Изменяя мир для детей с нарушениями приема пищи: культурно-исторический анализ трансформирующей субъектности

Как добиться позитивных изменений — ключевая задача культурно-исторической концепции. Остается актуальной важность рассмотрения изменений сквозь призму переплетения индивидуального и социального. Определенные возможности для этого открывает концепция субъектности/агентности (agency), средства, с помощью которого люди могут не просто справляться с проблемами или адаптироваться к текущему положению вещей, но прилагать усилия к тому, чтобы создавать будущее, которое должно стать реальностью. Данная работа опирается на идеи трансформирующей позиции активизма (TAS) А. Стеценко, трансформирующей субъектности посредством метода двойной стимуляции (TADS) А. Саннино и социальной субъектности (relational agency) А. Эдвардс, прослеживая возникновение и проигрывание субъектности у родителей детей с нарушениями приёма пищи. Это дети, которые не в состоянии питаться самостоятельно, через рот, поэтому для их кормления необходимо прибегать к специальной трубке (зонду). Каждая семья усиленно конструировала, а затем воплощала в жизнь будущее, в котором их ребенок мог есть самостоятельно, без трубки. Родители действовали из позиции субъектности и руководствовались теми способами, которые согласовывались со значимыми культурными средствами. Эти средства — краеугольный камень будущего, в котором есть больше пространства для инклюзии, равенства и заботы, как для детей, так и для их родителей. В статье подчёркивается значимость современных культурно-исторических подходов к субъектности для понимания и инициирования изменений на стыке индивидуального и социального.

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