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Clinical Psychology and Special Education
2021. Vol. 10, no. 2, 183–220
https://doi.org/10.17759/cpse.2021100211
ISSN: 2304-0394 (online)

The Lived Experience with Inclusive Education: A Case Study of a Teenager with Diabetes, His Mother, and His Teacher

 
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Abstract

The project aimed to understand the lived experience with inclusive education in the case of a secondary school student with diabetes mellitus type 1 (DM1), his mother and a teacher. Data collected by semi-structured interviews were analyzed by van Manen's thematic analyses of lived experience, whereas three significant themes were identified. Firstly, the quality of communication between school and parents; secondly, the level of empathy, understanding and helpfulness, and thirdly, collaboration between colleagues. Research shows the necessity to expand the education of teachers on the issue of special needs of learners with chronic diseases and extend the educational goals to psychological factors associated with their increased emotional burden. Mutual collaboration of all participants and self-reflection of teachers, supporting good peer relationships and positive school climate is essential.

General Information

Keywords: inclusive education, disability, special educational needs, lived experience, chronic disease, diabetes, risk factors, hidden disability

Journal rubric: Applied Research

OpenAlex citations: 6

OpenAlex trends: Family and Disability Support Research, Childhood Cancer Survivors' Quality of Life, Down syndrome and intellectual disability research

Information about the work in OpenAlex

Number of citations: 6

Topics

Family and Disability Support Research

This cluster of papers explores the impact of parenting stress on caregivers and families of children with developmental disabilities, particularly focusing on autism spectrum disorder. It delves into the challenges faced by parents, the well-being of caregivers, family quality of life, coping strategies, and support services available to address these stressors.

Number of works: 121070  |  Total number of citations: 1018944

Topic detailsв OpenAlex

Childhood Cancer Survivors' Quality of Life

This cluster of papers focuses on pediatric cancer, survivorship, and the assessment of health-related quality of life in children and adolescents. It includes research on the Pediatric Quality of Life Inventory, the Childhood Cancer Survivor Study, pediatric palliative care, psychosocial outcomes, and long-term effects on survivors. The papers also cover topics such as parent-proxy reports, posttraumatic stress symptoms, and neurocognitive outcomes in pediatric cancer patients.

Number of works: 83323  |  Total number of citations: 949761

Topic detailsв OpenAlex

Down syndrome and intellectual disability research

This cluster of papers focuses on the prevalence, impact, and associated health disparities of Down syndrome and intellectual disability. It covers topics such as genetic counseling, neurodevelopmental delay, mental health, and quality of life for individuals with Down syndrome. The research also delves into the neurological complications and disparities in health care access faced by this population.

Number of works: 29440  |  Total number of citations: 402726

Topic detailsв OpenAlex

Work details in OpenAlex

Article type: review article

DOI: https://doi.org/10.17759/cpse.2021100211

Funding. This research was supported and financed from the project “Výzkum inkluze osob se speciálními potřebami” [Research of inclusion of persons with special needs]: IGA_PdF_2020_028

Published

For citation: Sedlackova, D., Kantor, J. (2021). The Lived Experience with Inclusive Education: A Case Study of a Teenager with Diabetes, His Mother, and His Teacher. Clinical Psychology and Special Education, 10(2), 183–220. https://doi.org/10.17759/cpse.2021100211

© Sedlackova D., Kantor J., 2021

License: CC BY-NC 4.0

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Information About the Authors

Dagmar Sedlackova, PhD, PhD student (Special pedagogy), Mgr., associate professor, The Institute of Special Education Studies, Palacky University Olomouc, Olomouc, Czechia, ORCID: https://orcid.org/0000-0001-7221-3724, e-mail: dagmar.sedlackova01@upol.cz

Jiri Kantor, PhD, associate professor, The Institute of Special Education Studies, Palacky University Olomouc, Olomouc, Czechia, ORCID: https://orcid.org/0000-0001-6016-3408, e-mail: jiri.kantor@upol.cz

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