Study of the Child Autism’s Impact on a Family Budget

128

Abstract

This article examined the effect of presence of a child with autism spectrum disorders (ASD) on the family budget. The article presents the effect on the structure of expenses, reveals which main factors the budget depend. The article considers the results of the response of 629 respondents from 43 regions of the Russian Federation and the Republic of Belarus to one of the questionnaire questions (more than 20 items in total): «You have a child with ASD in your family. How does this affect the family budget»? 8.3% of respondents do not note any impact of the child’s autism on the family budget; 46.4% («does not influence» and «affects tolerably») do not consider this impact as negative, 53.6% — as negative to varying degrees (including «negative» — 24.5%, «very negative» — 16.8%, «catastrophically negative» — 12.5%). It has been shown that the dependence of the negative impact on the economy of a family in which there is a child with autism is weak, although statistically significant (polychoric indicator of the relationship K = 0.12, P < 0.05) depends on the region of residence, and the economic well-being of the region (donor/recipient) is more affected, but the quality and range of services provided in the region to children with ASD and the families in which they grow up. The need to develop the expert community and state certification of support services for children with ASD and the quality of their provision was noted.

General Information

Keywords: autism, autism spectrum disorders, family with a child with ASD, economy, family budget

Journal rubric: Research of ASD

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2022200304

Funding. Funding was provided as part of the state task of the RANEPA for 2021 on the topic of research work 11.18 «Develop- ment of a methodology for supporting families with children with autism spectrum disorders (ASD)».

Received: 08.09.2022

Accepted:

For citation: Morozova S.S., Tarasova N.V. Study of the Child Autism’s Impact on a Family Budget. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2022. Vol. 20, no. 3, pp. 39–45. DOI: 10.17759/autdd.2022200304. (In Russ., аbstr. in Engl.)

