Взаимосвязь между качеством жизни и удовлетворенностью работой у людей с РАС ¹³⁷

В представленном исследовании рассматривалась взаимосвязь между удовлетворенностью работой и качеством жизни трудоустроенных людей с расстройствами аутистического спектра (РАС). Участники исследования — люди с РАС, задействованные в программе трудоустройства людей с ограниченными возможностями Dandelion DXC Technology. В рамках лонгитюдного исследования авторы оценивали, как участие в программе трудоустройства людей с ограниченными возможностями влияет на качество жизни и удовлетворенность работой сотрудников с РАС. Качество жизни оценивалось в соответствии с Кратким опросником ВОЗ для оценки качества жизни (World Health Organization Quality of Life Brief), а внутренняя и внешняя удовлетворенность работой оценивалась по сокращенной версии Миннесотского опросника удовлетворенности (Minnesota Satisfaction Questionnaire (Short Form)). Результаты показали статистически незначимое (уровень значимости p = 0,01) изменение качества жизни и удовлетворенности работой в течение 12 месяцев. Данные результаты в дальнейшем используются для улучшения программы по трудоустройству и поддержке сотрудников с РАС.

Ключевые слова: расстройства аутистического спектра, инвалидность, удовлетворенность работой, качество жизни, трудоустройство людей с ограниченными возможностями, взрослые, призвание

Рубрика: Модели организации комплексной помощи

Тип: научная статья

DOI: https://doi.org/10.17759/autdd.2020180302

Исследования, на которые ссылается настоящая работа, были проведены при поддержке DXC Technology и Департамента социального обеспечения при правительстве Австралии. Содержание настоящей работы является исключительно ответственностью авторов и не было утверждено или одобрено компанией DXC Technology или Департаментом социального обеспечения при правительстве Австралии.

