An Inside Look: Assessing the Well-being of Palliative Care Children

 
Audio is AI-generated
89

Abstract

In most cases, self-assessment techniques are used to assess the well-being of children, however, more than 75% of palliative respondents cannot assess their well-being due to the limitations associated with the disease. The article considers an approach to assessing the well-being of palliative children based on the analysis of the dynamics of their development and improvement of emotional relationships in the family. As part of the study, communication passports were developed for children with communication restrictions, special classes were held aimed at improving child-parent relations and preventing emotional burnout. A total of 40 children took part in the study. The assessment of child-parent relations was carried out only among children living in families. It has been shown that improving family relationships has a beneficial effect on the dynamics of respondents’ development.

General Information

Keywords: emotional interaction in the family; emotional burnout; physical development; communication; cognitive processes; communicative passport; palliative care

Journal rubric: Scientific Life

OpenAlex citations: 0

OpenAlex trends: Childhood Cancer Survivors' Quality of Life, Palliative Care and End-of-Life Issues, Family Support in Illness

Information about the work in OpenAlex

Number of citations: 0

Topics

Childhood Cancer Survivors' Quality of Life

This cluster of papers focuses on pediatric cancer, survivorship, and the assessment of health-related quality of life in children and adolescents. It includes research on the Pediatric Quality of Life Inventory, the Childhood Cancer Survivor Study, pediatric palliative care, psychosocial outcomes, and long-term effects on survivors. The papers also cover topics such as parent-proxy reports, posttraumatic stress symptoms, and neurocognitive outcomes in pediatric cancer patients.

Number of works: 83323  |  Total number of citations: 949761

Topic detailsв OpenAlex

Palliative Care and End-of-Life Issues

This cluster of papers focuses on the integration of palliative care into end-of-life treatment, including advance care planning, family perspectives, communication strategies, prognostic disclosure, ICU care, ethical considerations, and health care costs. It explores the impact of early palliative care, patient and caregiver outcomes, and the quality of dying and death.

Number of works: 161116  |  Total number of citations: 1461802

Topic detailsв OpenAlex

Family Support in Illness

This cluster of papers explores the impact of parental illness, particularly cancer, on children and families. It covers topics such as psychosocial impact, young carers, emotional and behavioral problems, support needs, and family functioning in the context of parental illness.

Number of works: 59445  |  Total number of citations: 433965

Topic detailsв OpenAlex

Work details in OpenAlex

Article type: scientific article

DOI: https://doi.org/10.17759/ssc.2023040404

Funding. The article was prepared based on materials presented at the conference held within the framework of the state assignment of the Ministry of Education of the Russian Federation, dated 08.02.2023, No. 073-00038-23-01, “Scientific and methodological support for evaluating the effectiveness of measures of the Decade of Childhood from the perspective of children’s well-being”.

Received 14.12.2023

Published

For citation: Kuznetsova, Y.Y. (2023). An Inside Look: Assessing the Well-being of Palliative Care Children. Social Sciences and Childhood, 4(4), 47–53. (In Russ.). https://doi.org/10.17759/ssc.2023040404

© Kuznetsova Y.Y., 2023

License: CC BY-NC 4.0

References

  1. Detskoe blagopoluchie: ot nauchnykh issledovanii k praktike primeneniya v interesakh detei (videozapis' 23 noyabrya 2023 g.) [Elektronnyi resurs] [Child welfare: from scientific research to practical application in the interests of children (video recording on November 23, 2023)]. YouTube, 2023. Available at: https://www.youtube.com/watch?v=yRvsqYEDEzU (Accessed: 10.11.2022). (In Russ.).
  2. Dobryakov I.V., Zashchirinskaya O.V. Psikhologicheskaya podderzhka roditelei detei s ogranichennymi vozmozhnostyami zdorov'ya pri emotsional'nom vygoranii [Psychological support for parents of children with disabilities in emotional burnout]. Petersburg: Rech' [Speech], 2007, 67 p. (In Russ.).
  3. Zakharova E.I. Issledovanie osobennostei emotsional'noi storony detsko-roditel'skogo vzaimodeistviya [Investigation of the features of the emotional side of child-parent interaction]. Zhurnal prakticheskogo psikhologa [Journal of practical psychology], 1996, no. 6, pp. 10–19.
  4. N'yufeld G. Mate G. Ne upuskaite svoikh detei [Do not miss your children]. Moscow: Resurs, 2012, 377 p. (In Russ.).
  5. Palliativnaya pomoshch' vzroslym i detyam: organizatsiya i professional'noe obuchenie. Sbornik dokumentov VOZ i EAPP [Palliative care for adults and children: organization and vocational training. Collection of WHO and EAPP documents]. Moscow: Valent, 2014, 180 p. (In Russ.).

Information About the Authors

Yulia Y. Kuznetsova, Educational Psychologist, Specialist in Alternative Additional Communication, Charitable autonomous nonprofit organization “Hospice Fruppolo’s House”, Kaliningrad, Russian Federation, ORCID: https://orcid.org/0009-0008-6574-0671, e-mail: k.ja.ja@yandex.ru

Metrics

 Web Views

Whole time: 416
Previous month: 11
Current month: 25

 PDF Downloads

Whole time: 89
Previous month: 6
Current month: 7

 Total

Whole time: 505
Previous month: 17
Current month: 32