The Lived Experience with Inclusive Education: A Case Study of a Teenager with Diabetes, His Mother, and His Teacher 152
PhD student (Special pedagogy), Mgr., associate professor, The Institute of Special Education Studies, Palacky University Olomouc, Olomouc, Czechia
PhD, associate professor, The Institute of Special Education Studies, Palacky University Olomouc, Olomouc, Czechia
The project aimed to understand the lived experience with inclusive education in the case of a secondary school student with diabetes mellitus type 1 (DM1), his mother and
a teacher. Data collected by semi-structured interviews were analyzed by van Manen's thematic analyses of lived experience, whereas three significant themes were identified. Firstly, the quality of communication between school and parents; secondly, the level of empathy, understanding and helpfulness, and thirdly, collaboration between colleagues. Research shows the necessity to expand the education of teachers on the issue of special needs of learners with chronic diseases and extend the educational goals to psychological factors associated with their increased emotional burden. Mutual collaboration of all participants and self-reflection of teachers, supporting good peer relationships and positive school climate is essential.
Keywords: inclusive education, disability, special educational needs, lived experience, chronic disease, diabetes, risk factors, hidden disability
Column: Applied research
Funding. This research was supported and financed from the project “Výzkum inkluze osob se speciálními potřebami” [Research of inclusion of persons with special needs]: IGA_PdF_2020_028
Artiles A.J., Harris-Murri N., Rostenberg D. Inclusion as
social justice: Critical notes on discourses, assumptions, and the road ahead.
Theory into Practice, 2006, vol. 45, no. 3,
pp. 260–268. DOI: 10.1207/s15430421tip4503_8
Bunnin N., You J. The Blackwell Dictionary of Western
Philosophy. Oxford: Wiley-Blackwell, 2004. 450p. DOI:
Cook B.G. A comparison of teachers' attitudes toward their
included students with mild and severe disabilities. The Journal of Special
Education, 2001, vol. 34, no. 4,
pp. 203–213. DOI: 10.1177/002246690103400403
Cresswell J.W. Educational research: Planning, conducting,
and evaluating quantitative and qualitative research. NY: Prentice Hall, 2002.
Gregorz S., Smogorzewska J., Karwowski M. Academic
achievement of students without special educational needs in inclusive
classrooms. A meta-analysis. Educational Research Review
, 2017, vol. 21,
pp. 33–54. DOI:
Lei X. L., Kantor J. Study on family cohesion and
adaptability of caregivers of children with ASD and its influencing factors.
Social Psychology and Society
, 2020, vol. 11, no. 3,
pp. 70–85. DOI:
Malik J.A., Aslam N. Distress and Quality of Life.
In A.M. Delamater, D.G. Marrero (eds.), Behavioral Diabetes: Social
Ecological Perspectives for Pediatric and Adult Populations. Cham:
Springer, 2020, pp. 33–48. DOI: 10.1007/978-3-030-33286-0
Mariga L., McConkey R., Meyezwa H. Inclusive
education in low-income countries:
A resource book for teacher educators, parent trainers and community
development. South Africa: Disabilities Innovations Africa. 2014. 142 p.
Michalík J., Chrastina J., Maštalíř J. et al. Assistant
teachers for pupils with special educational needs in the Czech republic –
presentation of selected particular research results. Social Welfare
, 2015, vol. 1, no. 5, pp. 48–57. URL:
Mikurcikova L. Rozdiely v komunikačných a sociálnych
s ťažkým mentálnym postihnutím v edukačnom procese na špeciálnych základných
školách a v domovoch sociálnych služieb [Differences in communicative and
social interactions of pupils with serious intellectual disabilities in
educational process at special elementary schools and social services homes].
Špeciálny pedagóg=Special Pedagogue, 2012, vol. 2, no. 2, pp. 14–30.
(Accessed: 17.06.2021). (In Czech).
Miovský M. Kvalitativní přístup a metody v psychologickém
výzkumu [Qualitative approach and methods in psychological research]. Prague:
Grada Publishing. 2006. 332 p. (In Czech).
