Ensuring the Participation of the Individuals with Mental Disorders and Speech Disabilities in the Skills and Capabilities Evaluation using Methods of Augmentative and Alternative Communication

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Abstract

Determination of skills and capabilities of the individuals with mental disorders and speech disabilities is an impor­tant task for specialists. At the experimental stage, 50 respondents were interviewed to reveal the possibilities of their participation in the follow-up evaluation of the independent living skills and level of required support. The methods of augmentative and alternative communication (AAC) and visual support were used. The study of the process of development of special conditions for the interview was carried out in the setting of psychoneurological residential institutions. We identified conditions, which are required for the participants: establishing of the primary contact, determining the communication means and the level of understanding of oral speech etc. Methods of directed obser­vation, learning game situations, and practical tasks were used. The case study method was used to analyze the opti­mal choice of AAC and visibility means. A productive contact was established with 92% of respondents, they agreed to participate in the interview. Full understanding of the interview’s objectives was achieved in 33% cases. 74% of respondents were able to complete the interview. It was determined that the development of special conditions for the participation of the respondents in an interview and the choice of AAС methods involves the following factors: assessment of the strengths and weaknesses of the communicative abilities; available means of communication; pos­sibilities of using AAC symbols and teaching the respondents to use them etc. The results can be used in carrying out further stages of research to determine the skills and capabilities of persons who do not use speech as the main means of communication.

General Information

Keywords: individuals with mental disorders, speech disabilities, augmentative and alternative communication, evaluating the capacity for independent living, determining the level of required assistance

Journal rubric: Education & Intervention Methods

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2023210103

Funding. The study was conducted as a part of the Project of Sberbank Charitable Foundation “Contribution to the Future” tocreate a scientific and methodological center based on the Center for Curative Pedagogics, Moscow

Received: 26.01.2023

Accepted:

For citation: Karanevskaya O.V., Sisneva M.E. Ensuring the Participation of the Individuals with Mental Disorders and Speech Disabilities in the Skills and Capabilities Evaluation using Methods of Augmentative and Alternative Communication. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2023. Vol. 21, no. 1, pp. 22–32. DOI: 10.17759/autdd.2023210103. (In Russ., аbstr. in Engl.)