1. Albrecht G.L., Devlieger P J. The disability paradox: High quality of life against all odds. Social Science & Medicine, 1999, vol. 48, no. 8, pp. 977—988. DOI: 10.1016/S0277-9536(98)00411-0
2. Baumgärtner M.K., Dwertmann D.J.G., Boehm S.A., Bruch H. Job satisfaction of employees with disabilities: The role   of perceived structural flexibility. Human Resource Management, 2015, vol. 54, no. 2, pp. 323—343. DOI: 10.1002/ hrm.21673
3. Bishop-Fitzpatrick L., Hong J., Smith L.E., Makuch R.A., Greenberg J S., Mailick M.R. Characterizing objective quality of life and normative outcomes in adults with Autism Spectrum Disorder: An exploratory latent class analysis. Journal of Autism and Developmental Disorders, 2016, vol. 46, no. 8, pp. 2707—2719. DOI: 10.1007/s10803-016-2816-3
4. Boswell W.R., Shipp A.J., Payne S.C., Culbertson S.S. Changes in newcomer job satisfaction over time: Examining the pattern of honeymoons and hangovers. Journal of Applied Psychology, 2009, vol. 94, no. 4, pp. 844—858. DOI: 10.1037/ a0014975
5. Bury S.M., Hedley D., Uljarević M., Gal E. The autism advantage at work: A critical and systematic review of current evidence. Research in Developmental Disabilities, 2020, vol. 105. DOI: 10.1016/j.ridd.2020.103750
6. Carr S.E. Quality of life in emerging adults with autism spectrum disorder. Dissertation Abstracts International: Section B: The Sciences and Engineering, 2015, vol. 76.
7. Cavanagh J., Bartram T., Meacham H., Bigby C., Oakman J., Fossey E. Supporting workers with disabilities: A scoping review of the role of human resource management in contemporary organisations. Asia Pacific Journal of Human Resources, 2015, vol. 55, no. 1, pp. 6—43. DOI: 10.1111/1744-7941.12111
8. Chen J.L., Leader G., Sung C., Leahy M. Trends in employment for individuals with Autism Spectrum Disorder: A review of the research literature. Review Journal of Autism and Developmental Disorders, vol. 2, pp. 115—127. DOI: 10.1007/ s40489-014-0041-6
9. Diagnostic and statistical manual of mental disorders (5th ed.). Washington: Publ. American Psychiatric Association, 2013. 991 p. ISBN 978-0-89042555-8.
10. Digital Skills and Jobs Coalition / European Commission [Web resource]. 2020. URL: https://ec.europa.eu/digital- single-market/en/news/bridging-digital-talent-gap-towards-successful-industry-university-partnerships-workshop (Accessed 03.09.2020).
11. Disability, Ageing and Carers, Australia: Summary of Findings, 2018 / Australia Bureau of Statistics [Web resource]. 2019. URL: https://www.abs.gov.au/ausstats/abs@.nsf/mf/4430.0 (Accessed  03.09.2020).
12. Donovan S. Entrepreneur Thorkil Sonne on what you can learn from employees with autism. Harvard Business Review, 2008, no. 9, p. 32.
13. Garcia-Villamisar D., Wehman P., Navarra M D. Changes in the quality of autistic people’s life that work in supported and sheltered employment: A 5-year follow-up study. Journal of Vocational Rehabilitation, 2003, vol. 17, no. 4, pp. 309—312.
14. Grandin T. Different... not less: Inspiring stories of achievement and successul employment from adults with autism, Asperger’s, and ADHD. Arlington: Publ. Future Horizons, 2012. 407 p. ISBN 978-1-93527460-5.
15. Hagner D., Cooney B.F. “I do that for everybody”: Supervising employees with Autism. Focus on Autism and Other Developmental Disabilities, 2005, vol. 20, no. 2, pp. 91—97. DOI: 10.1177/10883576050200020501
16. Happe F., Frith U. The weak coherence account: detail-focused cognitive style in autism spectrum disorders. Journal of Autism and Developmental Disorders, 2006, vol. 36, no. 1, pp. 5—25. DOI: 10.1007/s10803-005-0039-0
17. Hedley D., Cai R., Uljarević M., Wilmot M., Spoor J R., Richdale A., Dissanayake C. Transition to work: Perspectives from the autism spectrum. Autism, 2018, vol. 22, no. 5, pp. 528—541. DOI: 10.1177/1362361316687697
18. Hedley D., Uljarević M., Bury S.M., Dissanayake, C. Predictors of mental health and well-being in employed adults with autism spectrum disorder at 12-month follow-up. Autism Research, 2019, vol. 12, no. 3, pp. 482—494. DOI: 10.1002/ aur.2064
19. Hedley D., Uljarević M., Cameron L., Halder S., Richdale A., Dissanayake, C. Employment programmes and interventions targeting adults with autism spectrum disorder: A systematic review of the literature. Autism, 2017, vol. 21, no. 8, pp. 929— 941.  DOI: 10.1177/1362361316661855
20. Hedley D., Uljarević M., Hedley D.F.E. Employment and living with Autism: Personal, social and economic impact. In Halder S., Assaf L.C. (eds.) Inclusion, Disability and Culture: An Ethnographic Perspective Traversing Abilities and Challenges. New York: Publ. Springer, 2017. 390 p. ISBN 978-3-31955223-1. DOI: 10.1007/978-3-319-55224-8_19
21. Hendricks D. Employment and adults with autism spectrum disorders: Challenges and strategies for success. Journal of Vocational Rehabilitation, 2010, vol. 32, no. 2, pp. 125—134. DOI: 10.3233/JVR-2010-0502
22. Hillier A., Campbell H., Mastriani K., Izzo M.V., Kool-Tucker A.K., Cherry L., Beversdorf D.Q. Two-year evaluation of a vocational support program for adults on the autism spectrum. Career Development for Exceptional Individuals, vol. 30, no. 1, pp. 35—47. DOI: 10.1177/08857288070300010501
