Criteria for Assessing the Quality of Life in Projects Supporting Adolescents and Young Adults with Mental Disabilities and Severe Multiple Developmental Disabilities

 
Audio is AI-generated
79

Abstract

Criteria for assessing the quality of life of adolescents and young adults with mental disabilities and severe multiple developmental disabilities should take into account their needs, limitations and individual characteristics. This article describes the experience of evaluating the effectiveness of support programs through the analysis of changes in indicators of spatial and temporal orientation, social, communicative, craft skills and emotional-volitional sphere, based on systematic supervision of specialists and keeping a development diary. It is shown that such an approach to assessing the well-being of wards allows you to identify support targets in time and thereby contribute to the development of their independence skills and successful socialization.

General Information

Keywords: quality of life; evaluation criteria; socio-cultural rehabilitation; socialization; skills; adolescents and young adults with mental disabilities; developmental disorders

Journal rubric: Scientific Life

OpenAlex citations: 0

OpenAlex trends: Family and Disability Support Research, Disability Education and Employment, Adolescent and Pediatric Healthcare

Information about the work in OpenAlex

Number of citations: 0

Topics

Family and Disability Support Research

This cluster of papers explores the impact of parenting stress on caregivers and families of children with developmental disabilities, particularly focusing on autism spectrum disorder. It delves into the challenges faced by parents, the well-being of caregivers, family quality of life, coping strategies, and support services available to address these stressors.

Number of works: 121070  |  Total number of citations: 1018944

Topic detailsв OpenAlex

Disability Education and Employment

This cluster of papers focuses on the transition to employment for individuals with disabilities, exploring factors such as self-determination, universal design for learning, employment outcomes, transition planning, post-school success, disability disclosure, workplace accommodations, inclusive higher education, quality of life, and vocational rehabilitation.

Number of works: 54712  |  Total number of citations: 398049

Topic detailsв OpenAlex

Adolescent and Pediatric Healthcare

This cluster of papers focuses on supporting the transition of adolescents with chronic conditions from pediatric to adult health care, addressing challenges, readiness assessment, self-management, and the experiences of young adults with special health care needs. It also explores the perspectives of patients, parents, and healthcare providers, as well as the impact of transitional care programs on diabetes control and hospital admission rates.

Number of works: 44703  |  Total number of citations: 319884

Topic detailsв OpenAlex

Work details in OpenAlex

Article type: scientific article

DOI: https://doi.org/10.17759/ssc.2023040403

Funding. The article was prepared based on materials presented at the conference held within the framework of the state assignment of the Ministry of Education of the Russian Federation, dated 08.02.2023, No. 073-00038-23-01, “Scientific and methodological support for evaluating the effectiveness of measures of the Decade of Childhood from the perspective of children’s well-being”.

Acknowledgements. The author thanks for the help in collecting data for the study of employees of the RC Turmalin PhD Yu.A. Korovkina, Z.M. Levina, A.A. Beltyukova, the curator of the project “Special Biography. Through growing up to maturity,” implemented with the support of the CF “Absolut-Help” by the head of charity programs A.S. Omelchenko.

Received 14.12.2023

Accepted

Published

For citation: Zhulina, Yu.A. (2023). Criteria for Assessing the Quality of Life in Projects Supporting Adolescents and Young Adults with Mental Disabilities and Severe Multiple Developmental Disabilities. Social Sciences and Childhood, 4(4), 39–46. (In Russ.). https://doi.org/10.17759/ssc.2023040403