References

  1. Ryskina V.L. (ed.) Al’ternativnaya i dopolnitel’naya kommunikatsiya v rabote s det’mi i vzroslymi, imeyushchimi intellektual’nye i dvigatel’nye narusheniya, rasstroistva autisticheskogo spektra: sbornik state [Augmentative and alternative communication in work with children and adults with intellectual and motor disabilities and autism spectrum disorders: collected articles]. Saint Peterburg: Publ. Skifiya, 2016. 288 p. ISBN 978-5-00025-076-1.
  2. Ryskina V.L. (ed.) Al’ternativnaya kommunikatsiya: Tekhnologii neverbal’noi kommunikatsii: informatsionno-metodicheskie materialy [Alternative communication: Technologies of nonverbal communication: Informational and educational materials]. Saint Peterburg: Publ. Gorodskoi informatsionno-metodicheskii tsentr “Sem’ya” [City resource center “Family”], 2018. 28 p. ISBN 978-5-906312-16-7.
  3. Basilova T.A. Neslozhnoe, oslozhnennoe i slozhnoe narushenie razvitiya u detei [Light, complicated and severe developmental disorder in children]. In Spetsial’naya pedagogika i spetsial’naya psikhologiya: Kollektivnaya monografiya [Special education and special psychology: Collective monography]. Moscow: Publ. LOGOMAG, 2013. Pp. 120—124. ISBN 978-5-905025-19-8.
  4. Berkovich M. Prostye veshchi: Kak ustanavlivat’ kontakt s lyud’mi, imeyushchimi tyazhelye mnozhestvennye narusheniya razvitiya [Simple things: How to establish contact with people with severe multiple developmental disorders]. Saint Peterburg: Publ. Skifiya, 2018. 96 p. ISBN 978-5-00025-107-2.
  5. Vladimirova O.N., Khodakovskii M.D., Ishutina I.N. et al. Teoreticheskie osnovy otsenki sposobnosti lits s narusheniem psikhicheskikh funktsii prozhivat’ samostoyatel’no, v tom chisle s soprovozhdeniem [Theoretical foundations for assessing the ability of persons with mental disorders to live independently, including with support]. Mediko-sotsial’naya ekspertiza i reabilitatsiya = Medical and Social Expert Evaluation and Rehabilitation, 2019, vol. 22, no. 4, pp. 6—14. DOI:10.17816/ MSER48952
  6. Gnedenko Ya.S., Karanevskaya O.V., Kochetkova T.V. Ispol’zovanie sredstv al’ternativnoi i dopolnitel’noi kommunikatsii v psikhologo-pedagogicheskom soprovozhdenii detei i podrostkov s tyazhelymi i mnozhestvennymi narusheniyami razvitiya i narusheniyami povedeniya v usloviyakh statsionarnykh uchrezhdenii sotsial’nogo obsluzhivaniya [Using augmentative and alternative communication in psychological and educational support for children with severe multiple developmental disorders and behavioral disorders in inpatient social care facilities]. Vospitanie i obuchenie detei s narusheniyami razvitiya = Upbringing and education for children with developmental disorders, 2022, no. 2, pp. 52—66.
  7. Bitova A.L. (ed.) Zhizn’ kak zhizn’: Kak pomogat’ osobomu cheloveku zhit’ dostoino v usloviyakh internata [A common life: How to help a special person live with dignity in an institution]. Moscow: Publ. Terevinf, 2019. 64 p.
  8. Karanevskaya O.V., Bondar’ T.A. Gotovnost’ k ispol’zovaniyu sredstv al’ternativnoi i dopolnitel’noi kommunikatsii spetsialistami detskikh domov-internatov [Willingness to use augmentative and alternative communication by the specialists of children’s homes]. Al’manakh Instituta korrektsionnoi pedagogiki = Almanac Institute of special education, 2020, no. 41, pp. 86—96.
  9. Kwiatkowska M. Gluboko neponyatye deti: Podderzhka razvitiya detei s tyazhelymi i glubokimi narusheniyami intellekta [Deeply misunderstood children: Support in the development for children with severe and deep intellectual disabilities]. Saint Petersburg: Publ. Skifiya, 2016. 368 p. ISBN 978-5-00025-066-2.
  10. Klochkova E.V. Ispol’zovanie “Kanadskoi otsenki vypolneniya deyatel’nosti (COPM)” dlya otsenki potrebnostei klienta: Metodicheskoe posobie [Using the Canadian Occupational Performance Measure (COPM) for assessing the client’s needs: Guidelines] / Tekhnicheskaya pomoshch’ Programme podderzhki sektoral’noi politiki v oblasti sotsial’noi zashchity — Komponent po predostavleniyu uslug Tadzhikistanu [Technical support for the Program for sectorial politics support in the field of social support — Component for providing services to Tajikistan]. Dushanbe, 2010. 37 p.
  11. Kozlov S.I., Gaubrikh N.Yu., Yalamov A.S. et al. Obosnovanie metodiki po otsenke vozmozhnosti samostoyatel’nogo prozhivaniya grazhdan, stradayushchikh psikhicheskimi rasstroistvami, prozhivayushchimi v psikhonevrologicheskom internate [Scientific Substantiation of Methodological Approaches to Assess Ability of Independent Living of People Suffering from Mental Disorders Residing in a Psychoneurological Boarding School]. Sotsial’nye aspekty zdorov’ya naseleniya = Social aspects of population health, 2019, no. 5, 33 p. DOI:10.21045/2071-5021-2019-65-5-5
  12. Caldwell Ph., Horwood J. Intensivnoe vzaimodeistvie i sensornaya integratsiya v rabote s lyud’mi s tyazhelymi formami autizma [Using Intensive Interaction and Sensory Integration: A Handbook for Those who Support People with Severe Autistic Spectrum Disorder]. Moscow: Publ. Terevinf, 2019. 128 p. ISBN 978-5-4212-0601-9.
