Distance Counseling for Parents in Early Intervention: A Competence-Based Approach

2515

Abstract

The article outlines the methodological framework, methods, tools and procedures for implementation of distance counseling of parents in early intervention within the competence-based approach. The approach testing was carried out during 2 years in 29 mothers of children aged 1 year and 4 months to 5,5 years with various diagnoses: “childhood autism” (n=12), “Down syndrome, unspecified” (n=3), “cerebral palsy, unspecified” (n=7), “other specified chromosome abnormalities” (n=4), “mixed specific developmental disorder” (n=1), “pervasive developmental disorder, unspecified” (n=2). Implementation of the approach, as well as its possibilities and limitations, are pointed out in the description of 2 cases.

General Information

Keywords: distance counseling, parents, early intervention, family-centered model, competence-based approach, coaching, video analysis, activity, participation, international classification of functioning

Journal rubric: Methods and Techniques

Article type: scientific article

DOI: https://doi.org/10.17759/cpse.2019080209

For citation: Kazmin A.M., Slovokhotova O.V. Distance Counseling for Parents in Early Intervention: A Competence-Based Approach [Elektronnyi resurs]. Klinicheskaia i spetsial'naia psikhologiia = Clinical Psychology and Special Education, 2019. Vol. 8, no. 2, pp. 159–184. DOI: 10.17759/cpse.2019080209. (In Russ., аbstr. in Engl.)