© Zhulina Yu.A., 2023

License: CC BY-NC 4.0

References

  1. Detskoe blagopoluchie: ot nauchnykh issledovanii k praktike primeneniya v interesakh detei (videozapis’ 23 noyabrya 2023 g.) [Elektronnyi resurs] [Child welfare: from scientific research to practical application in the interests of children (video recording on November 23, 2023)]. YouTube, 2023. Available at: https://www.youtube.com/watch?v=yRvsqYEDEzU (Accessed 12.12.2023). (In Russ.).
  2. Zhulina Yu.A. Metodicheskoe rukovodstvo po kompleksnoi trudovoi adaptatsii vzroslykh lyudei s mental’noi invalidnost’yu [Elektronnyi resurs] [Methodical guide to the complex labor adaptation of adults with mental disabilities]. Turmalin [Tourmaline], 2021. Available at: https://turmaline.ru/adaptation_monitoring/ (Accessed 12.12.2023). (In Russ.).
  3. Korovkina Yu.V. Metodicheskie rekomendatsii po organizatsii sotsial’noi reabilitatsii dlya vzroslykh lyudei s mental’noi invalidnost’yu v khudozhestvenno-remeslennykh masterskikh i na distantsionnykh zanyatiyakh [Elektronnyi resurs] [Methodological recommendations on the organization of social rehabilitation for adults with mental disabilities in art and craft workshops and distance learning]. Turmalin [Tourmaline], 2021. Available at: https://turmaline.ru/online_guidelines (Accessed 12.12.2023). (In Russ.).
  4. Levina Z.M. Metodicheskie rekomendatsii po sotsial’noi reabilitatsii vzroslykh invalidov s narusheniem intellekta v usloviyakh dnevnogo tsentra [Methodological recommendations for the social rehabilitation of adults with intellectual disabilities in a day center]. Moscow: Evidentis, 2005. 27 p. (In Russ.).
  5. Modeli luchshikh praktik v sfere sotsializatsii, reabilitatsii, obrazovaniya detei i vzroslykh s narusheniyami razvitiya [Models of best practices in the field of socialization, rehabilitation, and education of children and adults with developmental disabilities]. Moscow: Terevinf, 2018. 297 p. (In Russ.).
  6. Prikhodchenko E.I., Kuz’micheva A.S., Motuzenko N.I. Deyatel’nostnyi podkhod v obuchenii [Activity approach in teaching]. Vestnik Donetskogo pedagogicheskogo instituta [Bulletin of the Donetsk Pedagogical Institute], 2017, no. 2, pp. 22–27. (In Russ.).
  7. Shpek O. Lyudi s umstvennoi otstalost’yu: Obuchenie i vospitanie [People with mental retardation: Education and upbringing]. Transl. from German by A.P. Golubeva. Moscow: Akademiya, 2003. 432 p. (In Russ.).
  8. Yakovleva I.M. Trudovaya podgotovka lits s narusheniyami intellekta kak vazhnyi faktor ikh sotsializatsii [Labor training of persons with intellectual disabilities as an important factor of their socialization]. Modernizatsiya predprofil’nogo obrazovaniya lits s narusheniyami intellekta Materialy Vserossiiskoi nauchno-prakticheskoi konferentsii, Moskva, 2012 [Modernization of pre-professional education of persons with intellectual disabilities Materials of the All-Russian Scientific and Practical Conference, Moscow, 2012]. Ed. by I.M. Yakovleva. Moscow: GBOU VPO MGPU, 2012. 256 p. (In Russ.).
  9. Yaremchuk M.V. Ispol’zovanie sredovogo podkhoda v rabote s det’mi s RAS [The Use of Environmental Approach in the Work with Children with ASD]. Autizm i narusheniya razvitiya [Autism and Developmental Disorders], Vol. 17, no. 4, pp. 12–20. DOI:10.17759/autdd.2019170402 (In Russ., аbstr. in Engl.).

Information About the Authors

Yulia A. Zhulina, Social Teacher-Psychologist, Defectologist, Project Methodologist, Charity Organization “Rehabilitation Center “Turmalin”, Moscow, Russian Federation, ORCID: https://orcid.org/0009-0005-5185-2558, e-mail: yzhulina@gmail.com

Metrics

 Web Views

Whole time: 364
Previous month: 15
Current month: 16

 PDF Downloads

Whole time: 79
Previous month: 3
Current month: 9

 Total

Whole time: 443
Previous month: 18
Current month: 25