  13. Cohen M.J., Gerhardt P.F. Vizual’naya podderzhka: Sistema deistvennykh metodov dlya razvitiya navykov samostoyatel’nosti [Visual Supports for People with Autism: A Guide for Parents and Professionals]. Ekaterinburg: Rama Pablishing, 2021. 280 p. ISBN 978-5-91743-097-3.
  14. Gaidukevich S.E. (ed.) Metodika uchebno-vospitatel’noi raboty v tsentre korrektsionno-razvivayushchego obucheniya i reabilitatsii: ucheb.-metod. posobie [Methodics of educational work and upbringing in a center for correctional and developmental education and rehabilitation: teaching guidelines]. Minsk: Publ. Belarusian State Pedagogical University, 2009. 276 p. ISBN 978-985-501-737-1.
  15. Karanevskaya O.V. (ed.) Metodicheskie rekomendatsii po ispol’zovaniyu al’ternativnoi i dopolnitel’noi kommunikatsii (ADK) v statsionarnykh uchrezhdeniyakh sotsial’nogo obsluzhivaniya [Teaching guidelines on using augmentative and alternative communication (AAC) in inpatient social care facilities]. Moscow: Publ. Terevinf, 2022. 252 p. ISBN 978-5- 4212-0651-4.
  16. Yakovleva I.M. (ed.) Pedagogika i psikhologiya lits s umstvennoi otstalost’yu (intellektual’nymi narusheniyami) [Pedagogy and Psychology of Children with Mental Retardation (Intellectual Disabilities)]. Moscow: Publ. INFRA-M, 2023. 382 p. ISBN 978-5-16-017098-5. DOI:10.12737/1733143
  17. Prikaz Ministerstva obrazovaniya i nauki Rossiiskoi Federatsii ot 19.12.2014 no. 1599 “Ob utverzhdenii Federal’nogo gosudarstvennogo obrazovatel’nogo standarta obrazovaniya obuchayushchikhsya s umstvennoi otstalost’yu (intellektual’nymi narusheniyami)” (Zaregistrirovan 03.02.2015 pod no. 35850) [Decree of the Ministry of education and science of Russian Federation from 19.12.2014 no. 1599 “On establishing the Federal State Educational Standard for students with intellectual disabilities” (Registered on 03.02.2015 under no. 35850)] [Web resource]. 55 p. URL: http:// publication.pravo.gov.ru/Document/View/0001201502050007 (Accessed 01.02.2023).
  18. Protokol zasedaniya Soveta pri Pravitel’stve RF po voprosam popechitel’stva v sotsial’noi sfere ot 28 marta 2019 g. no. 3 [Protocol of the Russian Government Council on guardianship in social support session on 28 March 2019 no. 3] [Web resource]. 6 p. URL: https://www.popechitely.ru/about/vypiska/ (Accessed 01.02.2023).
  19. Sisneva M.E., Evmenchikova T.D., Bitova A.L. et al. Razrabotka i aprobatsiya oprosnika otsenki stepeni samostoyatel’nosti lits s narusheniyami psikhicheskikh funktsii i neobkhodimogo im soprovozhdeniya [Developing and approbation of a questionnaire for assessing people with psychological functioning disorders’ independence and need for support] // Osobyi rebenok: Issledovaniya i opyt pomoshchi: Vyp. 12: nauch.-prakt. Sbornik [Special child: Research and experience in support: No. 12: Collected scientific and practical works]. Moscow: Publ. Terevinf, 2021. Pp. 115—146. ISBN 978-5- 4212-0646-0.
  20. Fadina A.K., Novikov A.Yu., Karanevskaya O.V. et al. Osnovnye napravleniya realizatsii mezhdistsiplinarnogo vzaimodeistviya v okazanii pomoshchi detyam-invalidam, ostavshimisya bez popecheniya roditelei [The main pathways of interdisciplinary interactions implementation in providing assistance to disabled children deprived of parental care]. Al’manakh Instituta korrektsionnoi pedagogiki = Almanac Institute of special education, 2020, no. 41, pp. 53—62.
  21. Von Tetzchner S., Martinsen H. Vvedenie v al’ternativnuyu i dopolnitel’nuyu kommunikatsiyu: zhesty i graficheskie simvoly dlya lyudei s dvigatel’nymi i intellektual’nymi narusheniyami, a takzhe s rasstroistvami autisticheskogo spectra [Introduction to Augmentative and Alternative Communication]. Moscow: Publ. Terevinf, 2015. 432 p. ISBN 978-5- 4212-231-8.
  22. Beukelman D.R., Mirenda-Baitimor P. Augmentative & Alternative Communication supporting children and adults with complex communication needs. Baltimore: Publ. Brookes, 2005. 598 p. ISBN 978-1-55766-684-0.
  23. Morosini P.L., Magliano L., Brambilla L. et al. Development, reliability and acceptability of a new version of the DSM-IV Social and Occupational Functioning Assessment Scale (SOFAS) to assess routine social functioning. Acta Psychiatrica Scandinavica, 2000, vol. 101, no. 4, pp. 323—329. DOI:10.1034/j.1600-0447.2000.101004323.x
  24. Sparrow S., Cicchettu D., Balla D. Vineland Adaptive Behavior Scales. 2nd ed. Circe Pines: Publ. American Guidance Service, 2005. [1064] p. ISBN 978-0-7491-5200-0.

Information About the Authors

Olga V. Karanevskaya, PhD in Education, associate professor of the Chair of Special Education and Psychology, Moscow City University, educator, Regional Non-Profit Social Organization «Center for Curative Pedagogics», Moscow, Russia, ORCID: https://orcid.org/0000-0002-9800-4768, e-mail: olg_ka@mail.ru

Maria E. Sisneva, clinical psychologist, lecturer of additional professional education programs, Moscow State Psychological and Pedagogical University (MGPPU), Member of Interdepartmental Working Group on the Development of Basic Approaches to Reforming Residential Institutions for Psychiatric Patients of the Ministry of Labor and Social Security of the Russian Federation, Moscow, Russia, ORCID: https://orcid.org/0000-0003-0144-5792, e-mail: msisneva@yandex.ru

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