References

  1. Anokhin P.K. Printsipial'nye voprosy obshchei teorii funktsional'nykh sistem. [Principal issues of the general theory of functional systems]. Moscow: Nauka, 1973,
    pp. 17–61.
  2. Ermolaeva E.E., Kaz'min A.M., Mukhamedrakhimov R.Zh., et al. O rannei pomoshchi detyam i ikh sem'yam [About early help for children and their families]. Autizm i narusheniya razvitiya. [Autism and developmental disorders], 2017, vol. 15, no. 2, pp. 4–18. doi:10.17759/autdd.2017150201 (In Russ., abstr. in Engl.).
  3. Zhiyanova P.L. Semeino-tsentrirovannaya model' rannei pomoshchi. [Family-centered early help model]. Sindrom Dauna XXI vek [Down syndrome XXI century], 2008,
    № 1, pp. 20–23.
  4. Zimnyaya I.A. Klyuchevye kompetentnosti kak rezul'tativno-tselevaya osnova kompetentnostnogo podkhoda v obrazovanii. [Key competencies as an effective target basis of a competence-based approach in education]. Moscow, Issledovatel'skii tsentr problem kachestva podgotovki spetsialistov, 2004. 40 p. 
  5. Kaz'min A.M. Teoriya protsessual'nogo analiza: kratkoe opisanie i prikladnoe znachenie [Theory of procedural analysis: a brief description and applied value] [Web Source]. Klinicheskaya i spetsial'naya psikhologiya [Clinical and special psychology], 2012, no. 4. Available at: https://psyjournals.ru/psyclin/2012/n4/57302.shtml (Accessed 07.01.2019) (In Russ., abstr. in Engl.).
  6. Kaz'min A.M. Uchastie: teoreticheskie aspekty i otsenka v praktike rannei pomoshchi [Participation: theoretical aspects and evaluation in the practice of early care] [Web Source]. Klinicheskaya i spetsial'naya psikhologiya [Clinical and special psychology], 2015, vol. 4, no. 2, pp. 115–127. Available at: https://psyjournals.ru/psyclin/2015/n2/ Kazmin.shtml (Accessed 07.01.2019) (In Russ., abstr. in Engl.).
  7. Kaz'min A.M., Perminova G.A., Chugunova A.I. Prikladnoe znachenie Mezhdunarodnoi klassifikatsii funktsionirovaniya, ogranichenii zhiznedeyatel'nosti i zdorov'ya detei i podrostkov (kratkii obzor literatury) [Applied value of the International classification of functioning, disability and health of children and adolescents (short literature review)] [Web Source]. Klinicheskaya i spetsial'naya psikhologiya [Clinical and special psychology], 2014, vol. 3, no. 2. Available at: https://psyjournals.ru/psyclin/2014/n2/Kazmin_et_al. shtml (Accessed 07.01.2019) (In Russ., abstr. in Engl.).
  8. Kudrina T.P., Serkina A.V. Distantsionnoe konsul'tirovanie roditelei v sisteme rannei pomoshchi: iz opyta raboty [Remote counseling of parents in the system of early help: from work experience]. Defektologiya [Defectology], 2013, no. 6, pp. 60–70.
  9. Metodicheskie rekomendatsii po organizatsii rannei pomoshchi [Guidelines for the organization of early intervention], Dec., 25, 2018 [Web Source]. Available at: https://rosmintrud.ru/docs/mintrud/handicapped/274 (Accessed 07.01.2019)
  10. Raven Dzh. Kompetentnost' v sovremennom obshchestve: vyyavlenie, razvitie i realizatsiya. [Competence in modern society: identification, development and implementation]. Moscow: Cogito, 2002, 396 p.
  11. Seligman M., Darling R.B. Obychnye sem'i, osobye deti: sistemnyi podkhod
    k pomoshchi detyam s narusheniyami razvitiya. [Ordinary families, special children:
    a systematic approach to helping children with developmental disorders]. Moscow:  Terevinf, 2007. 368 p.
  12. Tkacheva V.V. Realizatsiya semeino-tsentrirovannogo podkhoda v usloviyakh sluzhby rannei pomoshchi [Implementing a family-centered approach in terms of early help services]. Korrektsionnaya pedagogika [Correctional Pedagogy], 2016, vol. 68. № 2.
    pp. 17–21.
  13. Baharav E., Reiser C. Using telepractice in parent training in early autism. Telemedicine and E-Health, 2010, vol. 16, no. 6, pp 727–731. Doi: 10.1089/tmj.2010.0029.
  14. Behl D., Blaiser K., Cook G. et al. A Multisite Study Evaluating the Benefits of Early Intervention via Telepractice. Infants & Young Children, 2017, vol. 30, no. 2, pp. 147–161. Doi: 10.1097/IYC.0000000000000090.
  15. Block A.W., Block S.R. Strengthening social work approaches through advancing knowledge of early childhood intervention. Child and Adolescent Social Work Journal, 2002, vol. 19, no. 3, pp. 191–208.  Doi: 10.1023/A:1015575914314
  16. Braddell A. Citizens' Curriculum guide to non-directive coaching [Web Source]. Leicester: Learning and Work Institute, 2017.   Available at: https:// www.learningandwork.org.uk/wp-content/uploads/2017/08/LW-Coaching-Report-V6-13.7.2017.pdf (Accessed 07.01.2019)
  17. Brewer E.J., McPherson M., Magrab P.R. et al.  Family-Centered, Community-based: coordinated care for children with special health care needs. Pediatrics, 1989, vol. 83, no. 6, pp. 1055–1060.
  18. Brown J.A. Exploring Coaching Strategies in a Parent-Implemented Intervention for Toddlers. Dissertation of Doctor of Philosophy [Web Source], The Florida State University College of Communication and Information, 2012. Available at:  http://purl.flvc.org/ fsu/fd/FSU_migr_etd-5324  (Accessed 07.01.2019)
  19. Brown W., Thurman S.K., Pearl L.F. Family-Centered Early Intervention with Infants & Toddlers: innovative cross-disciplinary approaches. Baltimore, MD: Paul
