Модели организации комплексной помощи детям с расстройствами аутистического спектра на Западе ^{* 1517}

Первые сообщества по проблемам аутизма были основаны в Англии и Дании в 1962 году, а впоследствии и во многих других странах. С того времени достигнуты ошеломительные результаты в осознании проблемы и в раз¬витии медицинских, образовательных и социальных услуг для детей с аутизмом и их семей. В настоящее время исследования направлены на углубление понимания расстройств аутистического спектра и на информирование практико-ориентированных специалистов и профильных правительственных и неправительственных организаций о необходимости создания комплексных структур для поддержки людей с аутистическими расстройствами и их семей, а также для развития идеи совершенствования услуг такого рода. В статье проанализированы публи¬кации последних лет, относящиеся к ведущим тенденциям в развитии системы помощи детям с расстройствами аутистического спектра на Западе. Представлен краткий обзор последних исследований нескольких ключевых аспектов аутизма: экономического, распространенности, диагностики, коморбидных расстройств и т.д. Обзор может быть полезен представителям законодательных структур, специалистам и родителям с точки зрения улучшения качества жизни людей с аутизмом.

* Перевод с английского Е.Ф. Шведовского

Ключевые слова: аутизм, расстройства аутистического спектра, распространенность, биомаркеры, диагноз, коморбидные состояния, образовательные условия, гетерогенность, вмешательства

