«Kashenkin Lug»: Program for Consultative Psychological and Educational Support for Families Having Children with ASD. Evaluation of Efficiency

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Abstract

The article presents current understanding of consultation of children with autism spectrum disorders (ASD) in Russia along with the typical contexts in which families looking for help. The necessity of an integrated approach to the organization of consultations shown. We introduce a three-component program of psychological and educational support developed at the Federal Resource Center for Organization of Comprehensive Support to Children with ASD of MSUPE. The program includes a comprehensive psychological and educational examination, the development of an educational route and the feedback receiving, aimed at the analysis of the dynamics of development. The results of the evaluation of the effectiveness of the implementation of the program shown, demonstrating positive dynamics in the development of the child and the emerging needs of the family. We registered change in educational pathways as well as improvement of adaptive behavior. Additionally, we analyzed typical difficulties in following recommendations as reported by parents

General Information

Keywords: autism, autism spectrum disorders, effectiveness of intervention, psychological and pedagogical support, IEP individualized education program, educational support program «Kashenkin Lug», educational trajectory

Journal rubric: Education & Intervention Methods

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2021190406

Funding. The reported study was funded within the framework of the state assignment of the Ministry of Education of the Russian Federation No. 073-00041-21-05, 14.07.2021, «Comprehensive support of children with ASD in the frame of an evidence-based approach»

Acknowledgements. The authors are grateful to N.A. Baranova, the administrator of the Federal Resource Center for Organization of Comprehensive Support to Children with ASD of MSUPE for the assistance in collecting of the data.

Received: 11.11.2021

Accepted:

For citation: Pantsyr S.N., Krasnoselskaya E.L., Danilina K.K., Davydova E.Y., Khaustov A.V. «Kashenkin Lug»: Program for Consultative Psychological and Educational Support for Families Having Children with ASD. Evaluation of Efficiency. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2021. Vol. 19, no. 4, pp. 50–61. DOI: 10.17759/autdd.2021190406. (In Russ., аbstr. in Engl.)