    H. Brookes, 1993.  340 p.
  20. Davis H., Day C., Bidmead C.  Working in partnership with parents: the parent adviser model. London: The Psychological Corporation. 2002. 293 p.
  21. Dunst C.J., Trivette C.M. Empowerment, effective helpgiving practices and family-centered care. Pediatric Nursing, 1996, vol. 22, no. 4, pp. 334–337.
  22. Dunst C.J. Family-centered practices. Journal of Special Education, 2002, vol. 36, no. 3, pp.  141–149. Doi: 10.1177/00224669020360030401
  23. Edelman L. A relationship-based approach to early intervention [Web Source]. Resources and Connections, 2004, vol. 3, no. 2, pp. 2–9.  Available at: http://cacenter-ecmh.org/wp/wp-content/uploads/2012/03/relationship_based_approach.pdf  (Accessed 07.01.2019).
  24. Florida’s Early Intervention Professional Competencies. Florida Department of Health website [Web Source]. Available at: http://www.floridahealth.gov /alternatesites/cms-kids/providers/documents/Professional_Competencies.  (Accessed 07.01.2019)
  25. Friedman M., Woods J., Salisbury C.  Caregiver Coaching Strategies for Early Intervention Providers: Moving Toward Operational Definitions. Infants & Young Children, 2012, vol. 2, no. 1, pp. 62–82.  Doi: 10.1097/IYC.0b013e31823d8f12
  26. Jones D.J., Forehand R., Cuellar J., et al.  Harnessing innovative technologies to advance children’s mental health: Behavioral parent training as an example. Clinical Psychology Review, 2013, vol. 33, no. 2, pp. 241–252. Doi: 10.1016/j.cpr.2012.11.003.
  27. Kaiser A.P., Roberts M.Y. Parent-implemented enhanced milieu teaching with preschool children who have intellectual disabilities. Journal of Speech, Language, and Hearing Research, 2013, vol. 56, no. 1, pp. 295–309. 
  28. Knowles M.S. The modern practice of adult education: Androgogy versus pedagogy. New York: New York Association Press, 1970. 376 pp.
  29. McCarthy M., Muñoz K., White K.R. Teleintervention for infants and young children who are deaf or hard-of-hearing. Pediatrics, 2010, vol. 126, no. 1, pp. 52–58.
  30. McClelland D.C. Testing for competence rather than intelligence. American Psychologist, 1973, vol. 28, no. 1, pp.  1–14. Doi: 10.1037/h0034092
  31. McDuffie A., Machalicek W., Oakes A., et al. Distance Video-Teleconferencing in Early Intervention: Pilot Study of a Naturalistic Parent-Implemented Language Intervention. Topics in Early Childhood Special Education, 2013, vol. 33, no. 3, pp. 172–185.  Doi: 10.1177/0271121413476348.
  32. McDuffie A., Oakes A., Machalicek W., et al. Early language intervention using distance video-teleconferencing: A pilot study of young boys with fragile X syndrome and their mothers. American Journal of Speech-Language Pathology, 2016, vol. 25, no. 1,
    pp. 46–66. Doi:10.1044/2015_AJSLP-14-0137
  33. Meadan H., Angell M.E., Stoner J.B., et al.  Parent-implemented social-pragmatic communication intervention: A pilot study. Focus on Autism and Other Developmental Disabilities, 2014, vol. 29, no. 1, pp. 95–110. Doi:10.1177/1088357613517504
  34. Meadan H., Snodgrass M.R., Meyer L.E., et al.  Internet-Based Parent-Implemented Intervention for Young Children with Autism: A Pilot Study. Journal of Early Intervention, 2016, vol. 38, no. 1, pp. 3–23. Doi: 10.1177/1053815116630327
  35. Pearlman C. The Measurement of Effectance Motivation. Educational and Psychological Measurement, 1982, vol. 42, no. 1, pp. 49–56. Doi: 10.1177/ 0013164482421006
  36. Petr C.G., Allen R.I. Family-Centered Professional Behavior: Frequency and Importance to Parents. Journal of Emotional and Behavioral Disorders, 1997, vol. 5, no. 4, pp. 196–204. Doi: 10.1177/106342669700500402
  37. Raia A.P. Goal setting and self-control: An empirical study. Journal of Management Studies, 1965, vol. 2, no. 1, pp. 34–53.
  38. Tomasello N.M., Manning A.R., Dulmus C.N.  Family-Centered Early Intervention for Infants and Toddlers with Disabilities. Journal of Family Social Work, 2010, vol. 13, no. 2, pp. 163–172 Doi: 10.1080/10522150903503010
  39. White R.W. Motivation reconsidered: The concept of competence. Psychological Review, 1959, vol. 66, no. 5, pp. 297–333. Doi: 10.1037/h0040934
  40. White R.W. Lives in progress: A study of the natural growth of personality (2nd ed.). Oxford, England: Holt, Rinehart & Winston, 1966.
  41. Vismara L.A., McCormick C., Young G.S., et al.  Preliminary findings of a telehealth approach to parent training in autism. Journal of Autism and Developmental Disorders, 2013, vol. 43, no. 12, pp. 2953–2969. Doi: 10.1007/s10803-013-1841-8.

Information About the Authors

Aleksandr M. Kazmin, PhD in Medicine, Professor, Department of Neuro and Pathopsychology of Development, Faculty of Clinical and Special Psychology, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0000-0002-1748-2574, e-mail: mgppukprd@gmail.com

Olga V. Slovokhotova, psychologist, Regional Public Organization to Help Children with Autism Spectrum Disorders «Contact», Moscow, Russia, ORCID: https://orcid.org/0000-0002-8998-2287, e-mail: nicecreamol9@gmail.com

Metrics

Views

Total: 2165
Previous month: 15
Current month: 12

Downloads

Total: 2515
Previous month: 31
Current month: 41