Mitchell D. What really works in special and inclusive
education: Using evidence-based teaching strategies. 3rd ed. London:
Taylor&Francis Ltd, 2020. 460 p.
Moore S. One without the other: Stories of unity
through diversity and inclusion. Vol. 1. Winnipeg: Portage&Main Press.
2016. 90 p.
Mosin I.S. The DiaPsy mobile app for improving
self-control of diabetes and psychological support for people with type 1
diabetes. Modelling and Data Analysis, 2020,
vol. 10, no. 1, pp. 166–175. DOI: 10.17759/mda.2020100111.
Murdoch D.C. Lived experience and inclusive education: an
exploration of the phenomenon of inclusive education in the life world of young
people, parents and teachers. PhD Dissertation. UK: The University of
Edinburgh, 2019. URL: http://hdl.handle.net/ 1842/36034 (Accessed:
Musilová M. Případová studie jako součást
pedagogické praxe [Case study as a part of teaching practice]. 2nd ed.
Olomouc: Palacký University, 2003. 42 p. (In Czech).
Northam E. Distress and quality of life. In A.M.
Delamater, D.G. Marrero (eds.), Behavioral Diabetes: Social Ecological
Perspectives for Pediatric and Adult Populations. Cham: Springer, 2020, pp.
79–90. DOI: 10.1007/978-3-030-33286-0.
Okyere C., Aldersey H.M., Lysaght R. The experiences of
children with intellectual and developmental disabilities in inclusive schools
in Accra, Ghana. African Journal of Disability, 2019, no. 8, pp. 1–11.
Patton M.Q. Qualitative research and evaluation methods.
3rd ed. NY: SAGE Publications Inc., 2002. 832 p.
Pham Y.K., Murray C., Good R.H. Grades, behavior, and
engagement of adolescents with disabilities: An examination of social
relationships among students, parents, and teachers. School Community
Journal, 2018, vol. 28, no. 2, pp. 47–62. URL:
Sedláčková D. Pupils with physical disabilities and their
experience with inclusive education: Literature review. In 5th International
Multidisciplinary Scientific Conference on Social Sciences and Arts, 2018,
no. 5, Science and Society, Issue 3.5. Sofia: STEF92 Technology Ltd. Pp.
673–680. DOI: 10.5593/sgemsocial12018/3.5
Sedláčková D. Pupils with physical disabilities and their
experience with inclusive education: review of Czech sources. 5th
International Multidisciplinary Scientific Conference on Social Sciences and
Arts, 2018, no. 5, Science and Society Issue 3.5. Sofia: STEF92 Technology
Ltd. Pp. 681– 688. DOI: 10.5593/sgemsocial12018/3.5
Van Manen M. Researching lived experience. Human science
for the action sensitive pedagogy, 2nd ed. Ontario: University of Western
Ontario, 1997. 224 p. DOI: 10.4324/9781315421056
Van Vleet M., Helgeson V.S. Friend and peer relationships
among youth with type 1 diabetes. In A.M. Delamater, D.G. Marrero (eds.),
Behavioral Diabetes: Social Ecological Perspectives for Pediatric and Adult
Populations. Cham: Springer, 2020. Pp. 121–138. DOI:
Terry G., Hayfield N., Clarke V. et al. Thematic analyses.
In W. Stainton Rogers, C. Willig (eds.), The SAGE Handbook of Qualitative
Research in Psychology. London: SAGE Publications, 2017. Pp. 17–37.
Watt L. (Un)safe at school: Parents’ work of securing
nursing care and coordinating School Health Support Services delivery for
children with diabetes in Ontario schools. Journal of Sociology and Social
Welfare, 2015, vol. 42, no. 2, Article 7, pp. 103–126.
Zilcher L., Svoboda Z. Inkluzivní vzdělávání: efektivní
vzdělávání všech žáků [Inclusive education: efective education of all
learners]. Prague: Grada, 2019. 216 p.