patterns of bias. Diabetes research and clinical practice, 202, Article 110827. https://doi.org/10.1016/j.diabres.2023.110827
  5. Brandelli Costa, A., Martins da Silva, M., Wiehe Chaves, L., Gelain, M., Graeff Bins-Ely, I., Alckmin-Carvalho, F., Wendt, G.W. (2024). General and healthcare-related HIV stigma among cisgender Brazilian women: The role of socioeconomic vulnerability. HIV Research & Clinical Practice, 25(1), Article 2361179. https://doi.org/10.1080/25787489.2024.2361179
  6. Brener, L., Broady, T., Cama, E., Hopwood, M., de Wit, J.B.F., Treloar, C. (2020). The role of social support in moderating the relationship between HIV centrality, internalised stigma and psychological distress for people living with HIV. AIDS Care, 32(7), 850—857. https://doi.org/10.1080/09540121.2019.1659914
  7. Chambers, L.A., Rueda, S., Baker, D.N., Wilson, M.G., Deutsch, R., Raeifar, E., Rourke, S.B., Stigma Review Team (2015). Stigma, HIV and health: A qualitative synthesis. BMC Public Health, 15, Article 848. https://doi.org/10.1186/s12889-015-2197-0
  8. Dalmida, S.G., Koenig, H.G., Holstad, M.M., Wirani M.M. (2013). The psychological well-being of people living with HIV/AIDS and the role of religious coping and social support. The International Journal of Psychiatry in Medicine, 46(1), 57—83. https://doi.org/10.2190/PM.46.1.e
  9. Ebrahimi, H., Atashzadeh Shoorideh, F., Reza Sohrabi, M., Ebrahimi, M., Hosseini, M. (2024). An analysis of approaches to reduction of HIV stigma across the world through educational interventions: A scoping review. Investigación y Educación en Enfermería, 42(1), Article e06. https://doi.org/10.17533/udea.iee.v42n1e06
  10. Elford, J., Ibrahim, F., Bukutu, C., Anderson, J. (2008). HIV-related discrimination reported by people living with HIV in London, UK. AIDS and Behavior, 12(2), 255—264. https://doi.org/10.1007/s10461-007-9344-2
  11. Emlet, C.A. (2006). «You're awfully old to have this disease»: Experiences of stigma and ageism in adults 50 years and older living with HIV/AIDS. The Gerontologist, 46(6), 781—790. https://doi.org/10.1093/geront/46.6.781
  12. Farber, E.W., Bhaju, J., Campos, P.E., Hodari, K.E., Motley, V.J., Dennany, B.E., Yonker M.E., Sharma, S.M. (2010). Psychological well-being in persons receiving HIV-related mental health services: The role of personal meaning in a stress and coping model. General Hospital Psychiatry, 32(1), 73—79. https://doi.org/10.1016/j.genhosppsych.2009.09.011
  13. Fekete, E.M., Williams, S.L., Skinta, M.D. (2018). Internalised HIV-stigma, loneliness, depressive symptoms and sleep quality in people living with HIV. Psychology & Health, 33(3), 398—415. https://doi.org/10.1080/08870446.2017.1357816
  14. Goffman, E. Stigma: Notes on the management of spoiled identity. Englewood Cliffs: Prentice-Hall Inc., 1963.
  15. Hedge, B., Devan, K., Catalan, J., Cheshire, A., Ridge, D. (2021). HIV-related stigma in the UK then and now: To what extent are we on track to eliminate stigma? A qualitative investigation. BMC Public Health, 21, Article 1022. https://doi.org/10.1186/s12889-021-11000-7
  16. Herbert, M.S., Wooldridge, J.S., Paolillo, E.W., Depp, C.A., Moore, R.C. (2022). Social contact frequency and pain among older adults with HIV: An ecological momentary assessment study. Annals of Behavioral Medicine, 56(2), 168—175. https://doi.org/10.1093/abm/kaab037
  17. Iovino, P., Vellone, E., Cedrone, N., Riegel, B. (2023). A middle-range theory of social isolation in chronic illness. International Journal of Environmental Research and Public Health, 20(6), Article 4940. https://doi.org/10.3390/ijerph20064940
  18. Ironson, G., Henry, S.M., Gonzalez, B.D. (2020). Impact of stressful death or divorce in people with HIV: A prospective examination and the buffering effects of religious coping and social support. Journal of Health Psychology, 25(5), 606—616. https://doi.org/10.1177/1359105317726151