References

  1. Danilov D. Dotatsionnye regiony Rossii i donory: spisok v 2022 godu [Subsidized regions of Russia and donors: list in 2022] [Elektronnyi resurs]. Reitingi & Novosti [Ratings & News]. URL: https://top-rf.ru/places/564-dotatsionnye- regiony.html (Accessed 10.08.2022). (In Russ.).
  2. Makold R. Nash opyt v oblasti autizma: osnovanie instituta v N’yu-Dzhersi [Our experience regarding autism: estabilishing an institute in New Jersey]. In Morozov S.A. (ed.) Organizatsiya psikhologo-pedagogicheskoi i mediko- sotsial’noi pomoshchi litsam s rasstroistvami autisticheskogo spektra: Materialy mezhdunarodnoi nauchno-prakticheskoi konferentsii [Organizing psychological, pedagogic, medical and social support for people with autism spectrum disorders: Proceedings of the international scientific and practical conference] [Moscow, October 1—3, 2009]. Samara: Kniga., 2009. pp. 36—56. ISBN 978-5-904818-01-2
  3. Manelis N.G., Volgina N.N., Nikitina Yu.V. et al. Organizatsiya raboty s roditelyami detei s rasstroistvami autisticheskogo spektra: Metodicheskie rekomendatsii [Organizing work with parents of autistic children]. Moscow: Publ. Federal Resource Center of the Moscow State University of Psychology and Education, 2017. 94 p. ISBN 978-5-94051-164-9.
  4. Morozov S.A., Morozova S.S., Morozova T.I. Issledovanie otnosheniya roditelei k osobennostyam razvitiya svoikh detei s autizmom [The Study of Parent Attitude to the Developmental Features of Children with Autism]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2021, vol. 19, no. 4, pp. 32—39. DOI:10.17759/autdd.2021190404
  5. Morozov S.A., Chigrina S.G. Issledovanie osobennostei semei, v kotorykh rastut deti s autizmom [Research of Characteristics of Families Raising Children with ASD]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2022, vol. 20, no. 2, pp. 78—84. DOI:10.17759/autdd.2022200209
  6. Nazarkina S.I., Tsarev A.M. Organizatsiya soprovozhdeniya sem’i i rebenka v g. Pskove [Organizing support for family and child in Pskov]. In Sokolova V.M. (ed.) Sluzhba soprovozhdeniya sem’i i rebenka: Innovatsionnyi opyt: Metodicheskii sbornik [Service of support for family and child: Innovative experience: Resources]. Vladimir: Publ. Tranzit-Iks, 2010. Pp. 5—18. ISBN 978-5-8311-0474-.
  7. Trudovye resursy, zanyatost’ i bezrabotitsa [Labor force, employment and unemployment] [Elektronnyi resurs]. Federal’naya sluzhba gosudarstvennoi statistiki [Federal State Statistics Service]. URL: https://rosstat.gov.ru/labour_ force (Accessed: 10.08.2022). (In Russ.).
  8. Tsarev A.M. Organizatsiya psikhologo-pedagogicheskogo soprovozhdeniya lits s rasstroistvami autisticheskogo spektra (na primere uchrezhdenii g. Pskova) [Organizing psychological and pedagogic support for autistic people (example of Pskov city facilities)]. In Morozov S.A. (ed.) Organizatsiya psikhologo-pedagogicheskoi i mediko-sotsial’noi pomoshchi litsam s rasstroistvami autisticheskogo spektra: Materialy mezhdunarodnoi nauchno-prakticheskoi konferentsii [Organizing psychological, pedagogic, medical and social support for people with autism spectrum disorders: Proceedings of the international scientific and practical conference] [Moscow, October 1—3, 2009]. Moscow, 2009. Pp. 104—143.
  9. American Psychiatric Association. Diagnostic and statistical manual of mental disorders, Fifth Edition (DSM-5). Washington. DC: APA, 2013. 947 p.
  10. Brisini K.S.-C., Solomon D.H. Relational Uncertainty and Taking Conflict Personality: Comparing Parents of Children with and without Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 2020, vol. 50, no. 12, pp. 4401—4411. DOI:10.1007/s10803-020-04492-6
  11. Durkin M.S., Wolfe B.L. Trends in Autism Prevalence in the U.S.: A Lagging Economic Indicator? Journal of Autism and Developmental Disorders, 2020, vol. 50, no. 3, pp. 1095—1096. DOI:10.1007/s10803-019-04322-4
  12. Henneberry E., Lamy M., Dominick K.C. et al. Decades of Progress in the Psychopharmacology of Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 2021, vol. 51, no. 12, pp. 4370—4394. DOI:10.1007/s10803- 021-05237-9
  13. International Classification of Diseases 11th Revision (ICD-11) for Mortality and Morbidity Statistics [Elektronnyi resurs]. // World Health Organization. URL: https://icd.who.int/dev11/l-m/en (Accessed: 10.08.2022)
  14. Järbrink K., Fombonne E., Knapp M. Measuring the Parental, Service and Cost Impacts of Children with Autistic Spectrum Disorders: the Pilot Study. Journal of Autism and Developmental Disorders, 2003, vol. 330, no. 4, pp. 395—402. DOI:10.1023/a:1025058711465
  15. Rogge N., Janssen J. The Economic Cost of Autism Spectrum Disorder: A Literature Review. Journal of Autism and Developmental Disorders, 2019, vol. 49, no. 7, pp. 2873—2900. DOI:10.1007/s10803-019-04014-z
  16. Tsiplova K., Ungar W.J., Flanagan H.E. et al. Types of Services and Costs of Program for Preschoolers with Autism Spectrum Disorder Across Sectors: A Comparison of Two Canadian Provinces. Journal of Autism and Developmental Disorders, 2019, vol. 49, no. 6, pp. 2492—2508. DOI:10.1007/s10803-019-03993-3
  17. Zavekas S.H., Grosse S.D., Lavelle T.A. et al. Healthcare Costs of Pediatrics Autism Spectrum Disorder in the United States, 2003—2015. Journal of Autism and Developmental Disorders, 2021, vol. 51, no. 8, pp. 2950—2958.

Information About the Authors

Svetlana S. Morozova, methodologist, The Regional Community Charity Organization «Society for Autistic Children Care “Dobro”», Presidential Russian Academy of National Economy and Public Administration (RANEPA);, Presidential Russian Academy of National Economy and Public Administration (RANEPA), Moscow, Russia, ORCID: https://orcid.org/0000-0002-4483-1477, e-mail: sv-morozova@yandex.ru

Natalia V. Tarasova, director of the Center of Personalization and Socialization of Children Education, Federal Institute of Educa- tion Development, Russian Presidential Academy of National Economy and Public Administration (RANEPA), Moscow, Russia, ORCID: https://orcid.org/0000-0002-3344-4711, e-mail: n_v_tarasova@mail.ru

Metrics

Views

Total: 473
Previous month: 19
Current month: 6

Downloads

Total: 128
Previous month: 8
Current month: 7