23. Hirschfeld R.R. Does revising the intrinsic and extrinsic subscales of  the  Minnesota  Satisfaction  Questionnaire Short Form make a difference? Educational and Psychological Measurement, 2000, vol. 60, no. 2, pp. 255—270. DOI: 10.1177/00131640021970493
24. Johnson T.D., Joshi A. Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 2016, vol. 101, no. 3, pp. 430—449. DOI: 10.1037/ apl0000058
25. Judge T.A., Klinger R. Job satisfaction: Subjective well-being at work. In Eid M., Larsen R.J. (eds.) The science of subjective well-being. New York: Publ. Guilford Press, 2008. Pp. 393—413. ISBN 978-1-59385581-9.
26. Krzeminska A., Austin R., Bruyere S., Hedley D. The advantages and challenges of neurodiversity employment in organizations. Journal of Management and Organization, 2019, vol. 25, no. 7, pp. 453—463. DOI: 10.1017/jmo.2019.58
27. Lawson L.P., Richdale A.L., Haschek A., Flower R L., Vartuli J., Arnold S.R., Trollor J.N. Cross-sectional and longitudinal predictors of quality of life in autistic individuals from adolescence to adulthood: The role of mental health and sleep quality. Autism, 2020, vol. 24, no. 4, pp. 954—967. DOI: 10.1177/1362361320908107
28. Locke E.A. The nature and causes of job satisfaction. In M.D. Dunnette (Ed.) Handbook of industrial and organizational psychology. Chicago: Publ. Rand McNally, 1976. Pp. 1297—1343.
29. Mitra S. The capability approach and disability. Journal of Disability Policy Studies, 2006, vol.16, no. 4, pp. 236—247. DOI: 10.1177/10442073060160040501
30. Müller E., Schuler A., Burton B.A., Yates G.B. Meeting the vocational support needs of individuals with Asperger Syndrome and other autism spectrum disabilities. Journal of Vocational Rehabilitation, 2003, vol. 18, pp. 163—175.
31. Nicholas D.B., Hedley D., Randolph J.K., Raymaker D.M., Robertson S.M., Vincent J. An expert discussion on employment in autism. Autism in Adulthood, 2019, vol. 1, no. 3, pp. 162—169. DOI: 10.1089/aut.2019.29003.djn
32. Renty J.O., Roeyers H. Quality of life in high-functioning adults with autism spectrum disorder. Autism, 2006, vol. 10, no. 5, pp. 511—524. DOI: 10.1177/1362361306066604
33. Richards J. Examining the exclusion of employees with Asperger Syndrome from the workplace. Personnel Review, 2012, vol. 41, no. 5, pp. 630—646. DOI: 10.1108/00483481211249148
34. Robertson S.M. Neurodiversity, quality of life, and autistic adults: Shifting research and professional focuses onto real-life challenges. Disability Studies Quarterly, 2010, vol. e30, no. 1. DOI: 10.18061/dsq.v30i1.1069
35. Roux A.M., Shattuck P.T., Cooper B.P., Anderson K.A., Wagner M., Narendorf S.C. Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 2013, vol. 52, no. 9, pp. 931—939. DOI: 10.1016/j.jaac.2013.05.019
36. Schur L., Kruse D., Blasi J., Blanck P. Is disability disabling in all workplaces? Workplace disparities and corporate culture. Industrial Relations: A Journal of Economy and Society, 2009, vol. 48, no. 3, pp. 381—410. DOI: 10.1111/j.1468- 232X.2009.00565.x
37. Sickness, disability and work: Breaking the barriers: A synthesis of findings across OECD countries. Paris: Publ. OECD, 2010. 165 p. ISBN 978-9-26408884-9.
38. Skevington S.M., Lotfy M., O’Connell K.A. The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial: A report from the WHOQOL group. Quality of Life Research, 2004, vol. 13, no. 2, pp. 299—310. DOI: 10.1023/B:QURE.0000018486.91360.00
39. Stone D.L., Colella A. A model of factors affecting the treatment of disabled individuals in organizations. Academy of Management Review, 1996, vol. 21, no. 2, pp. 352—401. DOI: 10.2307/258666
40. Tabachnick B.G., Fidell L.S. Using multivariate statistics. 5th ed. Needham Heights: Publ. Allyn & Bacon, 2007. 980 p. ISBN 978-0-20545938-4.
41. Taylor J.L., Henninger N.A., Mailick M.R. Longitudinal patterns of employment and postsecondary education for adults with autism and average-range IQ. Autism, 2015, vol. 19, no. 7, pp. 785—793. DOI: 10.1177/1362361315585643
42. Urbanowicz A., Nicolaidas C., den Houting J., Shore S.S., Gaudion K., Girdler S., Savarese R.J. An  expert  discussion         on strengths-based approaches in autism. Autism in Adulthood, 2019, vol. 1, no. 2, pp. 82—89. DOI:10.1089/ aut.2019.29002.aju
43. Van Heijst B.F., Geurts H.M. Quality of life in autism across the lifespan: a meta-analysis. Autism: The international journal of research and practice, 2015, vol. 19, no. 2, pp. 158—167. DOI: 10.1177/1362361313517053
44. Warr P. Well-being and the workplace. In D. Kahneman, E. Diener, N. Schwarz (Eds.) Well-being: The foundations of hedonic psychology. New York: Publ. Russell Sage Foundation, 1999. Pp. 392—412. ISBN 978-0-87154423-0.
45. Weiss D.J., Dawis R.V., England G.W., Lofquist L.H. Manual for the Minnesota Satisfaction Questionnaire / Industrial Relations Center. Minneapolis: Publ. University of Minnesota, 1967. 119 p.
46. WHOQOL-BREF: Introduction, administration, scoring, and generic version of the assessment. Geneva: World Health Organization, 1996. 32 p.
47. World report on disability / WHO; World Bank. Geneva: World Health Organization, 2011. ISBN 978-92-4-156418-2.