References

  1. Bogacheva O.I., Ivanov M.V., Simashkova N.V. Osvedomlennost’ roditelei o zabolevanii detei s rasstroistvami autisticheskogo spektra [Awareness of Parents about the Disease of Children with Autism Spectrum Disorders]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2019, vol. 17, no. 4, pp. 3—11. DOI:10.17759/ autdd.2019170401
  2. Davydova E.Yu., Sorokin A.B., Khaustov A.V., Shvedovskii E.F. Problemy i perspektivy integratsii metodov s dokazannoi effektivnost’yu v praktiku shkol’nogo obucheniya detei s rasstroistvami autisticheskogo spektra [Challenges and Perspectives of Evidence-Based Interventions Integration into Schooling of Children with Autism Spectrum Disorders]. Klinicheskaya i spetsial’naya psikhologiya [Clinical Psychology and Special Education], 2021, vol. 10, no. 1, pp. 36—60. DOI:10.17759/cpse.2021100103
  3. Danilina K.K., Korovina N.Yu. Ispol’zovanie metodiki ADOS dlya diagnostiki rasstroistv autisticheskogo spektra u podrostkov i vzroslykh [Autism Diagnostic Observation Schedule (ADOS) To Diagnose Autistic Spectrum Disorders In Adolescents And Adults]. Detskaya i podrostkovaya reabilitatsiya [Child and adolescent rehabilitation], 2019, vol. 3, no. 39, pp. 54—56.
  4. Khaustov A.V., Manelis N.G. (gen. eds.) Konsul’tativno-diagnosticheskaya rabota s sem’yami, vospityvayushchimi detei s RAS: Metodicheskie rekomendatsii [Consulting and diagnostic work with families raising children with ASD: Guidelines]. Moscow: Publ. Federal Resource Center of the Moscow State University of Psychology and Education, 2018. 85 p. ISBN 978-5-94051-183-0.
  5. Manelis N.G., Khaustov A.V., Pantsyr’ S.N. et al. Sravnitel’nyi analiz diagnosticheskikh metodik, ispol’zuemykh v obrazovatel’nykh organizatsiyakh g. Moskvy pri rabote s det’mi s rasstroistvami autisticheskogo spektra [Comparative analysis of diagnostic tools that are used in educational facilities of Moscow city during the work with children with autism spectrum disorder]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2015, vol. 13, no. 2, pp. 8—16. DOI:10.17759/autdd.2015130202
  6. Morozov S.A. O kriteriyakh effektivnosti praktik raboty s lyud’mi, imeyushchimi RAS [On the efficiency criteria of work practices with ASD people]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2017, vol. 15, no. 4, pp. 10—15. DOI:10.17759/autdd.2017150402
  7. Nigmatullina I.A., Borisova N.S., Frolova A.S. Otsenka bazovykh navykov u detei doshkol’nogo vozrasta s rasstroistvami autisticheskogo spektra s pomoshch’yu metodiki VB-MAPP [Assessment of Basic Skills of Children of a Preschool Age with Autism Spectrum Disorder Using the VB-MAPP]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2021, vol. 19, no. 1, pp. 25—33. DOI:10.17759/autdd.2021190103
  8. Semenovich M.L., Manelis N.G., Khaustov A.V. et al. Opisanie metodiki otsenki bazovykh rechevykh i uchebnykh navykov (ABLLS-R) [Description of the Assessment of Basic Language and Learning Skills Revisited (ABLLS:R)]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders (Russia)], 2015, vol. 13, no. 4, pp. 3—11. DOI:10.17759/ autdd.2015130301
  9. Sorokin A.B., Davydova E.Yu., Khaustov A.V. Spetsifika otsenki effektivnosti psikhologo-pedagogicheskikh vmeshatel’stv pri rabote s det’mi s RAS [Peculiarity of Efficiency Assessment for Educational and Psychological Interventions Used with Children with ASD]. Sotsial’nye nauki i detstvo [Social Sciences and Childhood], 2020, vol. 1, no. 1, pp. 58—67. DOI:10.17759/ssc.2020010105
  10. Sorokin A.B., Zotova M.A., Korovina N.Yu. Skriningovye metody dlya vyyavleniya tselevoi gruppy «spektr autizma» pedagogami i psikhologami [Screening Methods for Identification of the Target Group Autism Spectrum For Special Education Teachers and Psychologists]. Psikhologicheskaya nauka i obrazovanie [Psychological Science and Education], 2016, vol. 21, no. 3, pp. 7—15. DOI:10.17759/pse.2016210302
  11. Tyushkevich S. A., Danilina K. K., Mamokhina U. A. Protokol kompleksnogo diagnosticheskogo obsledovaniya detei s RAS [Protocol for a complex diagnostic evaluation of children with ASD]. In Sovremennye problemy psikhologii i obrazovaniya v kontekste raboty s razlichnymi kategoriyami detei i molodezhi: materialy nauchno-prakticheskoi konferentsii [Current problems of psychology and education in the context of working with various categories of children and adolescents: proceedings of the scientific and practical conference]. Moscow: Publ. Moscow University of Finance and Law, 2016. Pp. 87—94. ISBN 978-5-94811-239-8.
  12. Frost L., Bondy A. Sistema al’ternativnoi kommunikatsii s pomoshch’yu kartochek PECS: Rukovodstvo dlya pedagogov [The Picture Exchange Communication System Training Manual]. Moscow: Publ. Terevinf, 2011. 416 p. ISBN 978-5- 4212-0026-0.
  13. Haustov A.V., Shumskih M.A. Dinamika v razvitii sistemy obrazovaniya detej s rasstrojstvami autisticheskogo spektra v Rossii: rezul’taty Vserossijskogo monitoringa 2020 goda // Autizm i narusheniya razvitiya. 2021. Tom 19. № 1. S. 4—11. doi:10.17759/autdd.2021190101
  14. Autism spectrum disorders / World Health Organization [Web resource]. 1 June 2021. URL: https://www.who.int/ news-room/fact-sheets/detail/autism-spectrum-disorders (Accessed 08.12.2021).
  15. Baio J., Wiggins L., Christensen D.L. et al. Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014. Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C.: 2002), 2018, vol. 67, no. 6, pp. 1—23. DOI:10.15585/mmwr. ss6706a1
  16. Partington J.W. The Assessment of Basic Language and Learning Skills Revised (The ABLLS-R): Scoring Instructions and IEP Development Guide (The ABLLS-R Guide). Pleasant Hill: Publ. Behavior Analysts Inc., 2006. 148 p.
  17. Reichow B., Doering P., Chicchetti D.V. (eds.) Evidence-Based Praсtices And Treatments for Children with Autism. [s. l.]: Publ. Springer, 2011. 426 p. ISBN 978-144196973-6.
  18. Schopler E. Comments to: C. Lord et al. “Challenges in Evaluating Psychological Intervention for Autistic Spectrum Disorders”. Journal of Autism and Developmental Disorders, 2005, vol. 35, no. 6, pp.709—711.
  19. Schopler E., Reichler R., Bashford A. Et al. Psychoeducational Profile-Revised: Vol. 1 (PEP-R). Austin: Publ. PRO-ED, 1990. 170 p.
  20. Sparrow S., Balla D., Cicchetti D. Vineland Adaptive Behavior Scales. Circle Pines: Publ. American Guidance Service, 1984. 194 p.
  21. Steinbrenner J.R., Hume K., Odom S.L. et al. Evidence-based practices for children, youth, and young adults with Autism / Frank Porter Graham Child Development Institute. Chapel Hill, 2020. 143 p. URL: https://ncaep.fpg.unc.edu/sites/ ncaep.fpg.unc.edu/files/imce/documents/EBP%20Report%202020.pdf (Accessed 08.12.2021).

Information About the Authors

Sergey N. Pantsyr, PhD in Psychology, methodologist of the Federal Resource Center for the Organization of Comprehensive Support to Children with ASD, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-2772-7627, e-mail: sergey-p84@mail.ru

Elena L. Krasnoselskaya, special teacher of the Federal Resource Center for Organization of Comprehensive Support to Children with ASD, Moscow State University of Psychology & Education (MSUPE), Moscow, Russia, ORCID: https://orcid.org/0000-0002-4973-2953, e-mail: krasnoselskayael@mgppu.ru

Kamilla K. Danilina, Researcher, Research and Clinical Center of Pediatric psychoneurology of Moscow Department of Public Health, Junior Researcher, Scientific laboratory, Federal Resource Center for Organization of Comprehensive Support to Childrenwith ASD, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-0396-2884, e-mail: d-kk@mail.ru

Elizaveta Y. Davydova, PhD in Biology, Associate Professor, Leading Researcher, Federal Resource Center for Organization of Comprehensive Support to Children with Autism Spectrum Disorders, Associate Professor of the Department of Differential Psychology and Psychophysiology Faculty of “Clinical and Special Psychology”, Moscow State University of Psychology and Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-5192-5535, e-mail: el-davydova@mail.ru

Arthur V. Khaustov, PhD in Education, Director of the Federal Resources Center for Children with Autism Spectrum Disorders, Moscow State University of Psychology and Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-9634-9295, e-mail: arch2@mail.ru

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