Рубрика: Модели организации комплексной помощи

DOI: https://doi.org/10.17759/autdd.2016140405

1. Abi-Dargham A., Horga G. The search for imaging biomarkers in psychiatric disorders. Nature Medicine, 2016, epub: doi:10.1038/nm.4190 http://www.nature.com/nm/journal/vaop/ncurrent/full/nm.4190.html
2. Bancroft K. The Way We Are: Autism in 2012. London: The National Autistic Society, 2012.
3. Baron-Cohen S., Allison C., Williams J., Bolton P., Matthews F.E. (2009) Prevalence of autism-spectrum conditions: UK school-based population study. The British Journal of Psychiatry, 194(6), 2009, cc. 500—509.
4. Baxter A.J., Brugha T. Erskine H.E., Scheurer R.W., Vos T., Scott J.G. The epidemiology and global burden of autism spectrum disorders. Psychological Mediccine, 45(3), 2015, cc. 601—13.
5. Brian J., Doyle-Thomas K.A.R., Baribeau. D., Anagnostou E. Novel mechanisms and treatment approaches in autism spectrum disorder. Discovery medicine, 22(119), 2016, cc. 47—54.
6. Brugha T., Coope S-A., Gullon-Scott F.J., Fuller E., Ilic N., Ashtarikiani A., Morgan Z. Chapter 6: Autism Spectrum Disorder. In S. McManus, P. Bebbington, R. Jenkins, T. Brugha (eds.) Adults Psychiatric Morbidity Survey: Survey of Mental Health and Wellbeing, England, 2014, Health and Social Care Information Centre, 2016.
7. Bryn V., Aass H.S., Skjeldal O.H., Isaksen J., Saugstad O.D., Ormstad H. ‘Cytokine Pofile in Autism Spectrum Disorders. Molecular Neuroscience, 2016, e-pub: doi:10.1007/s12031-016-0847-z
8. Buescher A.V., Ciday Z., Knapp M., Mandell D.S. (2014) ‘Costs of autism spectrum disorders in the United Kingdome and the United States.’ JAMA Pediatrics, 168 (8), 2014, cc. 721—8.
9. Cheung C.H., Bedford R., Johnson M.H., Charman T., Gliga T. BASIS team Visual search performance in infants associates with later ASD diagnosis. Developmental Cognitive Neuroscience, 2016, e-pub. https://www.ncbi.nlm.nih.gov/pubmed/27769716
10. Christensen D.L., Baio J., Naarden Braun K, Van Bilder D., Charles J., et al. ‘Prevalence and characteristics of autism spectrum disorder among children aged 8 years — Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2012’ Surveillance Summaries, April 1, 2016, 65(3), 1—23. Centers for Desease Control and Prevention.
11. Emerson E., Baines, S. (2010) Estimated Prevalence of Autism among Adults with Learning Disabilities in England. Public Health, England, 2010. http://www.improvinghealthandlives.org.uk/uploads/doc/vid_8731_IHAL2010- 05Autism.pdf
12. Fein D., Barton M., Eigsti I.M., Kelley E., Naiglets L., et al. Optimal outcome in individuals with a history of autism. Journal of Child Psychology and Psychiatry, 54(2), 2013, cc. 195—205.
13. Grinker R.R. Unstrange Minds: Remapping the World of Autism. New York: Basic Books, 2007.
14. Happé F., Conway, J.R. Recent progress in understanding skills and impairments in social cognition. Current Opinion in Pediatrics, 28(6), 2016, cc. 736—742.
15. Happé F., Mansour H., Barret P., et al. Demographic and cognitive profile of individuals seeking a diagnosis of Autism Spectrum Disorder in adulthood. Journal of Autism and Developmental Disorders, 46(11), 2016, cc. 3469—3480.
16. Hategan A., Bourgeois J.A., Goldberg J. ‘Aging with autism spectrum disorder: an emerging public health.’ International Psychogeriatrics, 2016, e-publication: doi: 10.1017/S1041610216001599 https://www.ncbi.nlm.nih.gov/pubmed/27669633
17. Ide-Okochi A., Tadaka E. ‘A hybrid concept analysis of children of concern: Japanese healthcare professionals views of children at a high risk of developmental disability. BMC Pediatrics, 2016, e-pub.: http://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-016-0715-6
18. Jashar D.T., Brennan L.A., Barton M.L., Fein D. Cognitive and Adaptive Skills in Toddlers Who Meet Criteria for Autism in DSM-IV but not DSM-5. Cognitive and Adaptive Skills in Toddlers Who Meet Criteria for Autism in DSM-IV but not DSM-5.’ Journal of Autism and Developmental Disorders, 2016, e-pub: doi: 10.1007/s10803-016-2910-7 https://www.ncbi.nlm.nih.gov/pubmed/27628939
19. Kanner L. (1943) Autistic disturbances of affective contact. Nervous Child, 2, cc. 217—50.
20. Ketcheson L., Hauck, J. Ulrich D. (2016) ‘The effects of an early motor skill intervention on motor skills, levels of physical activity, and socialization in young children with autism spectrum disorders. A pilot study.’ Autism, 2016, pii: 1362361316650611. e-publication
21. Martinez-Murcia F.J., Lai M.C., Gorriz, J.M., Ramirez, J., Young, A.M. et al. On the brain structure heterogeneity of autism: Parsing out acquisition site effects with significance-weighted principal component analysis.’ Human Brain Mapping, 2016 http://onlinelibrary.wiley.com/doi/10.1002/hbm.23449/abstract
22. NAS (2016) The Autism Employment Gap: Too much information in the workplace. London: NAS, 2016.
23. NAS ‘What do today’s autism prevalence figures mean?’ 2016. http://www.autism.org.uk/get-involved/mediacentre/news/2016-09-29-prevalence-figures.aspx
24. Reid B. Great Expectations. London: The National Autistic Society, 2011.
25. Rosenblatt M. I Exist: Message from adults with autism in England. London: The National Autistic Society, 2008.
26. Ruzich E., Allison C., Smith P., Ring H., Auyeung B., Baron-Cohen S. (2016) ‘The Autism-Spectrum Quotient in Siblings of People with Autism.’ Autism Research, 2016, e-pub.: http://onlinelibrary.wiley.com/doi/10.1002/ aur.1651/pdf
27. Taylor L.J., Eapen V., Maybery M.T., Midford S., Paynter J., Quarmby L., Smith T., Williams K., Whitehouse A.J.O. ‘Diagnostic evolution for autism spectrum disorders: a survey of health professionals in Australia.’ BMJ Open, 2016, doi: 10.1136/bmjopen-2016-012517. http://bmjopen.bmj.com/content/6/9/e012517.full
28. Tonacci A., Billec, L., Ruta L., Tartarisco G., Pioggia G., Gangemi S. A systematic review of the association between allergic asthma and autism.’ Minerva Pediatrica, 2016, e-pub: https://www.ncbi.nlm.nih.gov/pubmed/27706122
29. Tonnsen B.L., Boan A.D., Bradley C.C., Charles J., Cohen A., Carpenter L.A. (2016) Prevalence of Autism Spectrum Disorders Among Children With Intellectual Disability. American Journal on Intellectual and Developmental Disabilities, 121(6), 2016, cc. 487—500.
30. Walton K.M. Risk Factors for Behavioral and Emotional Difficulties in Siblings of Children With Autism Spectrum Disorder. American Journal on Intellectual and Developmental Disabilities, 2016, e-pub: http://www.aaiddjournals.org/doi/10.1352/1944-7558-121.6.533
31. Zachor, D.A., Ben-Itzchak, E. Specific Medical Conditions Are Associated with Unique Behavioral Profiles in Autism Spectrum Disorders. Frontiers in Neuroscience, 2016, e-pub: http://journal.frontiersin.org/article/10.3389/fnins.2016.00410/full
32. Zaman, S., Li, W., Gadad, B.C., Hynan, L., Karp, D., Roatch, N., Schutte, C., Marti, C.N., Hewitson L., German D.C. A search for blood biomarkers for autism: Peptoids. Scientific Repots, 2016, doi: 10.1038/srep19164 https://www.researchgate.net/publication/290508745_A_Search_for_Blood_Biomarkers_for_Autism_Peptoids