Criteria for Assessing the Quality of Life in Projects Supporting Adolescents and Young Adults with Mental Disabilities and Severe Multiple Developmental Disabilities

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Abstract

Criteria for assessing the quality of life of adolescents and young adults with mental disabilities and severe multiple developmental disabilities should take into account their needs, limitations and individual characteristics. This article describes the experience of evaluating the effectiveness of support programs through the analysis of changes in indicators of spatial and temporal orientation, social, communicative, craft skills and emotional-volitional sphere, based on systematic supervision of specialists and keeping a development diary. It is shown that such an approach to assessing the well-being of wards allows you to identify support targets in time and thereby contribute to the development of their independence skills and successful socialization.

General Information

Keywords: quality of life; evaluation criteria; socio-cultural rehabilitation; socialization; skills; adolescents and young adults with mental disabilities; developmental disorders

Journal rubric: Scientific Life

Article type: scientific article

DOI: https://doi.org/10.17759/ssc.2023040403

Funding. The article was prepared based on materials presented at the conference held within the framework of the state assignment of the Ministry of Education of the Russian Federation, dated 08.02.2023, No. 073-00038-23-01, “Scientific and methodological support for evaluating the effectiveness of measures of the Decade of Childhood from the perspective of children’s well-being”.

Acknowledgements. The author thanks for the help in collecting data for the study of employees of the RC Turmalin PhD Yu.A. Korovkina, Z.M. Levina, A.A. Beltyukova, the curator of the project “Special Biography. Through growing up to maturity,” implemented with the support of the CF “Absolut-Help” by the head of charity programs A.S. Omelchenko.

Received: 14.12.2023

Accepted:

For citation: Zhulina Yu.A. Criteria for Assessing the Quality of Life in Projects Supporting Adolescents and Young Adults with Mental Disabilities and Severe Multiple Developmental Disabilities [Elektronnyi resurs]. Sotsial’nye nauki i detstvo = Social Sciences and Childhood, 2023. Vol. 4, no. 4, pp. 39–46. DOI: 10.17759/ssc.2023040403. (In Russ., аbstr. in Engl.)

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Information About the Authors

Yulia A. Zhulina, Social Teacher-Psychologist, Defectologist, Project Methodologist, Charity Organization “Rehabilitation Center “Turmalin”, Moscow, Russia, ORCID: https://orcid.org/0009-0005-5185-2558, e-mail: yzhulina@gmail.com

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