An Inside Look: Assessing the Well-being of Palliative Care Children

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Abstract

In most cases, self-assessment techniques are used to assess the well-being of children, however, more than 75% of palliative respondents cannot assess their well-being due to the limitations associated with the disease. The article considers an approach to assessing the well-being of palliative children based on the analysis of the dynamics of their development and improvement of emotional relationships in the family. As part of the study, communication passports were developed for children with communication restrictions, special classes were held aimed at improving child-parent relations and preventing emotional burnout. A total of 40 children took part in the study. The assessment of child-parent relations was carried out only among children living in families. It has been shown that improving family relationships has a beneficial effect on the dynamics of respondents’ development.

General Information

Keywords: emotional interaction in the family; emotional burnout; physical development; communication; cognitive processes; communicative passport; palliative care

Journal rubric: Scientific Life

Article type: scientific article

DOI: https://doi.org/10.17759/ssc.2023040404

Funding. The article was prepared based on materials presented at the conference held within the framework of the state assignment of the Ministry of Education of the Russian Federation, dated 08.02.2023, No. 073-00038-23-01, “Scientific and methodological support for evaluating the effectiveness of measures of the Decade of Childhood from the perspective of children’s well-being”.

Received: 14.12.2023

For citation: Kuznetsova Y.Y. An Inside Look: Assessing the Well-being of Palliative Care Children [Elektronnyi resurs]. Sotsial’nye nauki i detstvo = Social Sciences and Childhood, 2023. Vol. 4, no. 4, pp. 47–53. DOI: 10.17759/ssc.2023040404. (In Russ., аbstr. in Engl.)

References

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Information About the Authors

Yulia Y. Kuznetsova, Educational Psychologist, Specialist in Alternative Additional Communication, Charitable autonomous nonprofit organization “Hospice Fruppolo’s House”, Kaliningrad, Russia, ORCID: https://orcid.org/0009-0008-6574-0671, e-mail: k.ja.ja@yandex.ru

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