  19. Lazarus, J.V., Wohl, D.A., Cascio, M., Guaraldi, G., Rockstroh, J., Hodson, M., Richman, B., Brown, G., Anderson, J., Fuster-RuizdeApodaca, M.J. (2023). Long-term success for people living with HIV: A framework to guide practice. HIV Medicine, 24(S2), 8—19. https://doi.org/10.1111/hiv.13460
  20. Lee, R.S., Kochman, A., Sikkema, K. J. (2002). Internalized stigma among people living with HIV-AIDS. AIDS and Behavior, 6, 309—319. https://doi.org/10.1023/A:1021144511957
  21. Lim, H., Son, H., Han, G., Kim, T. (2024). Stigma and quality of life in lung cancer patients: The mediating effect of distress and the moderated mediating effect of social support. Asia-Pacific Journal of Oncology Nursing, 11(6), Article 100483. https://doi.org/10.1016/j.apjon.2024.100483
  22. Makurumidze, G., Ross, J.L., Shah, R., Dacarett-Galeano, D., Artz, J., Cohen, M.A.A. (2022). HIV stigma. In J.A. Bourgeois, M.A.A. Cohen, G. Makurumidze (Eds.), HIV psychiatry: A practical guide for clinicians (pp. 45—66). Cham: Springer. https://doi.org/10.1007/978-3-030-80665-1_3
  23. Marcus, J.L., Leyden, W.A., Alexeeff, S.E., Anderson, A.N., Hechter, R.C., Hu, H., Lam, J.O., Towner, W.J., Yuan, Q., Horberg, M.A., Silverberg, M.J. (2020). Comparison of overall and comorbidity-free life expectancy between insured adults with and without HIV infection, 2000—2016. JAMA Network Open, 3(6), Article e207954. https://doi.org/10.1001/jamanetworkopen.2020.7954
  24. Mashallahi, A., Rahmani, F., Gholizadeh, L., Ostadtaghizadeh, A. (2021). Nurses' experience of caring for people living with HIV: A focused ethnography. International Nursing Review, 68(3), 318—327. https://doi.org/10.1111/inr.12667
  25. Mbonu, N.C., van den Borne, B., De Vries, N.K. (2009). Stigma of people with HIV/AIDS in Sub‐Saharan Africa: A literature review. Journal of Tropical Medicine, 2009(1), Article 145891. https://doi.org/10.1155/2009/145891
  26. Millen, N., Walker, C. (2001). Overcoming the stigma of chronic illness: Strategies for normalisation of a ‘spoiled identity’. Health Sociology Review, 10(2), 89—97. https://doi.org/10.5172/hesr.2001.10.2.89
  27. Mireles, L., Horvath, K.J., Guadamuz, T.E., Waratworawan, W., Kongjareon, Y., Meyers-Pantele, S.A. (2023). The moderating role of social support and HIV stigma on the association between depression and ART adherence among young Thai men who have sex with Men. AIDS and Behavior, 27(9), 2959—2968. https://doi.org/10.1007/s10461-023-04018-y
  28. Muwonge, C.M., Kembabazi, A., Nakalema, G., Ekatushabe, M., Kwarikunda, D., Kibedi, H., Ssenyonga, J. (2022). Psychological well-being among young people living with HIV: Role of social support, self-esteem and socio-demographic variables. In: L. Schutte, T. Guse, M.P. Wissing (Eds.), Embracing well-being in diverse African contexts: Research perspectives (pp. 171—194). Cham: Springer. https://doi.org/10.1007/978-3-030-85924-4_8
  29. Onu, D.U., Ugwu, S.S., Nnadozie, E.E., Orjiakor, C.T. (2023). Stigma affects the health-related quality of life of people living with HIV by activating posttraumatic stress symptoms. Journal of Clinical Psychology in Medical Settings, 30(3), 561—569. https://doi.org/10.1007/s10880-022-09928-y
  30. Panza, G.A., Puhl, R.M., Taylor, B.A., Zaleski, A.L., Livingston, J., Pescatello, L.S. (2019). Links between discrimination and cardiovascular health among socially stigmatized groups: A systematic review. PloS ONE, 14(6), Article e0217623. https://doi.org/10.1371/journal.pone.0217623
  31. Rivera-Picón, C., Benavente-Cuesta, M.H., Quevedo-Aguado, M.P., Rodríguez-Muñoz, P.M. (2022). Differences in resilience, psychological well-being and coping strategies between HIV patients and diabetics. Healthcare, 10(2), Article 266. https://doi.org/10.3390/healthcare10020266
  32. Rzeszutek, M., Gruszczyńska, E., Firląg-Burkacka, E. (2019). Socio-medical and personality correlates of psychological well-being among people living with HIV: A latent profile analysis. Applied Research Quality Life, 14(4), 1113—1127. https://doi.org/10.1007/s11482-018-9640-1
  33. Rzeszutek, M., Gruszczyńska, E., Pięta, M., Malinowska, P. (2021). HIV/AIDS stigma and psychological well-being after 40 years of HIV/AIDS: A systematic review and meta-analysis. European journal of Psychotraumatology, 12(1), Article 1990527. https://doi.org/10.1080/20008198.2021.1990527
  34. Sahoo, S.S., Khanna, P., Verma, R., Verma, M., Mahapatra, S., Parija, P.P., Panda, U.K. (2020). Social stigma and its determinants among people living with HIV/AIDS: A cross-sectional study at ART center in North India. Journal of Family Medicine and Primary Care, 9(11), 5646—5651. https://doi.org/10.4103/jfmpc.jfmpc_981_20
  35. Schuster, M.A., Collins, R., Cunningham, W.E., Morton, S.C., Zierler, S., Wong, M., Tu, W., Kanouse, D.E. (2005). Perceived discrimination in clinical care in a nationally representative sample of HIV‐infected adults receiving health care. Journal of General Internal Medicine, 20(9), 807—813. https://doi.org/10.1111/j.1525-1497.2005.05049.x
  36. Skalski-Bednarz, S.B., Toussaint, L.L., Surzykiewicz, J. (2024). Beyond HIV shame: Effects of self-forgiveness in improving mental health in HIV-positive individuals in Poland. Journal of Religion and Health, 63(6), 4232—4254. https://doi.org/10.1007/s10943-024-02084-7
  37. Stangl, A.L., Earnshaw, V.A., Logie, C.H., van Brakel, W., Simbayi, L.C., Barré, I., Dovidio, J.F. (2019). The health stigma and discrimination framework: A global, crosscutting framework to inform research, intervention development, and policy on health-related stigmas. BMC Medicine, 17, Article 31. https://doi.org/10.1186/s12916-019-1271-3
  38. Sun, W., Wu, M., Qu, P., Lu, C., Wang, L. (2014). Psychological well-being of people living with HIV/AIDS under the new epidemic characteristics in China and the risk factors: A population-based study. International Journal of Infectious Diseases, 28, 147—152. https://doi.org/10.1016/j.ijid.2014.07.010
  39. UNAIDS. (2024). Global HIV & AIDS statistics — Fact Sheet. URL: https://www.unaids.org/en/resources/fact-sheet (viewed: 19.09.2024).
  40. Vázquez, C., Hervás, G., Rahona, J.J., Gomez, D. (2009). Psychological well-being and health. Contributions of positive psychology. Annuary of Clinical and Health Psychology, 5, 15—28. URL: https://hdl.handle.net/11441/132719 (viewed: 16.06.2025).
  41. WHO. (2022). Global health sector strategies on, respectively, HIV, viral hepatitis and sexually transmitted infections for the period 2022—2030. URL: https://www.who.int/publications/i/item/9789240053779 (viewed: 19.09.2024).
  42. Zhang, Y., Chai, C., Xiong, J., Zhang, L., Zheng, J., Ning, Z., Wang, Y. (2023). The impact of anxiety, depression, and social support on the relationship between HIV-related stigma and mental health-related quality of life among Chinese patients: A cross-sectional, moderate-mediation study. BMC Psychiatry, 23, Article 818. https://doi.org/10.1186/s12888-023-05103-1

Information About the Authors

Elena V. Koreneva, Postgraduate Student, School of Psychology, Faculty of Social Sciences, National Research University Higher School of Economics, Moscow, Russian Federation, ORCID: https://orcid.org/0009-0008-1372-6210, e-mail: elenakoreneva25@gmail.com

Metrics

 Web Views

Whole time: 65
Previous month: 22
Current month: 43

 PDF Downloads

Whole time: 14
Previous month: 3
Current month: 11

 Total

Whole time: 79
Previous month: 25
Current month: 54